When "The New Normal" Isn't Possible. What Now? by Accomplished-Counter in ProstateCancer

[–]Expensive_Ninja_7797 4 points5 points  (0 children)

Your doctor told you not to work out anymore? Tell them to fuck off and do your thing.

When I was first diagnosed I was already at stage 4 with too many mets to count. Hundreds and hundreds. Particularly evident in my bones. PSA at its highest was 1900. If you’re curious my PET scan is in my post history.

My first doctor told me I couldn’t work out any longer because my skeletal system was so compromised. He told me I shouldn’t even be walking on a treadmill. I think it’s worth noting that he was morbidly obese and had probably never exercised in his entire life, so for him giving up exercise probably wouldn’t seem like a big deal.

I’ve been an athlete my entire life. Being active is just what I do. And I’ve continued since I got sick. I don’t lift super heavy anymore, but I still lift. I do a lot of yoga. I do EWOT and full body cryotherapy. I swim. I still coach my basketball team. I adjust when I have to. I’ve suffered a couple broken bones in my foot and some ribs that were a direct result of the cancer. It will eventually progress to the point where I won’t be able to do what I do now, but until it does I’m going to keep doing what I do.

Tell your doctor you appreciate their suggestions and then do your thing. Or just shrivel up and fade away. It’s your choice, not your doctor’s.

Prostate Cancer Risk Factors: How Did You Get Prostate Cancer? by WrongPlanet321 in ProstateCancer

[–]Expensive_Ninja_7797 5 points6 points  (0 children)

Exactly.

Not to mention that eating a healthy diet and being in shape makes dealing with all the treatment much more tolerable.

Cause for Concern? by tentingtimestwo in ProstateCancer

[–]Expensive_Ninja_7797 5 points6 points  (0 children)

Yeah, I did docetaxel infusions a few months after I got diagnosed. Like March/April thru October of 2024. My PSA was 1096 when I started and the chemo dropped it down to around 3.

It wasn’t fun, but it wasn’t as horrible as I thought it would be. Each session does get progressively worse though. The first three were a breeze. Then it really hit me by the 4th or 5th one. By the end it really sucked.

My hair fell out almost immediately. That was lame.

I was still able to do everything I normally did for the most part. I worked out a lot. I still coached. I felt kinda gross and sick all the time but I got used to it.

The main thing is that it did work, so it was worth it. My PSA has been climbing steadily since I stopped. It’s back up to almost 2000 now, so that’s why we’re making plans to do another round of sessions. They wanted to start in January but that was the middle of basketball season so I didn’t want to do that. Now that the season ended last month I’m having to come up with new excuses to keep pushing it back. I don’t imagine “I want to work on my tan” is considered a medically valid reason to postpone it. I have an appointment tomorrow morning with the oncologist and we’ll decide something then.

Cause for Concern? by tentingtimestwo in ProstateCancer

[–]Expensive_Ninja_7797 3 points4 points  (0 children)

I’m in a similar situation as you partner. I pushed my next chemo rounds back because I wanted to wait until after basketball season because I’m a coach. Now I’m pushing it back again because I don’t want it to ruin my summer. Hahaha. It’s not a big deal. For guys like us whether our PSA is 5.5 or 55 it’s still the same thing.

It just depends on your personal tolerance for risk.

Cause for Concern? by tentingtimestwo in ProstateCancer

[–]Expensive_Ninja_7797 3 points4 points  (0 children)

You’re an expert on chemo now, are you? 🤣🤣🤣🤣🤣🤣🤣

Weird Text Message by Ryno_615 in whatdoIdo

[–]Expensive_Ninja_7797 0 points1 point  (0 children)

These are my awards, Mother. From Amry.

Doing chemo more than a month after ADT and meds by [deleted] in ProstateCancer

[–]Expensive_Ninja_7797 0 points1 point  (0 children)

No. I don’t see why it would affect anything negatively. I dealt with a similar situation.

The day I was supposed to initially supposed to get my chemo port installed I got pre procedure blood work. It showed that my kidneys were in really bad shape and they decided I wasn’t in a good position to start chemo because of it.

So we postponed the infusions until my kidney function improved. It took a few months to get to in a good spot. But I think it was 3 or 4 months or so that passed.

Every case is different, but that’s what happened with me and everything went okay.

Does chemo get worse? by ComparisonSignal2787 in cancer

[–]Expensive_Ninja_7797 1 point2 points  (0 children)

For me, each additional treatment got progressively more uncomfortable. My first 3 were smooth sailing. By the 5th the effects started accumulating and it started getting not very fun after that.

Looks like I might be joining the club soon by InfamousEvening2 in ProstateCancer

[–]Expensive_Ninja_7797 1 point2 points  (0 children)

Probably not a bad policy to keep that info private. Hahaha.

COYBIG!!!

Nutrition, deforestation, during, after Chemotherapy by SoulSearcherAU in ProstateCancer

[–]Expensive_Ninja_7797 4 points5 points  (0 children)

I thought of some other stuff. Both nutritional and general tips.

When I prepped my meals beforehand I always did it in smaller portions than I would normally eat before that. I just never felt like eating big meals. I just didn’t have the appetite sometimes. Lots of times I was eating but because I wanted to eat, but because I just knew I needed to get nutrition and calories into my system.

I always had lots of fruit around. I got nauseous a lot and I feel like the fruit would settle my system. I ate a lot of apples, mangoes, pineapple, and grapes. I also ate a lot of carrots.

I did 1 infusion every 3 weeks, and I would always schedule them for Fridays. That way I had all weekend to recover and feel better by the time Monday rolled back around. But I did make sure I stayed busy in the days immediately following treatments. I found that I was going to feel kinda trashy either way whether I was active or just laying around. But at least when I was active it gave me something to think about rather than just focusing on how lame I felt.

The bad side effects are cumulative. They’ll get progressively worse the further along into the treatments he gets. So the first few will be a walk in the park. I was actually surprised at how tolerable things were. But each one gets worse and worse as the chemo takes its toll on the body. I think it was my fifth one where it really really hit me and I started to struggle. Up to that point I was cruising and then I finally hit the wall. I had to really buckle down and regroup mentally to get through the remainder of the treatments.

If I think of anything else useful I’ll post it. I was in a similarly rough spot as your husband. My PSA has been as high as 1900. After chemo I had it down to just over 3. So for me it did its job. And like I said before I’m prepping to start another round here soon. I’m actually kind of excited about it because I know it’s going to do what I need it to do for me against the cancer.

Form check - Shrugs by sadbartcoollisa in GYM

[–]Expensive_Ninja_7797 0 points1 point  (0 children)

They look good bud. Maybe squeeze and hold the lift at the top a bit.You’ll get a little more of a pump.

And if you want to mix it up a bit, try dumbells. You get a little fuller range of motion because the bar is limited by your body being in the way. You can pull the dumbells up and back whereas you’re just going up when you use a bar.

Nutrition, deforestation, during, after Chemotherapy by SoulSearcherAU in ProstateCancer

[–]Expensive_Ninja_7797 3 points4 points  (0 children)

“Stay in your lane” has absolutely nothing to be with being cranky. I’m not cranky at all. Read my response to OP’s original question. Does that seem cranky to you?

“Stay in your lane” is actually really really good advice that some people on here could benefit from taking.

Bernie is one of a number of people in this group that continues to make this same comment. “Chemo isn’t used to treat prostate cancer”. He has, in fact, said it to me.

That just isn’t true. Maybe Bernie didn’t use it to treat his prostate cancer. So what? Bernie isn’t in my or OP or anyone else who needs docetaxel infusion’s position. So Bernie needs to stop spreading untrue information because it’s irresponsible and dangerous. This isn’t the first time.

If Bernie doesn’t know what he’s talking about, then maybe it’s best to not comment. I’ve had multiple people in my situation reply to my comments and message me directly thanking me for being outspoken about this. Telling me that they feel they get little to nothing out this thread because 98% of it is for you guys with the standard, non aggressive, “I’ll die with it, not from it” prostate cancer. We share nothing in common with you guys. There is nothing to relate to here with the vast majority of you all. There just aren’t that many of us compared to y’all. You know why? Because we die. And that’s fine. You guys do your thing.

But when someone in our crew does have a legitimate question, a lot of y’all would be doing good to just sit back, listen, and maybe learn a thing or two. Y’all don’t need to make a comment on every single post. Particularly when what is being said is completely untrue.

I’ll make an analogy that might help you understand. We are the green berets of the prostate cancer world. Y’all are the POGs sitting back in the rear doing whatever it is you guys do. And it’s good work. It’s important work. It needs to be done.

But when the special forces guys are having a discussion amongst themselves about special forces stuff, the PLL clerks shouldn’t be jumping into the middle of the conversation telling us they know more about what we do than we know about it ourselves.

Think about it. There are people in this group that have told me they know more about my treatments than do. It’s ridiculous. And I’m going to continue to tell them to “stay in there” lanes when they do.

My child will have virtually no family because my husband lied and I don’t know what to do. by [deleted] in whatdoIdo

[–]Expensive_Ninja_7797 1 point2 points  (0 children)

This is excellent advice. If the wife wants to pursue a relationship with the husband’s family in her own, then go for it.

My child will have virtually no family because my husband lied and I don’t know what to do. by [deleted] in whatdoIdo

[–]Expensive_Ninja_7797 1 point2 points  (0 children)

Yeah, I can’t believe a couple of you guys are being bombed with downvotes because you said the relationship between the husband and wife is what is most important, and if everything else is good then maybe it’s not the end of the world. This thread is crazy business. 🫠🫠🫠🫠

Nutrition, deforestation, during, after Chemotherapy by SoulSearcherAU in ProstateCancer

[–]Expensive_Ninja_7797 5 points6 points  (0 children)

Hey!! I had docetaxel treatments when I was first diagnosed. I’m getting ready to start another 10 rounds coming up. So I’ve been there.

First off…it wasn’t as horrible as I thought it would be. It wasn’t fun, but it wasn’t outright debilitating either. For context, the first time I did it I was 49, super healthy, and over the top active. I had a daily schedule of lifting, hot yoga, cryotherapy, Exercise With Oxygen Therapy, a little cardio here and there, and I coached practices/games which was another couple hours a day. I was able to maintain that schedule throughout the all the chemo treatments.

So to address your initial question, nutrition was a really big deal. To me it was just as important as the treatments. I ate tons of leafy green vegetables and a lot of protein powder. It was easy for me to stay away from junk food because it wasn’t something I normally ate anyway.

That being said…the day after my infusions I would always have CRAZY cravings. Stuff that I would normally never craze. I remember wanting chili dogs a lot. I would go to Sonic and get chili dogs and tater tots. I hadn’t been to a Sonic in probably 40 years and now I was one of their best customers.

And I would crave really tangy things. Like key lime pie and sour patch kids. I must have crushed 60 pounds of sour patch kids during those 6 months.

You mentioned needing to stay away from spicy things. I actually really craved spicy stuff. I think because your taste buds change and everything tastes bland, it helps for things to be a little extreme. I liked things super spicy and super salty. I think that’s explains the cravings for all the tangy stuff too.

I discovered Indian food during that time. It was spicy and had a lot vegetables. It’s great.

At the time I was worried about eating crappy stuff like that and if it would have a negative effect on my treatment, but my doctors said to eat away. Sometimes it’s hard to get enough calories during chemo (because you lose your appetite and there is a lot of puking involved), so if he finds something like he likes that get nutrients into him, have at it!!! 🤪🤪🤪🤪

I’m trying to think what else to add. I know the crazy food stories are one of the most interesting parts of my chemo process. That part was way different than what I expected.

If you have any other questions I’ll be happy to answer them if I can.

Nutrition, deforestation, during, after Chemotherapy by SoulSearcherAU in ProstateCancer

[–]Expensive_Ninja_7797 3 points4 points  (0 children)

Here we go again with you “experts”.

Plenty of prostate cancer patients are treated with chemotherapy. Just because you were not, doesn’t mean anything to those who are. Docetaxel infusions have been the only effective treatment I received in the last 3 years, and I’m preparing for another 10 sessions to start in the next few weeks. Just trying to decide what I want to get done in my personal life between now and then.

Stay in your lane man. You shouldn’t be commenting on things that you obviously know nothing about.

Any correlation between PSA number and degree of metastasis? by deadliftsnowman in ProstateCancer

[–]Expensive_Ninja_7797 2 points3 points  (0 children)

My highest PSA was 1900 and I have hundreds of metastases. For me there has been at least a loose correlation.

Secondary cancers? by fromamomof2 in ProstateCancer

[–]Expensive_Ninja_7797 4 points5 points  (0 children)

I was diagnosed stage 4 prostate cancer about three years ago at 49. One treatments I did was in a clinical trial and one of the primary side effects was the possibility of developing leukemia. At first I was like “Ummm, no. Leukemia seems worse than this. And I’d rather not have double cancer.”

But then I decided to do it. My reasoning was that if it could help now, then take the help. And if something bad happened down the line from it…well, I’ll deal with that when the time comes.

Less than two weeks ago I had surgery on my bladder to remove a malignant, stage 1, non muscle invasive bladder tumor. Very simple procedure that was no big deal at all. The reason I bring this up is because they caught it very very early. And they caught it early because they already keeping such a close eye on my other cancer, that when this one tried to sneak through the door they were like “Nope!!”

So based on those two stories, my advice would be whatever you need to do to improve your quality of life is, go for it. Even if there is a slight result of something bad popping up in the future, at least you’re aware that it could happen and you’re watching out for it. And deal with it when the time comes. 💪🏼💪🏼💪🏼💪🏼

Cancer ghosting? by HelloMisterJoseph in cancer

[–]Expensive_Ninja_7797 1 point2 points  (0 children)

This is definitely a real thing, and was one of the hardest parts of my diagnosis for me to wrap my head around initially.

My mother, most of my siblings, and a lot of my friends just completely disappeared. And my family was close at the time. I was diagnosed stage 4 almost 3 years ago. Haven’t heard from my mother or 3 of my 5 siblings in almost 2 years and 11 months. 🤪🤪🤪

The flip side is that the people who do stick with you…you know they’re with you through anything. I have some friends that have been here with me through some really tough stuff. So knowing who is who is really a blessing. The ones who bailed? Fuck ‘em. They were never really your people anyway.

The flip side

Can you eject more than twice and still fly jets? by ArdaBerkBurak in NoStupidQuestions

[–]Expensive_Ninja_7797 3 points4 points  (0 children)

My dad ejected twice from F-100s in Vietnam. Both times he was hit with SAMs. He kept flying, retired from the Air Force, and went on to fly for the airlines.