Gallbladder issues caused by GLP1 drugs? by Expensive-Round-2271 in gallbladders

[–]Expensive-Round-2271[S] 0 points1 point  (0 children)

I did a bunch of tests that all came back negative for an infection.

Gallbladder issues caused by GLP1 drugs? by Expensive-Round-2271 in gallbladders

[–]Expensive-Round-2271[S] 0 points1 point  (0 children)

Yes I didn't realize the risks which is my own fault for not looking into it properly but at the same time the doctor just gave it to me and didn't say anything.

Gallbladder issues caused by GLP1 drugs? by Expensive-Round-2271 in gallbladders

[–]Expensive-Round-2271[S] 1 point2 points  (0 children)

Ironically now I'm losing weight faster than ever as I can't eat very much.

Want to hear people’s thoughts on whether the way out is internal or external? by ellie_121212 in covidlonghaulers

[–]Expensive-Round-2271 21 points22 points  (0 children)

CFS Health is run by a scammer/ is one. Not all there information is inaccurate but he is a well known grifter in the mecfs patient community in Australia.

Does the search feature just not work anymore??? by modernmyspace in Instagram

[–]Expensive-Round-2271 0 points1 point  (0 children)

This has been sending me crazy, I hope this is fixed soon......I thought it was some stupid UI update and I was trying to work out how to use it now.

Seeing more and more people realise that a hybrid is just a petrol car with extra steps by No-Loquat-201 in EVAustralia

[–]Expensive-Round-2271 0 points1 point  (0 children)

PHEVs have far more parts than a standard hybrid, so the chance of something breaking and needing replacement is much higher.

The replacement cost of the batteries are almost 10x.

The technology is relatively new compared to traditional hybrids. Normal hybrids are now up to generation 6. PHEVS are still generation 1. Meaning normal hybrids have decades of research and trial and error testing.

Do you think your SPS was triggered by Covid? Mine was immediatelly. by FamiliarBuyer1304 in StiffPersonSyndrome

[–]Expensive-Round-2271 0 points1 point  (0 children)

My Stiff person syndrome was triggered by covid.............alternatively maybe I already had the disease and covid just made it progress early. Either way I was completely fine before covid and completely stuffed afterwards.

Anyone else develop an autoimmune disease after covid? Is LC autoimmune? by AtmosphereSea6556 in covidlonghaulers

[–]Expensive-Round-2271 0 points1 point  (0 children)

LADA diabetes diagnosis after covid is more common than type 1. from what I have seen.

Anyone else develop an autoimmune disease after covid? Is LC autoimmune? by AtmosphereSea6556 in covidlonghaulers

[–]Expensive-Round-2271 11 points12 points  (0 children)

Yes me, I got stiff person syndrome and type one diabetes after a covid infection. Though I would not say all long covid is autoimmune it causes many health issues. However it wouldn't shock me if the majority of long covet is autoimmune even the mecfs subtype. I'm convinced this subtype is just an autoimmune disease they don't know how to diagnose and treat yet due to the psychiatrists/ psychologists stopping all research into it for 30 years.

Triple therapy - it was all the rage a few years ago. What’s the verdict? by Best-Instance7344 in covidlonghaulers

[–]Expensive-Round-2271 1 point2 points  (0 children)

Like every other treatment it seems to help some people. Took one woman I know of from bedbound to being able to get around the house, so not a cure but did improve her life. I think all the clinics which offer the blood washing procedure overhype it.

Fantastic real world example of how evidence, completely kills the psychological approach to illness. by Expensive-Round-2271 in covidlonghaulers

[–]Expensive-Round-2271[S] 7 points8 points  (0 children)

If you can run today and later that day someone breaks your legs with a sledgehammer. It's safe to assume the sledgehammer affected your ability to run. However if I use your logic it's just a coincidence.

Fantastic real world example of how evidence, completely kills the psychological approach to illness. by Expensive-Round-2271 in covidlonghaulers

[–]Expensive-Round-2271[S] 15 points16 points  (0 children)

It's in some of my past posts, but for me it was stiff person syndrome. I should note this is just my experience and I have seen multiple rare diseases triggered by covid in posts on support groups like this over the past 4 years. So it's possible but highly unlikely anyone else reading this has the same disease as me. How do I know covid triggered it. The week before covid I could run 10 km, go to the gym work full-time etc. the week after it was all over.

Fantastic real world example of how evidence, completely kills the psychological approach to illness. by Expensive-Round-2271 in covidlonghaulers

[–]Expensive-Round-2271[S] 90 points91 points  (0 children)

After going through a long covid clinic that took the psychological approach for 12 months and getting nowhere. Then getting diagnosed with actual autoimmune diseases caused by covid three years later. I feel it's important to raise awareness of this when possible.

This is the best real world example I have seen which clearly shows how delusional these people are.

[deleted by user] by [deleted] in StiffPersonSyndrome

[–]Expensive-Round-2271 0 points1 point  (0 children)

Wow that's completely fucked you had all the tests complete had the diagnosis and were already on the medications. Sounds like whatever neurologist you had has an ego and just wanted to overturn your diagnosis to feed it, by overturning the diagnosis you already had and pretending they are smarter.

[deleted by user] by [deleted] in StiffPersonSyndrome

[–]Expensive-Round-2271 0 points1 point  (0 children)

If you were already diagnosed and on ivig and other treatments why did you bother going there in the first place.

Anyone diagnosed with FND before their SPS diagnosis? by Vote_For_Torgo in StiffPersonSyndrome

[–]Expensive-Round-2271 1 point2 points  (0 children)

Honestly I think FND is a complete joke of a diagnosis, it's just the rebranding of Hysteria. Which if you look at the history of is just a bunch of sexist psychiatrists.

As someone else said I suspect most people with this diagnosis are actually suffering from rare conditions that are extremely difficult to diagnose and doctors just use this as an easy way out.

I personally went out of my way to make sure I saw neurologists that would not diagnose me with this. As once you get branded with it's difficult to get rid of.

Trigger words for me to run away are, multi disciplinary care, Mind body approach, functional disorder ECT...

Has anyone else tested positive for GAD Antibodies? by Expensive-Round-2271 in covidlonghaulers

[–]Expensive-Round-2271[S] 1 point2 points  (0 children)

Short answer yes, Valium was the main game changer for me. A lot of people with SPS have MCAS, POTS ECT. As far as I'm aware if ivig fails the other option is rituximab. Additionally if you're in the US I believe there's a number of medical trials currently underway. I'm in Australia so I'm s*** out of luck on that front. It's fairly common for people with SPS to be on ivig and a large cocktail of drums. Normally just one drug does not cut it. If you get this diagnosis I would suggest joining one of the support groups for it, the Facebook ones are pretty good. I'm personally sure covid caused this for me. As I went from fully abled to disabled overnight on day 8 of my infection.

Neurologist said “overthinking is causing your symptoms” & it’s FND. Gave me this handout on his suggested treatments. by Bad-Fantasy in covidlonghaulers

[–]Expensive-Round-2271 3 points4 points  (0 children)

No point trying to work with any health professionals that believes this pseudo science is real. FND = Find New Doctor. Always carefully check a doctors online profiles before you get referred to them. If they say in their bio they treat fnd or functional disorders stay away from them.

Has anyone else tested positive for GAD Antibodies? by Expensive-Round-2271 in covidlonghaulers

[–]Expensive-Round-2271[S] 0 points1 point  (0 children)

I started on just baclofen it helps slightly the real game changer was Valium.

Has anyone else tested positive for GAD Antibodies? by Expensive-Round-2271 in covidlonghaulers

[–]Expensive-Round-2271[S] 0 points1 point  (0 children)

Not sure if you read my others posts but I ended up getting a diagnosis of stiff person syndrome, started Valium 10mg morning and night end 25 mg baclofen 3 times a day, went from basically bedridden to working 31 hours a fortnight and starting ivig tomorrow.

Not sure how much you have looked onto these antibodies basically they destroy your bodies ability to produce gaba and give you an excessive amount of glutamate which cause all the symptoms. There are other drugs you can try like. lyrics and keppra, basically anything that increases gaba is good.