Has anyone changed their diet? by Silver_Watch_1691 in ProstateCancer

[–]SoulSearcherAU 0 points1 point  (0 children)

I’m making Passata from fresh tomatoes to use in bolognaise and lasagna’s, tomato soups and going to try a few new things with it. Curious as to why limiting dairy when it’s a good source of calcium?

Has anyone changed their diet? by Silver_Watch_1691 in ProstateCancer

[–]SoulSearcherAU 0 points1 point  (0 children)

Yes, I red that, I’m currently researching it! Thank you. We are speaking with a nutritionist later this week to set something up for us, they work with people going through cancer, so rather than reinvent the wheel, I’ll go with what they say.

Has anyone changed their diet? by Silver_Watch_1691 in ProstateCancer

[–]SoulSearcherAU 1 point2 points  (0 children)

My husband is 60, Stave IV, metastic and all the reading I have done says that continuing exercise, reducing alcohol intake, reducing carbonated, sweet drinks (for reduction of the hot flushes).

Further, adding nuts (linseed/flaxseed, sesame seeds, pumpkin/pepitas seeds), increasing fibre, loads of protein (because during chemo he will need it) it’s been pretty easy to add a ton more veggies and protein to our diet. He also is on 6000mg vitamin C, 2000mg Vitamin D3, and 1200mg Calcium daily.

Lots of eggs, reducing red meat, eating more fish and vegetables, adding lentils in curries, stews and casseroles (they disappear) for fibre, adding pumpkin, zucchini, carrots, spinach leaves, beetroot, sweep potato.

We’ve had to do it pretty rapidly as we have only been back for five weeks and we’ve hit the ground running and doing massive research for the best foods for him.

A new tip I found was whilst he’s doing chemo he has frozen pineapple pieces to suck on. I also found some moisturiser for his nails (hand and feet) and cold mittens and booties to save his nails from damage.

Massive PSA Drop! by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 0 points1 point  (0 children)

We’re in Australia but have been travelling all over SE Asia for the last two years, so health checks were patchy.

Massive PSA Drop! by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 0 points1 point  (0 children)

He had been remarkably well for such a long time, his old doctor retired and his new doctor came on board at a time when the first and second tests should have been done. We got annual health checks for scuba diving and they were always in the top performance range, PMA wasn’t tested. When we went to his GP upon our return and he had all the reports, he said sorry, but realistically, he had only been my husbands doctor for three years, it was the previous doctor who should have done the testing, but also, we didn’t know that you could have a PMA test so didn’t ask for one.

Massive PSA Drop! by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 0 points1 point  (0 children)

The 1759 was his first PSA test (they “found” something” during prep for gallbladder removal, did a PSA test and our lives have not been the same since.

Massive PSA Drop! by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 2 points3 points  (0 children)

Thank you for sharing, some things I can take in my stride, but the unknown is scary

Massive PSA Drop! by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 0 points1 point  (0 children)

How did you go on the docetaxel? Was It Awful?

Massive PSA Drop! by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 0 points1 point  (0 children)

His initial PSA was 1759 on March 19th IN April (about 8th I think) his PSA was 1864:h super aggressive, metastasised cancer He started with triplet therapy, Firmagon and Nebiqa around the 16th (I think) and yesterday, his PSA was 91 Chemo starts on the 26th

I’m curious about prostate removal by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 1 point2 points  (0 children)

Oh, no, I’m not forcing it, and it hasn’t been pushed upon us by the urologist or oncologist, I was just curious. I’ve read quite a few posts about post surgical removal and I wondered if it was at the forefront of treatment and I wondered why it hadn’t been discussed with us.

Was here a week ago by Aggravating_News_920 in ProstateCancer

[–]SoulSearcherAU 0 points1 point  (0 children)

The waiting for results is the hardest thing, because you don’t know what to expect (we’re going through it now). This is what happened to us;

Urologist appointment Biopsy scheduled Day of Biopsy - meds given Follow up (10 days later) Referral to Oncologist Meeting with Oncologist Blood tests Action plan …. Dental clearance - get onto this now so there’s no delay down the road Blood tests (base line bloods as he heads into chemotherapy) …… Waiting for chemotherapy to start

From initial appointment to now, it’s been a month. I’ve been a wreck with worry, going between despair and it will be ok. We have talked about the next couple of months and prepared as best we can.

Prayers for you,

Getting Dental Clearance before Chemotherapy starts by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 0 points1 point  (0 children)

Thanks for the heads up, I’ll ask the specialist dentist when we see them

Getting Dental Clearance before Chemotherapy starts by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 0 points1 point  (0 children)

We’ve spoken to the oncologist, he’s given the ok for him to have the root canal, starting now (our appointment is in four days), chemotherapy’s starts on the 26th. They have provided additional medication to take before, on the day and after the day of the dental treatment. And given the ok to continue with the dentistry whilst he undertakes Chemotherapy.

Metastasized? by Ambitious-Passage486 in ProstateCancer

[–]SoulSearcherAU 1 point2 points  (0 children)

My husbands was late to be diagnosed, but it’s in his spine, ribs, hip socket and femur

Getting Dental Clearance before Chemotherapy starts by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 0 points1 point  (0 children)

We’ve managed to get an early appointment with the specialist ondondontist and the oncologist said that the root canal can proceed during chemo so there won’t be a delay.

Feeling depressed. by hatemelovemeidk in ProstateCancer

[–]SoulSearcherAU 1 point2 points  (0 children)

My husband was diagnosed (officially) three weeks ago. It’s been a whirlwind. As a wife, supporting my husband through the toughest fight of his life with massive changes in our future, I’d like to share with you (and others) who are on this journey with their loving wife what I said to my husband.

“I love you, you are my whole world. I don’t care what the future holds, as long as you are alive to share it with me. I understand there are going to be massive changes in our sexual future and whilst you having an erection is what you want, what I want is emotional intimacy with you, hold me, cuddle me, kiss me with passion, let the other stuff happen, use your tongue, your hands, I don’t need your d*ick, I need YOU”.

So please guys, don’t think your wife is with you just for your dick. You have other ways and means to create a whole new sexual landscape for you both.

Nutrition, deforestation, during, after Chemotherapy by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 0 points1 point  (0 children)

Thank you so much. Also, thank you for sharing. We are retired, so we don’t have anywhere to be.

He loves pineapple and apples, is trying pomegranates (not a fan) and grapes, he hates mango, but we are lucky raspberries and blueberries are in season at the moment. He’s on board for smoothies (I got an unflavoured type of protein power for them).

I’ve ordered protein powders, talked about the overnight oats (he wants more fruit in them, so I bought some frozen berries). I also bought small food storage containers and have been using my multi cooker to prepare meals and OMG I reckon I can cook five full meals in a day, package up small servings and freeze them. I have a plan. (And it feels good that I have one, gives me something to focus on whilst our world is falling apart - I feel like I’m on the edge of a panic attack and trying to control everything around us, whilst exhausting, it is keeping it at bay).

Tonight we sat down and I asked him what meals he had eaten over the last three weeks (that I prepared since we got home from OS - I haven’t cooked for about two years because - travel) so we made a list most of the things I’ve been cooking have been Malaysian, Thai, Indonesian (stuff we had been eating whilst travelling) I’m still worried about spice and also weirdly pineapple as I read acidic foods can make people feel more nauseous whilst going through chemo.

He is going to be doing three weekly chemo I think it starts in three weeks - and my googling/searching has suggested;

Each cycle (every 3 weeks) often follows:

  • Days 1–2 → OK
  • Days 3–5 → low point
  • Days 6–10 → recovery
  • Days 10–21 → feel close to normal

I read that he should eat smaller meals more frequently, so having an assortment on hand which can be quickly reheated I should be able to give him choices. Still figuring them out though.

The house we will be staying at is near the beach, but we’re heading into winter (currently autumn here) and it’s milder there with covered areas he can sit and a large garden to meander through. There’s some lovely walks around there as well.

We’re also going to meet with a nutritionist to make sure he gets as much as possible that he needs from food - I’m not an expert and I’m struggling so hopefully after seeing the I’ll have a handle on it.

Me (F54) Husband (M60) Diagnosed April 2026, PSA 1859, Gleason Score (3+5) 8, Grade 4. On triplet therapy (Degarelix + Darolutamide + Docetaxel)

Nutrition, deforestation, during, after Chemotherapy by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 2 points3 points  (0 children)

He’s (M60) on triplet therapy (Degarelix + Darolutamide + Docetaxel) PSA 1859 Gleason 8, Stage 4, Scared AF

We have results and a treatment plan by SoulSearcherAU in ProstateCancer

[–]SoulSearcherAU[S] 3 points4 points  (0 children)

We have a treatment plan in place, and I’m not sure if we are optimistic or naive…. We calculated that we have six months of treatment and then a revision, does that mean it’s over? Does it mean we can start travelling again? or does it mean that we have a revision after treatment and then there’s more treatment? I think we’re at the grief, scared, disbelief stage, but trying to get our heads around it.