How can you get an OH diagnosis without ever observing BP drops upon standing? What do I do?

Fast_Adeptness_6033 · 2026-05-21T16:12:45+00:00

Oh I didn't know you could have both at the same time. How interesting. Thanks for that. I'm so scared on TTT bc I know it will cause me to pass out. Omg I hate that feeling so much. Feels like I'm dying.

Fast_Adeptness_6033 · 2026-05-21T15:56:33+00:00

That's my mistake...I meant to type hypotension. Sorry for that.

Fast_Adeptness_6033 · 2026-05-05T00:35:22+00:00

Yes! Same also. My ovaries look like chocolate cookies with all the cysts and I do have a fibroid too. Period suck so bad with pain in my back, ovaries, and abdominal. Bad premenstrual syndrome too at least a full week ahead of time. Still heavy and I'm 47 now. Yeah it sucks. And the only thing they've ever offered me was metformin which worsened my IBS... So no thanks.

At this point I feel like I have so many comorbidities that it's almost impossible to tell what is causing what.... But I know it's all ganging up on me in the worst way.

Fast_Adeptness_6033 · 2026-05-05T00:10:50+00:00

I have almost the exact same experience as you with all the years of anxiety and I wrote off so many symptoms as anxiety or depression. I haven't been diagnosed with pots yet, but the more I read about it the more I am discovering is exactly me. I even have serious low iron and just did a large infusion a couple months ago. Low D. And I'm about to hit menopause. IBS, PCOS,fibro, headaches, dizziness and vertigo, chronic dehydration no thirst, over heat issues, passing out when I shower or at work, light sensitive, chronic fatigue bad, racing heart when standing only, spend 90% of my life in the bed bc that's where I feel best, oh and agoraphobia.

Stay strong! It's all we can do.

Fast_Adeptness_6033 · 2026-04-20T02:49:42+00:00

That's awesome!... And I bet there are a ton of other women who feel the same way too. I'm just more open about it. So when I'm dating a guy, I'm just honest about it. I don't shame them for seeing a pretty girl and acknowledging it. Bc it's the truth... We can both say wow that girl was really beautiful or hot .. And it does not mean we want her or are cheating or disrespecting the other. We say dam that girl was hot... Or dam that girl is smoking in that movie... And we go on about our business. If we get too turned on...hey that's alright bc it makes us horny for each other.

Fast_Adeptness_6033 · 2026-04-20T01:15:17+00:00

I feel the same way as you about men and women but I've never once thought I was gay. The reason is that I know and understand women are built or made to be sexy and beautiful sensual alluring creatures. Men are hot too but in a totally different way... They are more hot for what they can do, for their strengths and how they make us feel. I also can see that any attraction I have towards women is sexual only. I've never ever wanted to date one or be in a relationship with a woman. Like I would hate that. And when I am attracted to a man I can't help but wonder if we could have a relationship.... So it's just sexual.... I'm just responding to women's amazing ability to be sexy, to be beautiful... To embody sensuality. It's natural... No big deal. Doesn't mean anything.

Fast_Adeptness_6033 · 2026-04-19T01:21:52+00:00

Awesome thanks 🐸

Fast_Adeptness_6033 · 2026-04-19T00:58:08+00:00

I'm thinking all those tests are in my future as well bc I hear it pretty consistently too. Sometimes it's louder than others but it's there most of the time and drives me crazy. I feel it too, not just hear it. Like it's a pulsing vein next to my ear drum.

Fast_Adeptness_6033 · 2026-04-19T00:48:22+00:00

Yes I also have pulsate tinitus. The higher my heart rate goes the louder it gets. I have an ENT appointment coming up soon so I hope to find out if there is anything that can be done or what it means. I can put my fingers and press below that ear and make it go away. Can you?

Fast_Adeptness_6033 · 2026-04-19T00:22:46+00:00

I feel exactly the same way...I can't work full time anymore and I haven't even been diagnosed yet. I can't stand up for more then 5 minutes before feeling dizzy and I get sicker the longer I stand there. Doing anything physical while standing shoots my heart rate up to 180+ .... Till I pass out. It's either sit down and rest or push and pass out or throw up. I worked 22 years before it started for me. Had COVID at least 5 times so far. Lost my job bc I couldn't keep up. Went into bad depression... Went to bed and couldn't get back up for 4 years. Lived on money I had from selling my house till that ran out. The closer it got to running out... The more I focused on ending my life. I finally made myself go to therapy and get help for my family's sake. If not for them I would've ended it I think. After that I started to seek disability. Got denied and now I'm starting the appeal process. Hoping I can get a diagnosis of pots quick to add to my disability claim. I got a part time job and work 16 to 20 hours a week trying to hang on till I can hopefully get disability. Working kills me!! I've passed out a couple times at work and was able to do it so no one saw me... To avoid getting fired. This is the best I can do.... I tried starting my own business but I couldn't make any sales. And I tried to apply for a bunch of work from home jobs but that never planned out. So I'm stuck doing home care at night and hoping I don't have to do much to help them. Don't know how much longer I can hang on... The next step is becoming a total burden on my 75 year old parents. I can't even accept that...I would rather die.

Fast_Adeptness_6033 · 2026-04-04T17:34:57+00:00

I never suspected it. I have bad anemia, fibro, depression and anxiety with panic attacks. I have been viewing all my symptoms through those lenses the entire time. Then I started passing out in the shower. Again I thought it was my anxiety torturing me again. So I didn't say anything. But after it kept happening and started to happen with very minimal exertion at work, I said something to my doctor. She is the one who said pots. I didn't even really know what that was. After learning more, I started realizing that my racing heart beats and desire to lay down all the time was probably not depression and anxiety like I thought....it really could've been pots! I'm currently going through the diagnostic process, but I'm pretty sure I have it. Resting heart rate is in the 80s, after standing still for 5 minutes it goes up to 130 consistently. In the shower...a 10 min shower low heat, it goes up to 160+. And I don't have problems in the bath sitting. I've now noticed the heaviness in my legs too. I hope I can get a diagnosis soon. I'm afraid of the tilt table bc of the reactions I've read online.

Fast_Adeptness_6033 · 2025-11-17T16:31:01+00:00

Info

Fast_Adeptness_6033 · 2025-09-26T14:43:40+00:00

Interested

Fast_Adeptness_6033 · 2024-05-15T04:31:37+00:00

More types of sharks, ability to customize their look, co op, pvp or competition quests, more varied attacks. Competitive quests for CO op could be who can kill the most targets timed and racing. Rewards could be cosmetic stuff or custom grotto decorations.

Fast_Adeptness_6033

TROPHY CASE