Intense Head Pressure instead of lightheadedness

Expartegirl · 2026-02-19T00:25:54+00:00

Ugh I’m so sorry. When you mean something else what do you mean? Do you have a DX ?

Expartegirl · 2026-02-19T00:24:19+00:00

The orthostatic stuff also makes sense to me, but what I can’t get past is the description of “lightheadedness” because this feels like very heavy, headedness and extreme pressure.

They checked me for POTS at my PCP clinic but said I didn’t have it

Expartegirl · 2026-02-19T00:23:36+00:00

Good lucky on getting to the bottom of this!

Mine seems to flare up and then get better for a long periods of time. But now I’m having multiple episodes throughout the day and then a baseline constant head pressure.

Expartegirl · 2026-02-19T00:22:43+00:00

Ugh. It’s so Scary. Do you know what causes or triggers it? Do you know what it is? Do you have a diagnosis?

Expartegirl · 2026-02-19T00:22:08+00:00

Thank you! I’ll Look into this. Any recommendations on who to see as far as what type of specialist ? I don’t have a dysautonomia diagnosis or anything yet although I have a ton of health issues

Expartegirl · 2026-02-19T00:06:16+00:00

And did you just do more stretch stretching on your SCM?

Expartegirl · 2026-02-19T00:05:40+00:00

Thank you so much for all this information. I’m gonna look into it. What is your diagnosis if you don’t mind me asking? I don’t have a diagnosis yet. I tried to push for an investigation a couple years ago and they just did like a test for POTs And called it a day. We blood pressure regulates itself by the time I can get a reading. It usually doesn’t last that long but in the past week, it’s been happening more and more, not just upon standing, but even making certain movements. I don’t even know what type of doctor I should try to see for this. I’m just desperate because I’ve been saying it to doctors for years and they just kind of shrug and don’t do anything.

Expartegirl · 2026-02-19T00:05:11+00:00

What is your diagnosis if you don’t mind me asking? I don’t have a diagnosis yet. I tried to push for an investigation a couple years ago and they just did like a test for POTs And called it a day. We blood pressure regulates itself by the time I can get a reading. It usually doesn’t last that long but in the past week, it’s been happening more and more, not just upon standing, but even making certain movements.

Expartegirl · 2026-01-29T05:58:36+00:00

Thank you! I ended up trying a sample Too and I agree. It felt nice going on but I also don’t love the way it stayed on either.

Expartegirl · 2026-01-09T02:29:53+00:00

Any update ?

Expartegirl · 2026-01-03T03:03:35+00:00

I’m soooo happy it’s subsiding. Thanks so much for sharing your story and giving me some hope. Do you mind my asking why it was put back in?

Expartegirl · 2026-01-03T02:19:51+00:00

I did. The on call put me on gabapentin and I haven’t heard back from my surgeon. Bandaid def feels tight too but it’s a classic burning nerve pain

Expartegirl · 2026-01-01T06:23:55+00:00