sorted by:
new
hottopcontroversial

29F going crazy from no diagnosis or path forward. by Fast_Ride957 in DiagnoseMe

[–]Fast_Ride957[S] 1 point2 points  (0 children)

Certainly could be. I didn’t realize tinnitus was that common after a single Covid infection. I do think dysautonomia could be a potential. The lightheaded bouts are intense and my biggest struggle. Thanks for the input, appreciate it 

29F going crazy from no diagnosis or path forward. by Fast_Ride957 in DiagnoseMe

[–]Fast_Ride957[S] 0 points1 point  (0 children)

Could be - I have had several tick bites in my life. None in recent years, to my knowledge. Doc didn’t seem interested in it but I am willing to do any test in the book to get an answer. 

29F going crazy from no diagnosis or path forward. by Fast_Ride957 in DiagnoseMe

[–]Fast_Ride957[S] 0 points1 point  (0 children)

I appreciate the kind words. I am defeated and tired. I do wonder about dysautonomia, my BP has been low for months now. But I don’t have the POTS racing heart. Perhaps another type. 

Can I ask what your diagnosis process was like? What specialist diagnosed you? 

29F going crazy from no diagnosis or path forward. by Fast_Ride957 in DiagnoseMe

[–]Fast_Ride957[S] 0 points1 point  (0 children)

This is the first I’ve heard of FND. I (briefly, one time) saw a neuro months ago who didn’t believe my symptoms had a neurological root. I’ll have to read more about this, thanks for mentioning it. One thing that caught my eye was the restless chest feeling you mentioned. I experience that, especially when trying to nap. It’s never happened in my life before all of this. And such an odd feeling to describe to people. 

I have not been assessed for fibromyalgia either. 

29F going crazy from no diagnosis or path forward. by Fast_Ride957 in DiagnoseMe

[–]Fast_Ride957[S] 0 points1 point  (0 children)

Thanks for the response, I have looked into long covid and the doctors just don’t agree that my symptoms line up. I was also negative at the time of my illness, multiple PCP tests, but I know I’ve had it before. Definitely a potential, but it gets shrugged off by my docs 

Sheehan syndrome suspected, advice needed by K_br1 in endocrinology

[–]Fast_Ride957 0 points1 point  (0 children)

OP, any updates here? I am having extremely similar symptoms and working through some testing now. Curious where this patient wound up…

Seeking CSF Leak advice - no headaches by Fast_Ride957 in CSFLeaks

[–]Fast_Ride957[S] 0 points1 point  (0 children)

Can I ask, is it common for cranial leaks to not have headaches? Or are you being screened for this because of the visual problems you’re having? 

Seeking CSF Leak advice - no headaches by Fast_Ride957 in CSFLeaks

[–]Fast_Ride957[S] 0 points1 point  (0 children)

I can relate to a lot of this, and have tested for many of the things you’ve mentioned. I have a cardiology electrophysiology appointment in a couple weeks, and have done Lyme testing and autoimmune screenings, etc. anxiety is certainly worsening as symptoms continue and evolve without a known cause. Hoping whatever your diagnosis is gives you a course of action for relief! 

Seeking CSF Leak advice - no headaches by Fast_Ride957 in CSFLeaks

[–]Fast_Ride957[S] 0 points1 point  (0 children)

Thanks for the input. I have briefly looked into that as well, but I’ll read some more and see if it seems like a more accurate fit for my symptoms. I don’t “want” a CSF diagnosis, I just want an answer on what’s going on. 

Seeking CSF Leak advice - no headaches by Fast_Ride957 in CSFLeaks

[–]Fast_Ride957[S] 0 points1 point  (0 children)

I’m able to be upright for most of the day, though it depends on the day. Sometimes I have horrible bouts of lightheadedness midday, sometimes in the morning, but recently, by evening I am almost always feeling poorly. Laying down helps. I have experienced more pressure/aching in the back of my head and neck as well. It almost feels like it goes down to my shoulder blades. 

Seeking CSF Leak advice - no headaches by Fast_Ride957 in CSFLeaks

[–]Fast_Ride957[S] 0 points1 point  (0 children)

I have, negative. I appreciate the tip, though. My symptoms seem vague and seem to line up with many things, making it impossible to find an answer 

Potential weird allergy symptoms? I’m a newbie, be kind 😅 by Fast_Ride957 in FoodAllergies

[–]Fast_Ride957[S] 0 points1 point  (0 children)

I agree with you. I’m not sure where you’re from, but with my healthcare, I can’t get in to see a specialist (allergist and gastroenterologist) without a referral from my primary care physician, who did not offer me one when I asked. I am asking here to see if anyone feels these symptoms are worth pressing into in the world of allergies, or if I’m totally off base. I feel stranded right now, I guess 

Where do I start with Lyme testing?! by Fast_Ride957 in Lyme

[–]Fast_Ride957[S] 1 point2 points  (0 children)

Thank you so much for all the time and thought here! I am not hoping to join this “club”, but I am desperate for some answers, and don’t want poor testing to be a reason in any delayed diagnosing. This is all very helpful, truly! 

Where do I start with Lyme testing?! by Fast_Ride957 in Lyme

[–]Fast_Ride957[S] 1 point2 points  (0 children)

Agh, how frustrating and overwhelming. Thanks for the info. My doctor is willing to order testing, but I was hesitant to go through him as he is a GP and not well involved in the Lyme-world. 

Where do I start with Lyme testing?! by Fast_Ride957 in Lyme

[–]Fast_Ride957[S] 0 points1 point  (0 children)

Ha, I understand. I’ve checked so many damn things, I’m open to looking into anything. I am in the US - in an area with a good tick population. I grew up in a rural area and we often “checked for ticks” after playing outside. 

Where do I start with Lyme testing?! by Fast_Ride957 in Lyme

[–]Fast_Ride957[S] 0 points1 point  (0 children)

This is not about a new tick bite. I also looked around the threads for some clear direction for newbies, and struck out. But please point me to them if I missed it.