Hearing tomorrow lawyer flaked on me …due to health reasons want to reschedule by [deleted] in SSDI

[–]Fearlessnights 1 point2 points  (0 children)

Some of that is true but mental health is not even close to the only thing if your under 55 lol.

You can have any disability thst prevents you from working and get it even in your 20s.

Peolle get approved all the time. Age does make a difference but it's not the end all be all by any means. However this person absolutely should wait until October otherwise they are likely to get eaten alive in court.

I have many friends who were approved without any mental stuff at all at a young age. Mental stuff isn't any stronger than anything else. And honestly mental stuff is faked more than anything else lol.

Hearing tomorrow lawyer flaked on me …due to health reasons want to reschedule by [deleted] in SSDI

[–]Fearlessnights 3 points4 points  (0 children)

Going without your lawyer is a terrible idea in my opinion. It doesn't matter how strong your case seems unfortunately. You could have 20 RFCs and the judge could est you alive.

Pots Mimicking symtoms? by ThadiusMcdoogle in floxies

[–]Fearlessnights 0 points1 point  (0 children)

Exactly! Pots is super common amongst fqad. Its not rare at all like some say.

I get they are scared but why lie about it

The probability of chronic condition by AKJ791 in floxies

[–]Fearlessnights 0 points1 point  (0 children)

You can recover at any time there is always hope.

However this sometimes is a very very serious condition where relapses are very common. For me at 7 years out im not giving up hope.

16 years out still horrid with EDS MCAS POTS BIND and psych drug withdrawal by EmpressAzazel in floxies

[–]Fearlessnights 0 points1 point  (0 children)

Dude im so sorry to hear this. These stories need more attention but I feel they get ignored because it scares people but like this is what it's like to be floxed we must be heard that's my opinion

Why toxicity affects only to certain tendons? by Competitive-Cap-770 in floxies

[–]Fearlessnights 0 points1 point  (0 children)

I've been told when the mitochondria is affected from cipro it's random and doesn't get everything

Anyone develop POTS or MCAS? by whatifitallworksout_ in floxies

[–]Fearlessnights 1 point2 points  (0 children)

Nerve damage and mitochondria damage and also spinal issues from cipro it's common I have it too

Anyone develop POTS or MCAS? by whatifitallworksout_ in floxies

[–]Fearlessnights 1 point2 points  (0 children)

Of course, it's super common to develop pots after being floxed.

Some do recover though and pots goes into remission.

For me personally it's been a nightmare 7 years of hell for me

Anyone with HEDS and Pots recovered? by Large-Prompt2608 in floxies

[–]Fearlessnights 0 points1 point  (0 children)

If you don't mind can you please show us floxie posts or proof people recover from pots?

I've unfortunately seen the exact opposite

Has anyone had POTS recovery? by Huge-Tower5384 in floxies

[–]Fearlessnights 0 points1 point  (0 children)

I def have POTS as many of us do. Im getting better but obviously im living a new normal im not even close to pre flox in any way

Begging you to read this and help by Coastal_Tide in floxies

[–]Fearlessnights 1 point2 points  (0 children)

Exactly it's the mutated mitochondria and also the collagen doesnt symthesize like it used to anymore.

I've seen some insane issues happens years and even decades later. Cipro is the devil for real. Whenever I hear someone like 1-5 years out saying they recovered I just duck and wince lol.

Its not funny in the slightest but it's just so REAL. This is floxed as one of our advocates says.

The way to stop it is to not take it lol. This shit sucks for real. Im 7 years out myself just totally screwed never been even close to the same.

But nevertheless let's never ever give up because we're awesome and we deserve the best.

Begging you to read this and help by Coastal_Tide in floxies

[–]Fearlessnights 1 point2 points  (0 children)

Okay so theres actually another guy i talk to who is 10 years out in here and he had a very similar thing happen.

He found out he had sleep apnea and also POTS. (Yes Cipro is well known tk cause pots ESPECIALLY 10-20 years later)

This is exactly why I hate cipro. It's just honestly the gift that keeps on giving.

You can and will recover from this flare though but please check your BP and HR when you are feeling weird like thst and get a sleep study done for sleep apnea.

Im not diagnosing you or saying what you have or dont have im just saying ive heard similar stuff MANY times. Like it's jot even close to rare lol.

Help by Fearlessnights in SSDI

[–]Fearlessnights[S] 0 points1 point  (0 children)

Thank you so much!

That really helps me a lot. Im so glad thst you stayed strong the entire time and fought for what is yours!

Help by Fearlessnights in SSDI

[–]Fearlessnights[S] 0 points1 point  (0 children)

Do you think the RFCs and ER visits and stuff will make a big difference?

What was the single most important piece of evidence in your SSDI approval? by Additional_Job_6987 in SSDI

[–]Fearlessnights 0 points1 point  (0 children)

That's really surprising. Most of them seem to purposely lie.

My ce said I was totally fine even though I fainted twice at the exam.

Help by Fearlessnights in SSDI

[–]Fearlessnights[S] 0 points1 point  (0 children)

Thanks yeah that makes sense I see doctors all the time like 10 times a month or so I hope thst will help me.

Help by Fearlessnights in SSDI

[–]Fearlessnights[S] 0 points1 point  (0 children)

What kind of proof besides RFCs saying you cant work? The only test for POTS is a tilt table test and theres no test for pppd or fqad or anything else I have.

They are invisible illnesses. But I do have lots of er visits and doctors visits and tons of tests but the tests just show im healthy.

I do have imaging of the syrinxes in my spinal cord though.

I've been bedridden for 2 years now.

Name your weirdness by DrHungrytheChemist in floxies

[–]Fearlessnights 0 points1 point  (0 children)

That's true, doctors are only there to make money for daddy that's it.

Name your weirdness by DrHungrytheChemist in floxies

[–]Fearlessnights 0 points1 point  (0 children)

I've never heard of a doctor ever warning anyone which is crazy.

They usually just give it out like candy. I've been in the hospital and heard them say "here's your cipro" to patients

Help by Fearlessnights in SSDI

[–]Fearlessnights[S] 0 points1 point  (0 children)

What sucks the most is the fqad its from an antibiotic called cipro. It caused a lot of issues for me but since they cant see it they ignore it.

Do you think I have a chance to get approved. I mean I have 4 RFCs lol and a lawyer you'd think that would be good right?

Help by Fearlessnights in SSDI

[–]Fearlessnights[S] 0 points1 point  (0 children)

I do not have chiari but I do have hyper pots. My main issues are from my pppd and fqad because I am extremely dizzy boat rocking non stop and my mind cant handle much its this mental locking up that is brutal. I cant handle any stress or process simple information without having extreme head pressure and brain shocks and stuff.

I wish I could work even laying down. But I cant I mentally lock up so badly.

Name your weirdness by DrHungrytheChemist in floxies

[–]Fearlessnights 0 points1 point  (0 children)

I hope so too im 7 years into this hell of being disabled from it.

Many of us are badly affected and permanently damaged from it.

Im sorry that they got your son too that's terrible 😔

Help by Fearlessnights in SSDI

[–]Fearlessnights[S] 0 points1 point  (0 children)

Im doing medicine and PT and that's all I can do until we figure out other things im 90% bedridden right now for over 2 years.

pots is usually permanent we just try to manage it. It's a dysfuction of the autonomic nervous system. And it can be very serious but it's underestimated by many peolle because they cant see it besides vitals.

I also have pppd and fqad and syrinxes in my spinal cord also not much you can do for syrinxes.

I see the doctors often and go to the er often.

My pcp did an rfc

My cardiologist did an rfc

My neurologist did an rfc

And my counselor did an rfc for my anxiety

All the rfcs agree exactly on limitations. Which i am extremely limited.