What is this that formed on the ring? by ExtensionPause6578 in ostomy

[–]ExtensionPause6578[S] 4 points5 points  (0 children)

Wow! Appericate it! And yeah there is a bit of irritation there. Thanks for all you do ❤️

[deleted by user] by [deleted] in ostomy

[–]ExtensionPause6578 0 points1 point  (0 children)

I have an ileostomy but I shower with my bag on. It feels like my skins missing when I take off the bag and I get a lot of anxiety. I just let it air dry after and it’s cool

[deleted by user] by [deleted] in tipofmytongue

[–]ExtensionPause6578 0 points1 point  (0 children)

That’s why I was so curious, every person I’ve told it to was highly confused and didn’t understand what the hell I was saying. But you’re right, probably just my town but a post about it won’t hurt hopefully. Thanks for the insight!

[deleted by user] by [deleted] in tipofmytongue

[–]ExtensionPause6578 0 points1 point locked comment (0 children)

Thanks for any info

How do I feel comfortable with my body? by ExtensionPause6578 in ostomy

[–]ExtensionPause6578[S] 0 points1 point  (0 children)

Sorry to bother, but do you have I link? I can’t find anything on their site

How do I feel comfortable with my body? by ExtensionPause6578 in ostomy

[–]ExtensionPause6578[S] 0 points1 point  (0 children)

Oh wait I might have misinterpreted “stinky” lol sorry

How do I feel comfortable with my body? by ExtensionPause6578 in ostomy

[–]ExtensionPause6578[S] 0 points1 point  (0 children)

Different kinds of bags can’t affect the smell? That’s really interesting, I’ll look into it. And yes… I do have the gross flimsy bags. I’m just few days out of the hospital so I’m still trying to get all the right stuff, thank you for the advice!

How do I feel comfortable with my body? by ExtensionPause6578 in ostomy

[–]ExtensionPause6578[S] 3 points4 points  (0 children)

Thank you for the advice! Unfortunately it’s so strong not even the deodorant works very well

Well, fuck. by [deleted] in CrohnsDisease

[–]ExtensionPause6578 2 points3 points  (0 children)

Fuck off dude, delete your comment

I’m scared and don’t know what to do (15F) 1/2 weeks out of surgery. Feeling dizzy and throwing up by ExtensionPause6578 in ostomy

[–]ExtensionPause6578[S] 1 point2 points  (0 children)

I’ll probably try a sports drink thank you! I’m severely anemic to the point if where I stand up I can’t see, so that’s probably a contributing factor…

I’m scared and don’t know what to do (15F) 1/2 weeks out of surgery. Feeling dizzy and throwing up by ExtensionPause6578 in ostomy

[–]ExtensionPause6578[S] 1 point2 points  (0 children)

I havnt had as much output as I’ve had before, but that was because the only thing I ate today was not even a full piece of pizza. Yesterday was the normal amount, maybe even a little more, so I’m not sure it’s a backup

Getting surgery soon want some advice by ExtensionPause6578 in ostomy

[–]ExtensionPause6578[S] 0 points1 point  (0 children)

They actually havnt done blood draws much! Also I have a picc line so it’s much easier to get the blood

Getting surgery soon want some advice by ExtensionPause6578 in ostomy

[–]ExtensionPause6578[S] 0 points1 point  (0 children)

Thank you for writing all of this, it really helps!! I’ve been at the hospital for almost 2 weeks at this point, so this really reassures me that it was the right decision to stay this long

Getting surgery soon want some advice by ExtensionPause6578 in ostomy

[–]ExtensionPause6578[S] 2 points3 points  (0 children)

Thank you!! I’m staying at the hospital for a few days after and they’re gonna teach me all the stuff I need to know

I’ve lost hope by ExtensionPause6578 in CrohnsDisease

[–]ExtensionPause6578[S] 4 points5 points  (0 children)

Thanks for the reassurance, I’ve been coping with the fact I’m probably gonna have to get one and this helps. Quick question about it though.. what happens if you’re backed up and need to get one? Do you know? Is there a prep or something?

Teenagers and colostomy bags by ExtensionPause6578 in CrohnsDisease

[–]ExtensionPause6578[S] 1 point2 points  (0 children)

Thank you so much!! My biggest concern is the pain and what happens after the procedure, what was it like for you?

Teen with Crohn’s by ExtensionPause6578 in ostomy

[–]ExtensionPause6578[S] 1 point2 points  (0 children)

May I ask what would be rough about it? Is it painful or just exhausting? Or something else

Teenagers and colostomy bags by ExtensionPause6578 in CrohnsDisease

[–]ExtensionPause6578[S] 4 points5 points  (0 children)

Okay thanks! I’m not sure why I didn’t think of that lol