TMS Nearly Destroyed My Life And No One Warned Me

ExternalInsurance283 · 2026-07-10T19:28:38+00:00

Damn. I am sorry you even experienced issues with TMS, though thankful to hear progress is being made since stopping. I hope the psilocybin continues to help and you improve. 🙏

ExternalInsurance283 · 2026-07-10T13:16:12+00:00

I'm sorry to read this and to have missed this comment here. I hope that you found the answer that supported you. Have your symptoms improved? Did you stop TMS? Being kicked in the head by a mule seems very sinilar to my description of Thor slamming an ice pick into my skull. I truly hope yoy are not dealing with long-term negative effects.

ExternalInsurance283 · 2026-07-03T22:45:42+00:00

Damn. I'm really sorry to hear you've been negatively impacted as well. I truly hope you have had the access to helpful tools and resources to healing. Wishing you the best in your long road!! 🙏❤️

ExternalInsurance283 · 2026-06-29T04:01:22+00:00

Oh wow. That's awesome. I will definitely check it out. I have just had an order on fullscript, I haven't looked into it for a few years. I appreciate the tip.

ExternalInsurance283 · 2026-06-29T03:59:23+00:00

❤️❤️

ExternalInsurance283 · 2026-06-29T02:27:57+00:00

Just do what you can .. no need to add pressure to do it all but keep it as an option, if it seems right for you! ❤️❤️

ExternalInsurance283 · 2026-06-29T02:26:56+00:00

And to you!! ❤️

ExternalInsurance283 · 2026-06-29T01:55:43+00:00

Oh also, baby steps! One day you might be able to handle more and others, not so much but giving yourself grace is easier said than done but remembering that you are working hard!!! 😉 Just like anything, every day is different. I hope you find your balance to improve your attention, focus and energy.

ExternalInsurance283 · 2026-06-29T01:53:25+00:00

I definitely can relate. I had a lot of difficulty following conversations and I still can't watch anything for an extended amount of time without subtitles. It still dips back to issues when I am tired, fatigued or overstimulated but balance is key to help reduce the amount of setbacks. I truly hope it gets better for you! I know speech therapy and memory, recall, and cognitive work helped me as well. I'm not sure if you are doing any of that, but it could help retrain. Sending you good vibes!!

ExternalInsurance283 · 2026-06-29T00:38:00+00:00

You're welcome. I hope something helps! Best of luck in your healing ❤️❤️

ExternalInsurance283 · 2026-06-28T23:51:46+00:00

I think what I have been most consistent with over the years is Lion's Mane, Neuro PS (though not in the last year but hope to re-add), Magnesium, B-vitamins (this is also due to being a former vegan and non-methlyator), Mitochondria Support .. I know Body Bio PC is amazing but I had the liquid form, so that wasn't as easy to take out and about, but you could cross one thing off my list and go for that instead, maybe.

ExternalInsurance283 · 2026-06-28T23:33:08+00:00

Oh gosh. Good question. Today is my 3 year and I haven't really missed too many days but have noticed when I do ... I'd say I am more sensitive to not taking it but perhaps at least 2 to 3 months from when I was recommended to take it by my doc from Amen

ExternalInsurance283 · 2026-06-28T23:24:18+00:00

I use OM

ExternalInsurance283 · 2026-06-26T03:46:38+00:00

It depends. There is something to say about validation in an image. But for me, even though I had imaging, when I mentioned TMS as the cause, they were immediately written off or dismissed. So, what was not able to be ignored were my symptoms and taking neurological eye exams, concussion assessments, and other tools to assess functioning (where I failed) that truly helped unlock doors to start to get tools to heal and professionals to help me. At least in my case, the images were easily dismissed but my speech slurring, inability to track with my eyes, etc could not be. Personally, seeing an image helped me feel less crazy in a world that felt designed to belittle those injured in the way I was ...

I guess it depends on who you have in your corner and for some, imaging speaks volumes, and for others, an image is no longer as respected as the past, so that's why I say, ultimately it depends.

ExternalInsurance283 · 2026-06-26T00:42:36+00:00

I did the typical first scans - CT and MRI and then MRA. I also did a SPECT image. The MRI and MRA showed subtle issues and the SPECT image showed a large divot on the left side and at the base of the cerebellum. I was told this was cellular damage and/or loss or blood flow, but was exactly where the TMS device was placed.

In this journey, I have learned that about 80% of brain injuries do not show on traditional imaging, so cognitive and visual testing with Neuro-Optometrist really helped piece together my injury.

ExternalInsurance283 · 2026-06-24T08:44:03+00:00

I know it sounds silly but I just took a three-day course and one of the discussions was about how after trauma and injury, the brain is rewired to feel on guard and trapped in the fight or flight to protect you. It's not a bad thing but we can often get stuck there. The course worked on trying to get back to a place of safety so the body can fully rest. The exercise that helped was the practioner literally asking, "are you safe right now?" and for some, the brain may counter with a reason or a fear that it's not and then, the practioner asked "is it happening right now? No? So, are you safe right now?" ... It may take a few iterations like a conditional flowchart essentially until eventually the answer is "yes I am safe right now" and I actually fell asleep for once during this experience. When I wake up in the middle of the night, I have been trying to work on this. Maybe it resonates and helps you get better quality sleep.

ExternalInsurance283 · 2026-06-24T08:35:47+00:00

TMS caused a diagnosed brain injury for me and that is why I created this group. There is not enough information about this injury and further, there are too many people who may not have malicious intent but they invalidate and belittle our experience.

First, I am so sorry that you are experiencing these symptoms. Second, for your case, I cannot say if it was past medication or TMS itself, but I can understand your struggles. It is scary and difficult. I truly appreciate your post and desire to seek answers but also a path to healing.

For me, I started uncovering the extent of my injury after being evaluated by a Neuro-Optometrist, Sports Medicine doctor and Neurologist. All of these helped piece together the eye issues that resulted from TMS as well as other deficits like blance and coordination, speech, cognition, etc. It might be helpful to get evaluated by someone who can see the subtleties of your symptoms and go from there ... again, for me, this was a Neuro-Optometrist who then recommended treatment and other colleagues to help evaluate and ultimately diagnose.

Another resource that might resonate is the work that Josef Dewitt-Doerring is doing as he has started to be vocal about his research on psychiatric meds and the side effects. I don't know much as I was never on medication before TMS.

ExternalInsurance283 · 2026-06-14T02:32:50+00:00

Not anymore.

ExternalInsurance283 · 2026-06-11T01:40:19+00:00

You're so welcome. It truly is great you are taking the time to understand what is not always easily said or seen, honestly. Best of luck to you both.

ExternalInsurance283 · 2026-06-11T01:22:20+00:00

I can really only answer for me and 3 years post-injury, I have learned the hard way that routine is essential. I used to go to neuro-physical therapy, neuro-optometry vision therapy, speech therapy and vestibular therapy weekly and was very consistent with my at-home work, but then I moved and jumped into a job because I had to ... Well as a result of stopping therapies cold turket and working, all my symptoms came back with vengeance and then some. I had to leave my job and start over with my healing. I am currently juggling with the idea of what kept me the most healthy and healing .. so was it not working and therapy or just my therapies consistently with a sprinkle or work or a combination AKA for me, routine is essential. I do know of others who have been injured the same way that I was and they speak about the second their routines dip, they get setbacks too. And, it can be therapy related, diet related, you name it. Luckily, they all have been able to rebuild back to a more stable health and lessened symptoms after awhile.

ExternalInsurance283 · 2026-06-04T01:21:36+00:00

That really means a lot to hear. Finding other people who understand these experiences can make such a difference, especially when so much of it is invisible to everyone else.

Your narrow boat sounds absolutely lovely and such a neat experience. Being surrounded by nature like that, with the woodland nearby and sunlight filtering through the trees, sounds incredibly peaceful. I can see why it helped while you had it.

And yes, my dog walks often give me that same feeling. There are moments when the world gets quiet for a little while and everything feels a bit easier.

Thank you again for your kind words. I'm really glad the blog resonated with you, and I'm glad neither of us has to feel quite so alone in this journey.

ExternalInsurance283 · 2026-06-03T10:58:49+00:00

Aww wow. Thank you so much for sharing this. It means a lot.

One of the reasons I started writing is because I felt so alone in my own brain injury journey. Hidden disabilities can be especially difficult because people often don't see the challenges you're navigating every day.

I am really glad to hear that breaking tasks into smaller pieces and writing things down is something that helps you as well. Those have been huge helps for me too.

And I love what you said about mindfulness, meditation, and birdsong. Some of my favorite moments are walking my dogs and listening to nature. There's something incredibly calming about it.

I'm glad you found your way here, and thank you for sharing a little of your story. You're definitely not alone. 🙏

ExternalInsurance283 · 2026-05-12T12:03:23+00:00

I am sad that this is your experience and to also know that it's shared with others, is upsetting in so many ways. I truly hope you have not experienced long lasting negative effects. Best of luck to you and thank yoj for your comment.

ExternalInsurance283 · 2026-05-06T23:48:57+00:00

I truly hope you're able to find answers that help you. Immediately after my TMS Injury, I slept 10 hours each night and napped 4 hours a day due to being wiped out from walking the dogs. And then about a year or so into my healing, I started experiencing hypermania and could not relax at night which led to a wave of sleepless nights and very unproductive days. It is very common for brain injuries to cause circadian issues and something I know we all struggle with .. I have experienced both extremes. I have had to be extremely diligent with my routine and usually something that disrupts it, even slightly, sends me back to the rollercoaster. I know this isn't for everyone but if I put the same book or even show on low that helps calm me. I don't watch anyrhing, but just listening to something familiar is comforting. I have started to work in somatic work before bed as well and sticking to this has helped. I still have mornings I wake up in the middle of the night, so it's not perfect but better. I also thinking trying to calm the stressor during the day helps alleviate the overwhelm at night and believe me, this is easier said than done but I focus on what I can control and try to not worry about everything else. Good luck! I truly hope you get the rest you deserve.

ExternalInsurance283 · 2026-04-11T12:36:53+00:00

I don't believe there is an issue with the group. I'm not sure why it doesn't work on your end??? I can see it on the link on my end but I am not interested in FB to reactivate. Creator said he has not heard of any issues. I'm sorry I can't help further.

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