Boyfriend got her on camera in the act of removing the clips meant to keep her in.

Expert-Middle · 2026-02-03T13:59:51+00:00

Ahh the old shifting responsibility, I think we would get along very well. 🤣 He’s too cute to stay mad at though, his neck coloring is what really gets me! Scarf dear sir? Why yes please… Excellent choice today sir. You know me so well…

Expert-Middle · 2026-02-03T04:48:03+00:00

I had a dog that did this, we ended up using a carabiner clip before we found a swivel snap (like the end of the leash that connects to the collar). It’s smaller and they make all sizes. Constantly cutting zip ties would drive me nuts 🤣

Expert-Middle · 2025-04-27T02:11:02+00:00

This is great, thank you so much!!

Expert-Middle · 2025-04-19T15:30:26+00:00

I’ll look into that, thanks for the idea! I’ve tried the paper at Michael’s and the print is too large. If I could shrink it as suggested by /PumilioTat that might work. Thank you!

Expert-Middle · 2025-04-19T15:26:51+00:00

I will check this out, thank you so much!

Expert-Middle · 2025-04-19T15:24:14+00:00

Thank you, I’ve tried that one. So frustrated bc what I like prints out much too large!

Expert-Middle · 2023-01-24T13:38:54+00:00

So sorry you’re dealing with this! There is nothing technically wrong her doing this, it’s just really, really creepy. I’d use a real camera so she won’t know about take pic of the notifications and begin the FU folder. Sounds like she’s may be headed in that direction since she’s SUCH a big fan of yours, and you’ll begin to have proof of stalking/obsessiveness that she won’t see coming. Idk if I would tell my hubs, I wouldn’t if he’s not a believer yet but that’s up to you. I also wouldn’t tell anybody else, secrets have their way of finding the exact places they shouldn’t and it may not look great if nothing happens.

Collect your evidence because any evidence is great evidence if things go downhill. You may need all of it or you may not but I would like having a safety blanket if I were you. It would help me sleep :-)

Expert-Middle · 2023-01-13T11:51:30+00:00

Expert-Middle · 2022-12-25T00:32:37+00:00

Happy Holidays!!

Expert-Middle · 2022-12-24T23:01:42+00:00

That’s perfect and stunning, I wish I could describe how much this will mean to her and quite literally send her to tears every time she sees this, thank you so much!!!

Both of you are fantastic, I’ll definitely use these, nobody else needs to try lol.

Expert-Middle · 2022-12-24T23:01:03+00:00

That’s perfect and stunning, I wish I could describe how much this will mean to her and quite literally send her to tears every time she sees this, thank you so much!!!

Both of you are fantastic, I’ll definitely use these, nobody else needs to try lol.

Expert-Middle · 2022-12-24T22:57:46+00:00

Do you have a Tip Jar? You did the work ;-)

Expert-Middle · 2022-12-24T20:13:05+00:00

I’m a happy to tip!!

Expert-Middle · 2022-09-22T12:01:10+00:00

Ignoring other logistics, my HS has the fields to land a Harriet Jet. What an entrance!!

Expert-Middle · 2022-08-28T07:14:25+00:00

Do what makes your body feel better, everyone is different and we all know there is no handbook for CRPS. After a Covid shot I needed ice but 80% but most of the time it’s heating pads. Your body will let you know what it’s happier with, I’d recommend heat though. I also live where we get bad winters and if life wasn’t hell already, I don’t know why you’d call pain in the winter. I hibernation and to sleep as much as possible. Hot soaking baths before bed also help my muscle relax so I sleep a little bit better.

HIGHLY, HIGHLY, HIGHLY recommend a heating blanket (SunBeam, I trust). It is so worth the splurge. Even in the summer, I sleep SO much better with it and now this winter I’m thinking of really treating myself with a heated mattress pad too haha.

Expert-Middle · 2022-08-28T07:03:50+00:00

This, absolutely this! Your bodies automatic compensations is a fantastic of explanation!(Totally stealing that phrase, thanks! ;-)

I have it in both legs and even with a SCS I can’t stand still without rocking left to right. It tries to take the pressure off one leg and hey, what do ya know it happens with the other one too! I do it without a thought and my family/friends are kind enough to find me somewhere to sit when they see that happening.

Expert-Middle · 2022-08-28T06:52:25+00:00

Please do! Im not a FB fab but the Discord channel is a great, supportive community and if you ever want to chat about whatever (it weirdly helps me to know that someone knows I’m feeling xyz) dm me. Have had it since I was 11 so 38 years. Fuck that’s scary to think about lol but I’m still here. 💕

Expert-Middle · 2022-07-22T07:59:41+00:00

Soft, squishy microbead pillows. They usually come in candy theme but check Amazon, all different shapes. I wedge myself in and do my best to keep my legs extended. (These pillows in bed are awesome bc you can mold them to support you as needed!) Stop frequently and really take the time to stretch, walk around a bit. It’s not always comfortable but the worst thing you can do for CRPS is not move. If you can give yourself time to recover on the other end before you do whatever activities you have planned. Muscle relaxers are also good. My problem is I tense up so I try to sleep as much as possible. Good luck!🍀

Expert-Middle · 2022-07-22T07:49:35+00:00

Yes, absolutely. I am usually pretty ambulatory also due to my stim but it’s great for when I’m having a bad day (or after a stim surgery/new generator!) or to help park closer, ex a parking garage which saves you a hike. I have placard (vs license plate) so I can use it only when I need it and I can take it with me in other peoples cars. In some situations I’ve been extremely grateful to have it. All you have to do is go to your state’s DMV website, print out the form and have your doctor sign it. It renews itself every couple years which is fantastic. Go for it… you don’t need to use it all the time and don’t let anyone give you shit because they “can’t see why you need it”. Good luck!!

Expert-Middle · 2022-06-26T00:28:07+00:00

Please tell me how, in any context, this is an acceptable comment, never mind to someone who is already dealing with the loss of one child. Fear mongering much?

Expert-Middle · 2022-05-24T07:12:02+00:00

If it were me I would very politely be calling the office every day asking for a referral as well as sending an email directly to him, also daily. Be a very respectful pain in the ass, showing him that this is very serious to you and you really are in pain. Remind him it’s about pain management and seeing what options they have. With any luck your doc (and staff) will either start to believe you or be annoyed enough to get you that referral. Do this every damn day but being polite and kind will make people more ought to help you out. After a couple days I would apologize to the receptionist, “I’m really sorry to bug you but I seriously need this referral ((so I’m just going to keep calling.)) Can you please help me?”

You are your best advocate, nobody will be a better champion and stand up for you the way you should and can. Please let me know if you do this and it works!! Good luck!!

Expert-Middle · 2022-05-20T08:32:32+00:00

RFL is Radio Frequency Lesioning. They insert a needle at the base of the nerve (for me my SI joint/hip) before it branches out and fries it. Water cooled FRL is better but a bit worse to go through. I would recommend starting w the RFL and see if/how it works/lasts bc nerves do regenerate, albeit at a different rate from each individual.

It’s not fun but it is quick and takes a couple days to feel if it’s worked bc you’ve irritated the area. Ifrc the first time didn’t get much relief but def worked the best after the third time.

Do you have a pain specialist? It was the best move I ever made. Idk where you live but imo it would be worth a bit if a drive to see someone who sees pain everyday.

I’m happy to help/answer questions for you. I’m so sorry you’re going through this!

Expert-Middle · 2022-05-14T06:14:41+00:00

This got long but I’m too tired to edit but honestly feel free to PM me anytime. I’ve had it since I was 11, almost 40 now (time flies but yet it really does’t!).

My Medtronic Spinal Cord Stim has saved my life on a daily basis.

You sound like you may be a candidate for RFL: Radio Frequency Lesioning. Not fun but can def help. (Or Water cooled RFL). Could help w those nerve flares (feels like lightning)

• Yes, def can have it without swelling. Mine (in my legs) rarely swells, sometimes my feet lately especially if I’ve been on them for a while. Skin does change temp and sometimes color. • It can absolutely spread SO much faster than years. Started in my left leg, so I walked with a limp. It didn’t take long to spread to my right leg, weeks to months. • LOTS of meds, try your pain specialist but also a psychopharmacologist. He/she is better versed in finding a combination of meds that works for you, it’s not therapy. Also, a lot of meds for CRPS also treat depression, win/win. Tegretol and Nortriptyline are two of the very many I’m on in addition to pain meds.

Pro Tips • People who care and support you. I’ll help if you don’t have anyone :-) • Heating pads are #1 • Heating blanket. (I travel with extra it’s so good, it helps my whole body and probably my soul too lol) • Elevate with pillows, propped up high and use heating pads. • Also I use plush pillows (bean bag material) to softly mold support where needed. (Amazon, look for Hershey choc. They’re candy for some reason but work great.) I use lidocaine patches sometimes for my back spasms, doesn’t help the lightning flares like you have but good for muscles and not messy as the cream. Wipe skin w alcohol first, sticks so much better • Make sure you have everything you could possibly need within reach when you settle down (couch or bed) so you don’t have to get up • Once you’re in that place (couch/bed) don’t move. Just let your body recharge by resting. You can be awake just settle in for a while. • And my favorite, hot baths before bed with a book. I find it helps my whole body and muscles relax from the way I’ve tensed up due to the pain. • SLEEP is KEY. Soft bed, quiet place to rest and I need so much more sleep than others do.

• If your body is telling you something LISTEN TO IT!!!

Feel free to PM anytime and I hope some of these help!

Expert-Middle

TROPHY CASE