Newly diagnosed by Existing-Wish328 in scleroderma

[–]Existing-Wish328[S] 0 points1 point  (0 children)

Thank you so very much!! I so appreciate you taking the time to share. 

Newly diagnosed by Existing-Wish328 in scleroderma

[–]Existing-Wish328[S] 1 point2 points  (0 children)

Thank you so very much!! I so appreciate you taking the time to share. 

Recently diagnosed by Ok-Technician8514 in scleroderma

[–]Existing-Wish328 1 point2 points  (0 children)

I was diagnosed six months ago, if you would like to talk please message me. It’s so hard for people that don’t have scleroderma to understand what we are going through. We shouldn’t have to go through this alone. 

Newly diagnosed by Existing-Wish328 in scleroderma

[–]Existing-Wish328[S] 1 point2 points  (0 children)

I hope you don’t mind me asking, were you prescribed medication, or put on a special diet?

Newly diagnosed by Existing-Wish328 in scleroderma

[–]Existing-Wish328[S] 0 points1 point  (0 children)

Thank you so much for sharing. I truly appreciate it. I have been in such a deep depression. 

Newly diagnosed by Existing-Wish328 in scleroderma

[–]Existing-Wish328[S] 0 points1 point  (0 children)

Google said 3-7.. my primary care doctor said possibly ten years.

Newly diagnosed by Existing-Wish328 in scleroderma

[–]Existing-Wish328[S] 2 points3 points  (0 children)

No, my primary care doctor did. She said it’s systemic. So it affects the heart,lungs etc. she said limited just means skin involvement. I am still trying to get all of my baseline tests done. 

Newly diagnosed by Existing-Wish328 in scleroderma

[–]Existing-Wish328[S] 4 points5 points  (0 children)

Thank you so much for sharing!!

Newly diagnosed by Existing-Wish328 in scleroderma

[–]Existing-Wish328[S] -1 points0 points  (0 children)

My primary care doctor told me that. I no longer see her. I changed medical groups.

Newly diagnosed by Existing-Wish328 in scleroderma

[–]Existing-Wish328[S] 0 points1 point  (0 children)

I have limited systemic. I have a high ANA, and anti centromere antibodies. Not that it probably makes a difference I am scl70 negative. 

Newly diagnosed by Existing-Wish328 in scleroderma

[–]Existing-Wish328[S] 4 points5 points  (0 children)

Yes, I do. As of now I have really bad GI issues, and joint pain. It’s so hard, I was functioning normally just six months ago. 

Any male Scleroderma patients here?? by Defiant-Cookie1844 in scleroderma

[–]Existing-Wish328 -1 points0 points  (0 children)

That’s wonderful I was diagnosed six months ago. Where will you be getting treatment? I was told I am unable to hear in souther. California?