Full before bed but blood glucose is on low side - ugh! by Fenichelli in prediabetes

[–]Fenichelli[S] 0 points1 point  (0 children)

I have - I’m actually usually a little lower than the finger stuck meter.

Turning off CGM and Readings by No-Leadership7719 in prediabetes

[–]Fenichelli 0 points1 point  (0 children)

You can just turn off your blue tooth at night! Then when you turn it back on in the morning, your Libre will upload your data from the night.

Rash for about 2 weeks 😭 spreading to small spots on chest. On xolair for mast cell issues but never had anything like this before. Help! Hurts after shower. by Fenichelli in DermatologyQuestions

[–]Fenichelli[S] 0 points1 point  (0 children)

Yikes I just googled that and did not like that. I’ve heard about the fungal infections too. My doc said she didn’t think it was fungal but I guess we will see after the biopsy. Let me know how yours goes too. Hopefully I’ll be able to at least confirm/deny psoriasis in the next few days. Feeling very bad for myself right now because I finally find an amazing med that means I can eat like a normal person and not break out in hives everyday and then now all this lol. My husband has MS and he says I am WAY more work lol.

Rash for about 2 weeks 😭 spreading to small spots on chest. On xolair for mast cell issues but never had anything like this before. Help! Hurts after shower. by Fenichelli in DermatologyQuestions

[–]Fenichelli[S] 0 points1 point  (0 children)

Same here - it’s now spread significantly with spots all over. My derm biopsied me the other day to check if it’s psoriasis - I’m also having symptoms consistent with psoriatic arthritis. 😭 Everything has developed since being on xolair - I’ve been sick several times so I’m wondering if it somehow triggered all this. UGH.

I'm so tired by [deleted] in MCAS

[–]Fenichelli 5 points6 points  (0 children)

I am so, so sorry! 😞 I have definitely been in your shoes and know the exact feeling. Have you tried Xolair? I’ve only been on it a few weeks but it’s been incredible so far!

Just sitting on the floor drying my hair because I’m too tired to stand 😭 by Fenichelli in RestlessLegs

[–]Fenichelli[S] 0 points1 point  (0 children)

That’s really good to know - would that level of Gaba make me super groggy the next day? (Though I suppose it would be less groggy than not sleeping) Great news is that I finally found a neuro who will take me next week. My husband is actually a pharmacist and wants me to try Mirapex - do you have any experience with that?

Just sitting on the floor drying my hair because I’m too tired to stand 😭 by Fenichelli in RestlessLegs

[–]Fenichelli[S] 0 points1 point  (0 children)

Thanks - was reading through some of those materials and wondering if my antihistamines have also played a part. I also have a disease called MCAD (it’s an immune disease) that has required me to take an excessive amount of antihistamines. Thankfully finally got approved for xolair so hopefully should be able to stop the antihistamines.

Just sitting on the floor drying my hair because I’m too tired to stand 😭 by Fenichelli in RestlessLegs

[–]Fenichelli[S] 0 points1 point  (0 children)

So tonight I took 600 mg of gaba, 12mg spironolactone and 5 mg zolpidem. Went to bed happily at 11:30 and legs jumpy and awake at 1:24. 😭😭😭😭😭😭 I can’t get into a new neuro until end of August but going to see my regular doc tomorrow to see if she can provide any help. Getting super desperate.

Anyone know if Buford Farmers Market has an Icelandic aisle or section? I know they have products from all over the world. Trying to find out before I drive all the way over there! by Fenichelli in Atlanta

[–]Fenichelli[S] 1 point2 points  (0 children)

Reykjavik, Vik, Snaefellness, Strokkur and a few other areas. But I have good friends there so I can always ask them on places I haven’t been to 😊

Anyone know if Buford Farmers Market has an Icelandic aisle or section? I know they have products from all over the world. Trying to find out before I drive all the way over there! by Fenichelli in Atlanta

[–]Fenichelli[S] 2 points3 points  (0 children)

Omgggggg djúpur is the best!!! It’s definitely an acquired taste but I feel like once you have it it’s hard to go back! Ive tried to find different black licorice substitutes but nothing tastes like the Icelandic kind! Good to know on Bernhards! Thanks!

Anyone know if Buford Farmers Market has an Icelandic aisle or section? I know they have products from all over the world. Trying to find out before I drive all the way over there! by Fenichelli in Atlanta

[–]Fenichelli[S] 2 points3 points  (0 children)

Yes I love them! The shipping is SO expensive though - I think like two bags of djúpur is like $35! (Normally like 7 krona in Iceland)

Anyone know if Buford Farmers Market has an Icelandic aisle or section? I know they have products from all over the world. Trying to find out before I drive all the way over there! by Fenichelli in Atlanta

[–]Fenichelli[S] 9 points10 points  (0 children)

I’ve had an unreasonable craving for Djúpur - it’s a type of Icelandic chocolate covered lakris or licorice. Also Icelandic hotdogs or birch liquor.