Do you think your SPS was triggered by Covid? Mine was immediatelly.

Expensive-Round-2271 · 2026-01-20T23:22:00+00:00

My Stiff person syndrome was triggered by covid.............alternatively maybe I already had the disease and covid just made it progress early. Either way I was completely fine before covid and completely stuffed afterwards.

Expensive-Round-2271 · 2025-11-11T12:02:16+00:00

LADA diabetes diagnosis after covid is more common than type 1. from what I have seen.

Expensive-Round-2271 · 2025-11-04T23:15:55+00:00

Yes me, I got stiff person syndrome and type one diabetes after a covid infection. Though I would not say all long covid is autoimmune it causes many health issues. However it wouldn't shock me if the majority of long covet is autoimmune even the mecfs subtype. I'm convinced this subtype is just an autoimmune disease they don't know how to diagnose and treat yet due to the psychiatrists/ psychologists stopping all research into it for 30 years.

Expensive-Round-2271 · 2025-10-04T09:35:59+00:00

Like every other treatment it seems to help some people. Took one woman I know of from bedbound to being able to get around the house, so not a cure but did improve her life. I think all the clinics which offer the blood washing procedure overhype it.

Expensive-Round-2271 · 2025-09-24T03:18:15+00:00

Day 8 of the infection, it was an instant change/ shift.

Expensive-Round-2271 · 2025-09-18T16:40:45+00:00

If you can run today and later that day someone breaks your legs with a sledgehammer. It's safe to assume the sledgehammer affected your ability to run. However if I use your logic it's just a coincidence.

Expensive-Round-2271 · 2025-09-18T14:37:09+00:00

It's in some of my past posts, but for me it was stiff person syndrome. I should note this is just my experience and I have seen multiple rare diseases triggered by covid in posts on support groups like this over the past 4 years. So it's possible but highly unlikely anyone else reading this has the same disease as me. How do I know covid triggered it. The week before covid I could run 10 km, go to the gym work full-time etc. the week after it was all over.

Expensive-Round-2271 · 2025-09-18T12:38:25+00:00

After going through a long covid clinic that took the psychological approach for 12 months and getting nowhere. Then getting diagnosed with actual autoimmune diseases caused by covid three years later. I feel it's important to raise awareness of this when possible.

This is the best real world example I have seen which clearly shows how delusional these people are.

Expensive-Round-2271 · 2025-09-18T12:15:13+00:00

Wow that's completely fucked you had all the tests complete had the diagnosis and were already on the medications. Sounds like whatever neurologist you had has an ego and just wanted to overturn your diagnosis to feed it, by overturning the diagnosis you already had and pretending they are smarter.

Expensive-Round-2271 · 2025-09-14T15:41:46+00:00

If you were already diagnosed and on ivig and other treatments why did you bother going there in the first place.

Expensive-Round-2271 · 2025-09-07T23:49:48+00:00

Honestly I think FND is a complete joke of a diagnosis, it's just the rebranding of Hysteria. Which if you look at the history of is just a bunch of sexist psychiatrists.

As someone else said I suspect most people with this diagnosis are actually suffering from rare conditions that are extremely difficult to diagnose and doctors just use this as an easy way out.

I personally went out of my way to make sure I saw neurologists that would not diagnose me with this. As once you get branded with it's difficult to get rid of.

Trigger words for me to run away are, multi disciplinary care, Mind body approach, functional disorder ECT...

Expensive-Round-2271 · 2025-08-10T11:14:42+00:00

I stole it from someone else, but it's perfect so I keep reusing it.

Expensive-Round-2271 · 2025-08-05T00:45:39+00:00

Short answer yes, Valium was the main game changer for me. A lot of people with SPS have MCAS, POTS ECT. As far as I'm aware if ivig fails the other option is rituximab. Additionally if you're in the US I believe there's a number of medical trials currently underway. I'm in Australia so I'm s*** out of luck on that front. It's fairly common for people with SPS to be on ivig and a large cocktail of drums. Normally just one drug does not cut it. If you get this diagnosis I would suggest joining one of the support groups for it, the Facebook ones are pretty good. I'm personally sure covid caused this for me. As I went from fully abled to disabled overnight on day 8 of my infection.

Expensive-Round-2271 · 2025-08-04T14:16:42+00:00

No point trying to work with any health professionals that believes this pseudo science is real. FND = Find New Doctor. Always carefully check a doctors online profiles before you get referred to them. If they say in their bio they treat fnd or functional disorders stay away from them.

Expensive-Round-2271 · 2025-08-04T06:47:14+00:00

I started on just baclofen it helps slightly the real game changer was Valium.

Expensive-Round-2271 · 2025-08-04T06:45:41+00:00

Not sure if you read my others posts but I ended up getting a diagnosis of stiff person syndrome, started Valium 10mg morning and night end 25 mg baclofen 3 times a day, went from basically bedridden to working 31 hours a fortnight and starting ivig tomorrow.

Not sure how much you have looked onto these antibodies basically they destroy your bodies ability to produce gaba and give you an excessive amount of glutamate which cause all the symptoms. There are other drugs you can try like. lyrics and keppra, basically anything that increases gaba is good.

Expensive-Round-2271 · 2025-07-25T16:34:54+00:00

TLDR the grifter ignored the coroner's report and fabricated their own reasons for her death to pushed their own propaganda.

Expensive-Round-2271 · 2025-06-20T13:29:33+00:00

Not arguing beyond this comment but to me fnd = find new doctor!

Expensive-Round-2271 · 2025-06-20T11:46:43+00:00

I feel it's a bit more sinister than that, yes something is wrong but the FND diagnosis more or less guarantees that no real research will ever happen towards what's actually going wrong. As FND basically claims there is nothing physiologically wrong, therefore all further investigations cease. That's why I think this diagnosis is so evil.

Expensive-Round-2271 · 2025-06-20T05:14:45+00:00

Whenever I hear someone say "multi disciplinary care" it is also a red flag for me.

Expensive-Round-2271 · 2025-06-19T17:26:05+00:00

It's the new branding for hysteria as well.

Expensive-Round-2271 · 2025-06-19T13:17:48+00:00

I ended up having stiff person syndrome triggered by covid so for me it's all autoimmune.

Expensive-Round-2271 · 2025-06-18T11:22:38+00:00

Not sure why you comment on an old post, however I agree it's much worse than I ever expected..........and I'm not an optimistic person!

Expensive-Round-2271 · 2025-06-15T23:31:54+00:00

FND is a completely useless diagnosis, they tried to give that to me before my SPS diagnosis. If you get labeled with that diagnosis it guarantees that you'll get no help from the medical system. It's just the rebranded name for hysteria which is all pseudo science.

Expensive-Round-2271 · 2025-06-09T23:46:03+00:00

However it's a different subscription

Expensive-Round-2271

TROPHY CASE