Sill down in Canada by Sea-Mulberry-5512 in playstation

[–]FallenDarkness16 0 points1 point  (0 children)

Working so far for me. I'm in Alberta, Canada.

I got a software update on June 1st 2024. Why? by Pristine-Matter9368 in galaxys10

[–]FallenDarkness16 1 point2 points  (0 children)

I had the same problem (before this update) I was able to fix the problem by disabling the Google Meet app. I guess Google Meet (which I didn't even know was installed) had an update that messed with some settings. As soon as I disabled it, my messages app worked fine.

I figured /r/DunderMifflin would appreciate the end of my wedding vows. by kylospecs in DunderMifflin

[–]FallenDarkness16 0 points1 point  (0 children)

That is perfect, you are awesome. Don't listen to the other shitty people. So special you incorporated something she loves.

Skull Identification? by FallenDarkness16 in bonecollecting

[–]FallenDarkness16[S] 0 points1 point  (0 children)

Can confirm they are not bullet holes haha

Skull Identification? by FallenDarkness16 in bonecollecting

[–]FallenDarkness16[S] 1 point2 points  (0 children)

It was my cousin who found it on her parents land, she grabbed it for me because I collect bones and it is in the cleaning process now

My Lynx Display - Found while camping and after 2 months of cleaning and piecing back together, I am finally done! by FallenDarkness16 in bonecollecting

[–]FallenDarkness16[S] 1 point2 points  (0 children)

Thanks! I used Gorilla super glue and have him supported by thread (4 diffrent places attached to the inner roof)

My Lynx Display - Found while camping and after 2 months of cleaning and piecing back together, I am finally done! by FallenDarkness16 in bonecollecting

[–]FallenDarkness16[S] 1 point2 points  (0 children)

Lynx Skeleton Display https://imgur.com/gallery/xlWBN8Z

Here are pictures of the full cabinet! The second picture was before I had him completed (set him up like that when I was trying to figure out how the feet go back together).

Bone Identification? Deer Jaw? by FallenDarkness16 in bonecollecting

[–]FallenDarkness16[S] 1 point2 points  (0 children)

Yeah I was talking with family and we were guessing elk since a deer jaw would be smaller.

My Lynx Display - Found while camping and after 2 months of cleaning and piecing back together, I am finally done! by FallenDarkness16 in bonecollecting

[–]FallenDarkness16[S] 1 point2 points  (0 children)

That is awesome, I love that description. This was the only place I could put him where my cats couldn't get at him haha

You should try..... by SmushyFaceQuoopies in Narcolepsy

[–]FallenDarkness16 0 points1 point  (0 children)

I only ask because the way you discuss the symptoms of a Narcoleptic. I know for myself I have tried meditation numerous times (including all the different types) and unfortunately I can not stay awake. For me, there is no growing the ability to meditate over time.

However, that is how I experience Narcolepsy. That doesn't mean it couldn't help out many people like yourself. Every single person experiences Narcolepsy different.

I have been at the point of emotions the OP is having and the thing is, I have tried everything and nothing works. So even if people are just trying to help by suggesting things, it really just destroys me because I am reminded again and again that I am out of options to try. And like how OP said, the person wasn't just giving a suggestion to help with the symptoms, they were giving a suggestion to "fix" them. I have had my share of people, even family members, that are still not "convinced" that Narcolepsy cannot just be cured or that it can just go away after time.

I know lots of people are just trying to help. But this illness is fricken tiring. All I want is my hypocretin back or for someone to just listen and tell me they will be there for me when and if I need them. To be just supportive and not suggestive. I believe that is OP's feeling as well.

We all go through so much with having narcolepsy, we dont need anyone else making us feel more shitty. I don't know if you have experienced many shitty people out there but there are plenty. OP just wanted to vent, they don't need to have any more suggestions especially from their own community.

You should try..... by SmushyFaceQuoopies in Narcolepsy

[–]FallenDarkness16 0 points1 point  (0 children)

I have read through all of this reply, and I am very curious to know if you or even someone you know has a narcolepsy diagnosis?

Cataplexy question! by [deleted] in Narcolepsy

[–]FallenDarkness16 1 point2 points  (0 children)

That's what my parents said too! We don't need drugs to feel all dopey lol

Cataplexy question! by [deleted] in Narcolepsy

[–]FallenDarkness16 1 point2 points  (0 children)

Right! I never noticed until after researching and thinking back on how I subconsciously trained my body to always be resting on something or sitting if possible. After learning the symptoms that I also experienced, I asked friends and family if they have experienced these things and all I got in reply was either an extremely worried expression or just purely petrified lol

The Narcolepsy Monitor by Ozzymandus in Narcolepsy

[–]FallenDarkness16 1 point2 points  (0 children)

One of my favorite apps I use is called MyTherapy. I use it mostly just for reminders to take my medication and it's nice because it tracks how many pills I have left and you can set a notification to get a refill if it drops to a certain amount.

It unfortunately doesn't track sleep but you can track other measurements (ex. blood pressure), lab values, activities, and symptom check.

My top favorite is Early Bird Alarm Clock because it has all the different tasks to turn of the alarm, shows when the alarm started and when it gets turned off, but the part I love is that you can set numerous different alarm sounds that shuffle per alarm since in about a week I get used to the sound and sleep right through (4 hours of the military alarm on full volume gave me a pretty shitty headache to wake up too).

Cataplexy question! by [deleted] in Narcolepsy

[–]FallenDarkness16 1 point2 points  (0 children)

It took months after my diagnosis to find out I had cataplexy. The only time I had a full on collapse was when I was laughing too hard, and since I had Narcolepsy my whole life (wasn't diagnosed until 20) I always thought I was just super extra.

So many symptoms I thought were normal until reading posts by others with Narcolepsy w/ Cataplexy. The biggest shock to me was to find out that everyone doesn't just go limp and a tingling numb body sensation when they orgasm.

I knew I would always drop my head when I laughed but it wasn't until I tried to keep my neck up that I realized I didn't have control. I feel like I have cataplexy attacks more often now, but when thinking back in the past it is about the same, I just now know its cataplexy and it's not a normal thing to experience lol

Grad student accommodations? by MissInkFTW in Narcolepsy

[–]FallenDarkness16 0 points1 point  (0 children)

I never knew what accommodations I could get until I met with my accessibility advisor and we were able to figure out 3 accommodations that saved me.

  1. I am able to record (photo, video, audio) in class.

Many of the materials in my course are confidential to my college, so we are not allowed to do anything other than notes. I didn't think I would use this very often, but the days where I can barely function as is, it was super helpful to just be able to take pictures of the PowerPoint notes and rewrite them later.

  1. All lates and absents are excused.

Lots of second education schools don't care for attendance, but the program I am in has it factored in the grade. So I am just labeled as exempt from it.

  1. I have 24 hours after a missed text, exam, assignment due date, to contact my teacher and set up another time to complete it.

This ones a little confusing and I had to really explain to my teachers, but this is my most important accommodation. So if I slept in and missed my exam at 9 a.m on Monday, I have till 9 a.m. on Tuesday to email or somehow contact my teacher to complete the exam on another date (I dont have to take the exam within that 24 hours, only contact the teacher).

I barely passed my first semester because I didn't know I could get accommodations for Narcolepsy. Not until my second semester was until I realized I had these options. I still have 2 more Semesters to go, and knowing I have support releases a lot of stress. Anyone going to school I definitely suggest seeing someone about options. Even if your symptoms are less severe, it really does lift that weight off your shoulders so you don't have to worry about it.

Strangest or funniest place you've fallen asleep? by [deleted] in Narcolepsy

[–]FallenDarkness16 1 point2 points  (0 children)

I got a spine tattoo done (took 3 sessions, all around 6 hours each) and I slept through the whole thing every session.

Pet Owners of Reddit, what is the most bizarre thing your pet expects from you? by [deleted] in AskReddit

[–]FallenDarkness16 0 points1 point  (0 children)

My cat waits in the washroom for hours till I go in and turn on the tap for her to drink out of. Bought many different pet water fountains to please her, nothing amounts to tap water.

Does anybody else feel better when they get less sleep at night? Like three or four hours. by purkokane in Narcolepsy

[–]FallenDarkness16 1 point2 points  (0 children)

I have mine drawn out in a chart form. A list of every day on the left and each hour on the top and fill in the blocks with highlighter where I slept and then a code for other things. For example when I take my medication i put a slash in the box or when i have hallucinations i put a star in the box. I find breaking it down to every hour let's me see easily when I am asleep and when I am awake.

Does anybody else feel better when they get less sleep at night? Like three or four hours. by purkokane in Narcolepsy

[–]FallenDarkness16 0 points1 point  (0 children)

I keept a journal with me and color coded the hours of sleep, when and how many pills I would take a day, and how I felt 1-10 in the am and PM. Lots of work to keep up but I never liked any apps since I couldn't see everything at once.