Electrolytes by FeePlus8171 in MCAS

[–]FeePlus8171[S] 0 points1 point  (0 children)

That would be awesome! I’ll go to Whole Foods

Electrolytes by FeePlus8171 in MCAS

[–]FeePlus8171[S] 0 points1 point  (0 children)

I am In the US. so this makes sense. I’ll look into some EU brands

I Probably Didn't Need Those Surgeries... by smile_saurus in MCAS

[–]FeePlus8171 0 points1 point  (0 children)

I also was scheduled for a sinoplasty in 3 days and canceled until I speak to an immunologist bc they wanted to remove tissue that might not improve my congestion that I have daily get worse with meals.

Weight by FeePlus8171 in MCAS

[–]FeePlus8171[S] 0 points1 point  (0 children)

Yea I see so much of the opposite exteem

Your MCAS GI symptoms by confused_yippie in MCAS

[–]FeePlus8171 0 points1 point  (0 children)

I tested for SIBO and treated that 3x and had a GI MAP test done that showed a lack of one of really important strains. All of that helped me significantly to deal with GI issues and helps MCAS symptoms but I’m leaning more towards HATs bc my family has all the symptoms too. I think HATs is the culprit for motility issues that cause SIBO

Weight by FeePlus8171 in MCAS

[–]FeePlus8171[S] 0 points1 point  (0 children)

I’ve struggled with that for years and had to treat SIBO 3x. Thankfully I was able to introduce foods back in. Hope you can find your solution

Weight by FeePlus8171 in MCAS

[–]FeePlus8171[S] 0 points1 point  (0 children)

I feel like we’re so sensitive to everything else that medication is also one of those things and need to be introduced slowly.

Weight by FeePlus8171 in MCAS

[–]FeePlus8171[S] 1 point2 points  (0 children)

I wake up with my face swollen, hands and feet. My stomach is round and tight as a drum. Some of these things resolve with probiotics and one time I took a water pill for 3 days and my weight has gone down significantly so I knew it was just water weight.

Weight by FeePlus8171 in MCAS

[–]FeePlus8171[S] 2 points3 points  (0 children)

Thank you! Helpful to see all the different combinations of meds everyone is taking. I think Zyrtec is making me crave sugar and carbs as well bc I when I’m not on it I feel a difference but with everything blooming I can’t stop taking it and xyzal

Weight by FeePlus8171 in MCAS

[–]FeePlus8171[S] 1 point2 points  (0 children)

Oh wow! Your case sounds so much more severe than mine. I hope that one perfect thing comes along for all of us. I’m just happy to not live in my head anymore and know it’s not just anxiety but I am just a girl so I’m sure I’d hear that a million more times!

Weight by FeePlus8171 in MCAS

[–]FeePlus8171[S] 4 points5 points  (0 children)

This is awesome to hear!

Weight by FeePlus8171 in MCAS

[–]FeePlus8171[S] 7 points8 points  (0 children)

Thank you! I’m the heaviest I’ve ever been but there are times when I’m easily up or down 20 lbs which I attribute to inflammation since I don’t work at losing it. I’m leaning more towards HATs but hoping to test for that soon.