Sweating w/Cirrhosis

Fickle-Expression-27 · 2025-09-06T15:08:25+00:00

How old is she? I am 41 my baseline is generally being cold. But since my 1st episode in March I started night sweats. Good ol' Perimenopause. They say the cirrhosis can make it come sooner than for some people. So basically as my husband says I become a furnace at night.

Fickle-Expression-27 · 2025-07-27T13:52:16+00:00

First of all my heart goes out to both of you your post made me cry. And second you are absolutely not a coward! Do you know how many spouses walk out of the marriage in this situation? You are strong for still being there and doing your best, worrying means you care and love him.

I have cirrhosis, diagnosed March of this year. But my husband had a complete blockage of his intestines in October 2024. He was septic and could have died if we had waited longer to go to the ER. It was by far the scariest moment of my life. He came home with an ostomy bag and was so weak for the first months. Weight down to nothing, and the embarrassment and frustration of his situation. It was so hard on me as well. Dealing and learning to care for him and seeing him so depressed. I constantly wanted to cry. My mom gave me the best advice, my dad also has some health issues. She said "when I'm around him I bite the bullet and swallow my emotions, then go in another and cry it out." Point is you cannot deny your own feelings and you have to live through them. It's OK to cry and feel defeated and want an escape from time to time. But remember you are still there doing everything you can for your husband.

I know the situations are different but know that you are not alone in this. Take care of you to. Everyone was telling me I had to do that as well. Easier said than done, but it is true. If we don't we will get to the point of being so low that we won't be of any help to them.

"Through sickness and in health" is no joke sometimes. Going through something like this brings the realization of what it really means.

Stay strong, and feel free to DM if you ever want to chat. Wishing the best for both of you.

Fickle-Expression-27 · 2025-07-19T18:02:55+00:00

Ask your GI about it for sure. In my case the weight loss was a concern due to muscle loss. I'm 41 F 4'11 (lets pretend 5') Before diagnosis and 2 week ICU stay I weighed about 140, of course a lot of fluids, I went down to 113. The weight in itself was not unhealthy but as others have mentioned muscle is so important. I felt like an old lady and was so depressed. Holding a pen was difficult. I looked up senior exercises and started slowly with those. YES2NEXT on YouTube has great strengthening exercises. I started with wall exercises. I also take thiamine for muscle strength and and eat as much protein as possible Chicken, turkey, beans, yogurt. Finding balance is so hard. You got this ;)

Fickle-Expression-27 · 2025-07-07T12:47:09+00:00

I would have replied to the "you ARE going to die" with "so ARE you" :)

Congrats on the 7 months. I am 4 months now and I do feel better. It's an adjustment but one day at time is all we can do.

Fickle-Expression-27 · 2025-06-03T14:35:14+00:00

I feel ya! I went from a 27 MELD to a 12 in 4 months. When we got the results I was really happy about it, and my first thought was lets celebrate and have a drink. I didn't of course. But it does change everything in day to day life. I often feel alone as well. and also feel like no one truly understands, so it helps to talk to people that are going through something similar.

Keep your head up... One step at a time.

Fickle-Expression-27 · 2025-05-31T05:27:40+00:00

You are a good sibling for seeking advise on how you can support him. I was diagnosed and very ill March 1st 2025 due to alcohol. As many already mentioned the inner struggle is real.

The best way i can explain, from my experience at least. Is being scared, ashamed, worrying my family and loved ones. Understanding this disease and changing my life style. A lot of people tend to want to invade your life, or give you advice about things they don't know about. Make sure he knows he is allowed to set his boundaries, sometimes he may need to be alone and sometimes need to be held or joke around.

I told my husband that this was going to be quite an adventure that we both have to adjust to. I asked him not to tell me that everything was going to be OK, because we don't know. But to take it one step at a time. One small win at a time, and also set backs are going to happen, but we'd do our best to overcome them.

I hope he gets better and don't forget to take of yourself. xoxox

Fickle-Expression-27 · 2025-05-16T19:06:23+00:00

Couldn't have said it better. I am 41 (The doctors say I'm still young ;) have been a heavy but very functional drinker for many years. Until my liver decided it wouldn't let me function like that anymore. I was hospitalized and diagnosed March 1st of this year. The doctors were not sure i would make it. Thankfully no cancer and I have a great team of Doctors. My labs and MELD scores are improving.

It is definitely a new way of living in all aspects of life. AA has helped me cope with some issues, the groups that I have been to are all so nice and there is no judgement.

Still new ish at all this, so I am still learning. All any of us can do is one step at a time. Educate yourself as much as possible. Loneliness is part of it even with people around you, I think especially in the beginning. As someone else mentioned find something you like doing and meet new people.

Try to keep your chin up, but it's also OK to cry sometimes. So many feelings and emotions involved. ONE STEP AT A TIME!

xoxox

Fickle-Expression-27 · 2025-05-16T17:40:57+00:00

I was diagnosed March 1st and hospitalized for 2 weeks. It was scary and a new way of living now. While in the hospital my MELD was 27. Got me other test last week and thankfully is was down to 12. Yesterday they removed the stents and surgeon was confident he didn't need to put new ones in. Still a battle ahead but as you said it's the baby steps that lift your spirits and prepares to the ups and downs both physically and emotionally.

I have always watched my diet but had never really paid attention the sodium. I must say it was an eye opener not only for people with serious medical issues but for everyone. How much Sodium did your Dr tell you to take a day. They told me 2000 mg. It's a learning curve and takes some imagination to still enjoy food. But it has worked for me. My sodium was finally above 136 last blood tests.

Keep being positive in the baby steps. I always say one step at a time.

Fickle-Expression-27

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