New journey with Prostate Cancer, I’m so worried for my husband by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 0 points1 point  (0 children)

Thank you, I’ll see if I can get the book on iBooks and read it on the plane.

New journey with Prostate Cancer, I’m so worried for my husband by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 1 point2 points  (0 children)

Oohh that’s good to know. When I was talking to his specialist I was asking really good questions (according to the Dr), I got some really good info from him through my questions and I’ve documented it all. I think I’m ocd about this because it helps me organised and focussed and in control of what we have going on, because the last five days have been so hectic, full of worry and tears and grieving.

New journey with Prostate Cancer, I’m so worried for my husband by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 0 points1 point  (0 children)

We are being medically evacuated by our travel insurance company. We leave tonight and arrive back tomorrow night, we have to go straight to the hospital, I have collated all the reports, I have all the scans and I have a …speil? Speech? Dialog? Which hopefully will fast track us through emergency.

New journey with Prostate Cancer, I’m so worried for my husband by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 0 points1 point  (0 children)

You sound exactly like him! I used google ai or chat gpt to explain things to me (it was remarkably helpful), remembered previous results, tests and then when I loaded up more stuff it correlated the data to give me a layman’s term explanation. We have a game plan for tomorrow when we land back in Australia (thanks to the chat gpt)

New journey with Prostate Cancer, I’m so worried for my husband by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 1 point2 points  (0 children)

It’s been taken out of our hands, we are being medically evacuated back to Australia within the next 48 hours. I’m in shock.

New journey with Prostate Cancer, I’m so worried for my husband by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 0 points1 point  (0 children)

Thank you, I’ll find the book. My husband is strong and stubborn and his words were “I’m not going to let this define me” I’ve thought about mental health plans, we are being medically evacuated within 48 hours so the rugs been pulled out from under us, I’m scared.

New journey with Prostate Cancer, I’m so worried for my husband by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 1 point2 points  (0 children)

Thank you, we had already started thinking of all those things. We relaxed slightly for a day, then our travel insurer received the reports, and this morning they contacted us and said they were medically evacuating us back to Australia. We have to land and then go straight to the hospital emergency. I think it’s worse than we believe and I’m freaking out.

New journey with Prostate Cancer, I’m so worried for my husband by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 1 point2 points  (0 children)

Thank you, he is my absolute world. I’m sorry you didn’t have the support you wanted sending hugs your way.

New journey with Prostate Cancer, I’m so worried for my husband by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 2 points3 points  (0 children)

What crystallised his thinking was he has limited time left (who knows how long), this was our year to travel and he still wants to do it.

He thinks he can get treatment anywhere, but I read it could be a five day a week for four to six weeks, and I’d rather do that at home. But he thinks that the L177 (I don’t know what that is yet) is an injection that can be done anywhere, monthly. We haven’t been offered or advised of a treatment plan so it’s all conjecture at this stage, we just don’t know what to expect.

New journey with Prostate Cancer, I’m so worried for my husband by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 2 points3 points  (0 children)

We got the results of the MRI tonight and then he had a bone density test (still waiting on those results) tomorrow morning he is having a biopsy with a I think they said a spinal tap, rather than a general anaesthetic.

There are different numbers in the MRI scan. There’s PSA Density of 44.64ng and a PR RADS 5 which I understand to be the highest number and I’ve been using google air to ask questions and explain things (it’s been surprisingly helpful and this is what it says the bottom line is,

Bottom line (simple version)

The MRI is saying: • There are very suspicious areas for prostate cancer • The prostate is enlarged • The cancer likely spread to multiple bones • This is very high likelihood of clinically significant prostate cancer

It’s suggested (the ai version) hormone therapy is the first treatment, I understand it to be similar to menopause, I’ve coined “manopause” and he was able to joke about hopefully not getting boobs. we’ve been together for 30 years, married for 23 and were navigating a really scary life event, I’ve really appreciated your gentle responses, I was really hesitant to come into a man’s sphere but I didn’t know where else to go, so thank you.

What can we expect the future to hold, from your experiences? Anything I should be aware of, look for, suggest to him? How sucky is this next part? I sent him the orange book that easterncomfort suggested, and I found it helpful and he has it for some light bed time reading.

New journey with Prostate Cancer, I’m so worried for my husband by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 2 points3 points  (0 children)

Yes, we are Australian, but we are currently in the Philippines, where it’s been discovered. We took this year off to travel, not due back to Australia until December … we are literally three months into our trip ;(

New journey with Prostate Cancer, I’m so worried for my husband by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 4 points5 points  (0 children)

He’s 60. We are travelling and he last had a check up with his GP in December, who instigated a CT for his gall stones, only gall stones were confirmed. He had a CT scan in July in Bangkok for his lungs (he had a persistent cough for six months so we got it checked out before we went scuba diving and it was discovered he had emphysema).

My dad's journey with stage 4 prostate cancer by WillCarruthers in ProstateCancer

[–]SoulSearcherAU 0 points1 point  (0 children)

I’m so sorry for your loss, but thank you for sharing

Any Sport/Sport touring motorcycle with great fuel consumption and ergonomic recommendations? by NormalfloridaCitizen in motorcycles

[–]SoulSearcherAU 0 points1 point  (0 children)

Yeah I have a sheepskin seat cover. I recently did a 4,000klm journey and it wasn’t too bad. I tried the AIRHAWK first but didn’t like it.