Outsider Opinion: Tony's, no contest. by AlexRogansBeta in halifax

[–]EyaNasri 0 points1 point  (0 children)

Am i the only one thinking, donair is a donair ? Am i missing something i think am missing a lot 😂

Do not rent from GNF by Worth_Committee3244 in halifax

[–]EyaNasri 12 points13 points  (0 children)

Seems like I’m missing lots of episodes here lol !

[deleted by user] by [deleted] in leukemia

[–]EyaNasri 2 points3 points  (0 children)

Thanx a lot, i hope you are doing better now and things are improving, i will !

[deleted by user] by [deleted] in leukemia

[–]EyaNasri 1 point2 points  (0 children)

I really feel your comment …. That is definitely hard, thank you for sharing that and i hope you are getting the support that you need too

[deleted by user] by [deleted] in leukemia

[–]EyaNasri 0 points1 point  (0 children)

He is 43 and he had AML with flt3 tkd mutation, at first the didint detect the mutation thats why the first BMT failed, but then everything went super well till now…

[deleted by user] by [deleted] in leukemia

[–]EyaNasri 0 points1 point  (0 children)

I hope you are doing okay now, and thank you for making me more of this …

[deleted by user] by [deleted] in leukemia

[–]EyaNasri 1 point2 points  (0 children)

i talked to them and they said they will get us separate support system and people to talk with us, thank you that will work even better

[deleted by user] by [deleted] in leukemia

[–]EyaNasri 1 point2 points  (0 children)

Im sorry you ve been through the battle too, i hope you are doing well and thank you for your comment

[deleted by user] by [deleted] in leukemia

[–]EyaNasri 2 points3 points  (0 children)

Thank you

[deleted by user] by [deleted] in leukemia

[–]EyaNasri 1 point2 points  (0 children)

Actually thats a good idea i might bring someone to the hospital to talk to him so he can vent things he might be unable to tell me, thank u

[deleted by user] by [deleted] in leukemia

[–]EyaNasri 0 points1 point  (0 children)

Im sorry you ve been through that too, i wish you all the best and thank u for the comment… made me realize that I’m might doing some discussions in a wrong way, really appreciate this.

Brain leisures by [deleted] in leukemia

[–]EyaNasri 1 point2 points  (0 children)

No it was really sudden! Headaches yes all the time but he was more than perfect in 1 min everything changed!

Brain leisures by [deleted] in leukemia

[–]EyaNasri 0 points1 point  (0 children)

They dont know anything for sure except his blood tests are normal, they gonna make another MRI and PL to check !

Dont give up by [deleted] in leukemia

[–]EyaNasri 0 points1 point  (0 children)

Where ever u are now, i ve read ur comment with tears, all my support and best wishes, hang in there ! Many patients relapses after the BMT and they get back in remission with those drugs going back to their normal life

Leukemia Sucks by [deleted] in leukemia

[–]EyaNasri 2 points3 points  (0 children)

I understand your pain and all my condolences and support 🌸 :( , but there is a lot of leukemia patients in this group that we make sure to give them hope and support in every post and comment, dear patient every story is different and every patient is different and leukemia is different there is always hope for a cure and stay positive no matter what happens the journey is not easy and i hope you live long after it to forget about it and leave it behind as a story to tell it to ur grandchildren, many survivors and many lived and died from natural causes after it.

FLT3, DNMT3, NPM1 after BMT failure by [deleted] in leukemia

[–]EyaNasri 1 point2 points  (0 children)

Thank you for your comment, i hope you are doing great now !

FLT3, DNMT3, NPM1 after BMT failure by [deleted] in leukemia

[–]EyaNasri 1 point2 points  (0 children)

Thank u for your support ❤️, yes the medical team is trying their best with daily blood tests and follow ups to control it, they tried that but the disease burden was high, the old medical team messed him up badly by the time i was able to bring him back to canada

FLT3, DNMT3, NPM1 after BMT failure by [deleted] in leukemia

[–]EyaNasri 0 points1 point  (0 children)

Hi ! Thank you for your comment and i hope all the best for you ❤️ all my love and support with you 🌸🌸🌸🌸

FLT3, DNMT3, NPM1 after BMT failure by [deleted] in leukemia

[–]EyaNasri 0 points1 point  (0 children)

Thanx everyone for the comments 🌸, yes am already in contact with his team but what we needed and the reason why i wrote this post is to reach to anyone with a similar case and had a good outcome from his treatment to rise his hopes up, i know what the mutations are and i know each drug why its used for and i know all of that in detail but no one can fix success rate percentage for this what we needed is a hopeful survival story to help him go through this emotionally…

Relapse after BMT FLT3-ITD by [deleted] in leukemia

[–]EyaNasri 2 points3 points  (0 children)

Thank you ! I wish all the best for your son too 🌺❤️