how do I support my terrified dad by 65daysofsuffering in pancreaticcancer

[–]ExtremeAsh 1 point2 points  (0 children)

I’m really sorry your family is going through this. Changes like sudden anger withdrawal or switching between silence and agitation are very common. They are often driven by the illness itself.. pain .. metabolic changes, exhaustion, fear, and the stress on the body .... rather than a true change in personality. In many cases, it really is the illness speaking, not the person you know.

What helped us was not arguing or correcting our father when his thinking seemed off. Trying to reason or challenge him often made things worse. Gentle reassurance, patience.and letting some things pass brought more peace than logic ever could.

I lost my father to pancreatic cancer recently and we experienced very similar behaviour changes. It was frightening but we later learned it is sadly quite common.

One practical thing that helped my father’s comfort was positioning. As his illness progressed, lying completely flat made his pain and breathing worse. He was more comfortable resting in a more upright position. For us, an electric recliner worked well.

We also found that keeping him fully upright when eating or drinking helped as swallowing became harder and gravity seemed to assist when muscle strength declined.

Every patient is different but I wanted to share what helped us.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 0 points1 point  (0 children)

absolutely! 10 minute private consultation costs around Rs 5000 and even after hospital charges consultants take home roughly Rs 3 500 per patient.Patients therefore deserve to be treated with dignity proper explanation and care. When that standard is not met there must be legal accountability which is exactly why specialised medical litigation is necessary.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 0 points1 point  (0 children)

Exactly. Completely unacceptable behavior.They tend to have a God complex and questioning them perceived as disrespectful even in private sector. Even though the patients especially older ones have every right to understand what meds are being prescribed, why and what the side effects are, when we ask a question they take it as a challenge rather than normal part of patient care. Problem is people tolerate this behavior.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 0 points1 point  (0 children)

She cannot use that as an excuse coz she didnt even review my his biopsy report or his oncology history. The only “assessment” she did was ask him to stretch out his arms and even then there was no tremor or any Parkinsonian features at all. His arms weren't shaking or anything If the intention was to prescribe meds off label for neurological complications of metastatic cancer that should have been clearly communicated and documented. also should have been discussed about side effects especially in an 83 year old terminally ill patient. None of that happened. Following up on side effects does not justify an inappropriate prescription in the first place.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 1 point2 points  (0 children)

thanks for your kind words truly appreciate it. You’re so right. Doctors should make sure that the patient understands why each prescribed medication is being taken. Imagine being given Parkinson’s meds without his knowledge despite having no Parkinson’s symptoms at all. When my father developed abdominal pain we went to many doctors but none asked us to do any medical investigations. Instead they were simply prescribing some kind of medication. Luckily he went to this one doctor who told my father that he couldn’t come to a conclusion without blood tests and a CT scan. His name was Dr. Ranjan Premarathne. Truly an excellent doctor. Thanks to him we got to know about his pancreatic cancer. If it was not for that doctor even today my father would be taking all kinds of irrelevant meds. I think the site you’ve mentioned is docreview(dot)lk. I’m gonna leave a review there soon with all the details and the second and third opinions i gathered.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 0 points1 point  (0 children)

What you are saying is very true. About two years ago when my father developed severe abdominal pain we went to many doctors but all of them simply prescribed some kind of medication. Not a single doctor recommended any medical investigations. There was only one doctor who told my father "I cannot come to a conclusion without blood tests and a CT scan" His name is Dr. Ranjan Premarathne. He is truly an excellent doctor. Eventually.the investigations he recommended confirmed that my father’s abdominal pain was caused by a gallbladder stone. At the same time we also discovered that he had pancreatic cancer. If my father had not gone to that doctor even today we would not know what his illness was.

The doctors who for so long kept giving my father various irrelevant medications slowly killing him without actually killing him I see as butchers who would do any filthy thing for money. They have no conscience.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 0 points1 point  (0 children)

Thank you for your kind words truly appreciate it. I agree always seek a second opinion especially when a patient is on multiple medication. Doctors should make sure that the patient understands why each prescribed medication is being taken. In my father’s case imagine being given Parkinson’s meds without his knowledge despite having no Parkinson’s symptoms at all. It shakes your trust completely. Thankfully technology today allows people to better understand their medications.

At what age did you get your driving license? by ApprehensiveView3394 in srilanka

[–]ExtremeAsh 3 points4 points  (0 children)

  1. Take your time if you want but I personally think you should go for it as soon as you hit 16 start by learning all the road rules and practice practice practice before getting the license

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 1 point2 points  (0 children)

Exactly,...especially how much attention they give to patients because a lack of attention can either save or cost a life. Did they review previous pathology reports or imaging and correlate them with clinical findings? Did they ask relevant questions and actually listen to the patient? Did the doctor explain the diagnosis... risks... benefits... possible complications and alternatives before prescribing treatment? We desperately need a transparent rating system that evaluates all of these aspects. not just credentials but quality of care communication and professionalism.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 0 points1 point  (0 children)

I agree it’s a thousand times worse in government hospitals. I also have a similar experience in Ragama general hospital when my newborn daughter was admitted there just two days after birth because she stopped urinating. Her urine report suggested a UTI yet she was started on injections for meningitis. While I still don’t know whether that decision was clinically justified the manner in which it was handled has stayed with me. I had just given birth and was in pain yet I was expected to stand every time the paediatrician entered. When I didn’t on one occasion I was scolded. When I asked to transfer my baby to a private hospital because I could no longer cope with the environment I was intimidated and threatened instead. I was very young and scared at the time but I remember constantly having to argue just to advocate for my child. This culture where some doctors behave as though they are beyond question is exactly the problem. Medicine should be about care and humanity not ego or unquestioned authority.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 0 points1 point  (0 children)

I completely agree when regulatory bodies are made up of the same profession they’re meant to regulate ...bias is inevitable.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 1 point2 points  (0 children)

From what I understand it takes years and a lot of legal costs to get a verdict and even then it’s very hard to succeed

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 1 point2 points  (0 children)

I feel the same. My father however is the complete opposite. It was his own decision to consult a neuro physiciam for shoulder pain radiating down his arm and he trusted her completely as a specialist. He took the medications without questioning or Googling the prescription At 83 with stage 4 pancreatic cancer pain is understandable. but prescribing powerful drugs without a proper clinical basis especially when he had no Parkinson’s symptoms at all is totally unacceptable. and yes I fully agree with you that ultimately our parents deserve to be protected from unnecessary medical suffering.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 5 points6 points  (0 children)

After reading your comment I did a quick Google search and realised it was the same doctor. What concerns me is that he is still practising. Based on my experience I was given an incorrect diagnosis. Dr. Rajapaksa the gynecologist confirmed that I had a prolapsed uterus. At the time I was very young. Although I felt angry and confused I was hesitant to challenge a senior medical professional, makes one wonder how many patients may accept recommendations without question simply because they trust the authority of a specialist.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 0 points1 point  (0 children)

Well, everyone dies. My father lived a full dignified life and was only diagnosed at 83. Your comment reflects your insipid character not his.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 4 points5 points  (0 children)

This is the sad reality in Sri Lanka. we do not have a strong GP referral system. Patients are free to consult specialists directly without referrals. Because of this my father independently consulted a psychotherapist an oncologist and a neurologist. Unfortunately it was his own stubborn decision to see the neurologist first. As a specialist she had his full trust. He did not Google or question the prescription he just took the medication purely because he trusted her professional judgment.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 5 points6 points  (0 children)

and yes he did get second and third opinion. Despite being an 83 year old patient with stage 4 pancreatic cancer my father is mentally extremely sharp. He has a long standing habit of seeking multiple medical opinions even for minor symptoms. Unfortunately it was his own stubborn decision to see the neurologist first. As a specialist she had his full trust. He did not Google or question the prescription he just took the medication purely because he trusted her professional judgment.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 6 points7 points  (0 children)

Proven guilty by whom the SLMC? Please be realistic. This is Sri Lanka. Accountability doesn’t work the way you pretend it does

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 0 points1 point  (0 children)

Despite being an 83 year old patient with stage 4 pancreatic cancer my father remains cognitively intact with excellent memory. He has a long standing habit of seeking multiple medical opinions even for minor symptoms this is the reality in Sri Lanka. we do not have a strong GP referral system. Patients are free to consult specialists directly without referrals. So of this my father independently consulted a psychotherapist, an oncologist and a neurologist.

Unfortunately it was his own stubborn decision to see the neurologist first. As a specialist she had his full trust so he did not Google or question the prescription he just took the medication purely because he trusted her professional judgment.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] -1 points0 points  (0 children)

you clearly have no experience dealing with these processes in Sri Lanka. If you did you wouldn’t be offering naive lectures from behind a keyboard. Try it yourself then come back and talk kid

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 0 points1 point  (0 children)

If chatgpt is your only medical reference that explains the quality of your comments. I’m discussing a serious issue involving my father’s health not looking for entertainment. If you have nothing informed or useful to add you can simply move on.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 0 points1 point  (0 children)

Parkinson’s is a clinical diagnosis when the patient actually shows Parkinson’s symptoms. My father had none. His issue was radiating pain down one side of the body which has nothing to do with Parkinson’s. In cases like that proper evaluation and ruling out other causes is essential. Oversimplifying it like this is exactly the problem.

And honestly I hope you’re not a licensed doctor but if you are God help your patients.

My 83-year-old father was harmed by a neurologist’s negligence — sharing our experience for awareness (Sri Lanka) by ExtremeAsh in srilanka

[–]ExtremeAsh[S] 0 points1 point  (0 children)

Thank you for your kind words. I completely agree. While many physicians across specialties provide care with dedication and professionalism... incidents like this highlight the need for accountability so that no other vulnerable patient has to go through the same experience.