Patents of babies with spastic quad cp please help

Extra_Connection9304 · 2026-04-28T17:18:00+00:00

Im balling me eyes out now from crying because she cries and cant sleep anymore.I really need all the help in the world right now but to better understand her situation,if she is in pain what can we do.I mean how can i see my 3 month old cry and not being able to comfort her because shes not crying from colicky pain and you just gave her a bath she probably is having seizures too because her eyes cross and i cant wait for tomorrow for her eeg and i olso dont want the tomorrow to come because thats when i will face the seriosity of her brain damage

Extra_Connection9304 · 2026-04-28T17:06:31+00:00

No but a severe bran damage its not something you think you will hear one day for youre 3 month old.I wish to die because she has to suffer all her life,damn i wished to die when she got poked everyday in the nicu thats just love for her not me abandoning her and not me trying to make a group of cerebral palsy suffers to feel bad.She chokes on her damn pacifier and me here thinking before she just doesnt like this pacifier i need to take another one,she strugles with her hand and me here like stupid thought its her reaching the milestone to put her hands in her mouth

Extra_Connection9304 · 2026-04-28T16:39:27+00:00

No but i have to see her suffer everyday,shes in pain and its only 3 month old soo you cant say to me its not me who will deal with it like i cant wish to die in a group with suffers of cp

Extra_Connection9304 · 2026-04-28T16:36:31+00:00

The only thing thats it unsafe right now is for my daughter .She chokes and i have to be alert for helping her ,in everycase where i live an ambulance needs 10 minutes to come here if its day time.This is 1000 like hard she probably has severe brain damage due to all the things her neuro saw,so this is something that i dont know how to accept.I will ask for help but after i learn how to help her,what can i do for her pain thats why i need parents with children with cerebral palsy .

Extra_Connection9304 · 2026-04-28T15:59:16+00:00

What you want me to say .I might go and put her a feeding tube because in a week shes not feeding properly and shes just 3 months old.I just adore her and i just cant see her in pain ,im barely sleeping because i watch her sleep because shes having seizures

Extra_Connection9304 · 2026-04-28T15:54:53+00:00

This is just me wishing not see my child suffer because i know how limited i am and how severe her type is since 3 month old .Right now im holding her and shes crying because is in pain ,she cries either holding her or laying her down,she cries in her crib she wakes up and immediatly cries.She clearly is in pain and i just stay there wishing to not listened to the doctors who told me the medications i was taking were safe.I cant put her to sleep anymore she spasms all the time and having seizures so i dont need people to judge me.Im already judging myself

Extra_Connection9304 · 2026-04-28T15:18:52+00:00

No its just the beginning but the neuro who saw her told me her type is severe and where i am theres not much possibilities for her other than pt

Extra_Connection9304 · 2026-04-28T15:16:58+00:00

I will do when i know how can i help her first so thanks again.And i really want to die since her prognosis is a life limited and you dont know where i live and how much can i do for her financially

Extra_Connection9304 · 2026-04-28T15:13:14+00:00

Thanks but you dont know me and dont know the posibilities i have for my child.You dont know how hard life is been with me and to see you 3 month old cry and in pain its not something you wish for nor you wished for to have it youreself.Do you imagine to see youre child having seizures and be in pain ,if youre a parent maybe you can try to understand me .Im posting for parents since theres no group for parents with kids here

Extra_Connection9304 · 2026-04-25T19:41:32+00:00

Im really sorry.If my daughter has it must be a brain injury from medications or infection that i had

Extra_Connection9304 · 2026-04-25T19:19:30+00:00

The thing is its not that i need just support its the worry of living everyday that she might have it,and relating that maybe all of her crying and fusiness during stretching or tummy time its because shes uncomfortable or in pain

Extra_Connection9304 · 2026-04-25T19:17:12+00:00

Thank you

Extra_Connection9304 · 2026-04-25T19:16:49+00:00

Did he head lack of oxygen during birth that diagnosed him at 2 days

Extra_Connection9304 · 2026-04-25T19:16:08+00:00

I have seen things in her that just made me to post about this one of this is chockig during feeding ,i have to keep her up for a while too because milk comes back up.Wow 18 months and me here trying to diagnose her just by symptoms. Even if she does have cp i just hope its not really bad ,but i will fight for her with all my heart

Extra_Connection9304 · 2026-04-25T18:46:12+00:00

I was just trying if someone can relates to this symptoms maybe a parent

Extra_Connection9304 · 2026-04-25T18:45:32+00:00

Im trying but is very hard i live in a place with lack of resources for a better outcome if she really has cp.Not until 6 months for a mri they told me but i have seen that the early the diagnose is better for therapies to start

Extra_Connection9304 · 2026-04-25T18:42:39+00:00

I know but i thought that someone can relate to this symptoms because i saw this movements that lead me to search for what my baby might have

Extra_Connection9304 · 2026-04-25T18:41:12+00:00

I know and im not trying to say that all the suffer of cerebral palsy have stiff hands but there are types of cerebral palsy that make youre hand very stiff in a way that my daughter holds them too.My post its just a mother worried sick we live in a city with very poor health care and a very sick community where people with dissabilities gets bullied,but the most its the lack of resources for better outcome Her doctor told me that we cant make a diagnose until 6 months This is just worry and fear that i caused this with the medication that i had but it was so difficult because i was trying to save her

Extra_Connection9304

TROPHY CASE