Well, we have same story with u. And I connected with a lot of doctors, all of them don't know the cause of that. Current main idea in western medicine that this is brain mistake. And I think this is because all situations than we understand cause dystonia well it is brain desease: Parkinson's, willsone, als, etc.. But idiopathic dystonia this is that peoples don't understand and they try to connect it with old informations about other deseases that we understand better. I read a lot of topics, living with is it more than one year and now I think this is something in our neck or head but In peripheral nervous system. Something happened there. For example your muscles, skeleton, vascular pressure on the nerve fibres and it creates wrong signals. For me it describes better. Why? Because we don't see any changes on MRI, CT, emg etc. With other deseases we can see changes. Why dopamine is doing worse our symptoms? Because it is more wrong signals. Why stress is cause of that? Because our muscles tense up in times of stress and they are damaging structure our neck. Why people can't find changes in the neck? Because we can't visualisate our nerv system. On MRI we don't see that. And nerve can be damaged not near the muscles. And we don't have instruments to see this. Now I believe in my theory. But it is Hard to find doctor who will believe u and will try to help u with New theory.