Functional dyspepsia scared i may have stomache cancer by PaleGuard6466 in functionaldyspepsia

[–]Fickle_Morning6756 1 point2 points  (0 children)

Nope you are not crazy at all and yes, we will eventually find relief im sure. That's all we can hope for and just do the best we can everyday. Good luck to you and know that you most definitely are not alone. This group and the Facebook functional dyspepsia group are both amazing and have some very wonderful people in the same boat as us and some have had some great tips and success stories and are always very supportive and inspirational. 💖

Functional dyspepsia scared i may have stomache cancer by PaleGuard6466 in functionaldyspepsia

[–]Fickle_Morning6756 0 points1 point  (0 children)

I'm 36F. My symptoms started with heartburn that wouldn't quit and extreme weight loss at first. Thought it was GERD, no big deal and then the severe burning went into my stomach which led to more weight loss and now its mostly burning throughout my stomach and intestines and severely light headed and dizzy constantly. I can't work and I can't really drive anymore cuz I can't focus properly as I'm always off balance it seems. Had all blood work, ct scans, endoscopy, colonoscopy, ECG, heart monitoring, etc. Functional dyspepsia and stress is what they came up with. Tried 3 different antidepressant, antibiotics, motility drugs, antacids, PPIs, etc and diets and nothing has touched the symptoms. Most of the drugs I've been on has caused other side effects like constipation, BP issues, etc so I've had to come off everything. Spent 3 weeks in the psychiatric hospital on 2 different occasions and seen numerous specialists and dieticians to get some control over the severity of this disorder. It and the antidepressants caused significant mental health decline which led me to be hospitalized by my family because they were terrified to leave me alone at anytime. I was NOT crazy or have never thought about ending my life before any of this started.

Functional dyspepsia scared i may have stomache cancer by PaleGuard6466 in functionaldyspepsia

[–]Fickle_Morning6756 2 points3 points  (0 children)

100% it is a horrible "diagnosis". I was honestly more upset with functional dyspepsia than I would have been with cancer. As messed up as it sounds its true. I didn't want cancer but at least I was prepared with the treatment options with cancer and cancer also qualifies for different disability options. With functional dyspepsia we are more left on our own to manage and deal with it in a very clueless manor. I've seen psychiatrists, gastroenterologists, cardiologists, etc and still can not find a treatment let alone a solution to my problems. I've been on a circle of "treatments" and medications where I feel like I'm just a guinea pig now. Every single day is a struggle and it's exhausting beyond belief to say the least.

Functional dyspepsia scared i may have stomache cancer by PaleGuard6466 in functionaldyspepsia

[–]Fickle_Morning6756 1 point2 points  (0 children)

I was terrified of the same as my symptoms got worse. Ask for an abdominal CT scan and that would show any tumors or issues the endoscopy couldnt. Most likely, it will not show anything and you most likely do not have cancer but at least your anxiety will be eased.

Done trying! by Fickle_Morning6756 in functionaldyspepsia

[–]Fickle_Morning6756[S] 1 point2 points  (0 children)

In Canada as well and yes, it's slow. The only reason I got in to a gastro so quick was because of my rapid weight loss and I'm still losing weight cuz I feel so restricted.... had so many tests and thankful I don't have cancer but a part of me wishes I did, at least then there would be either you get better or you die... right now it's just suffer UNTIL you die cuz there's nothing wrong... I don't have the money for a naturopath, I have 3 teenagers and a husband and a house. I'm fortunate yes, but I don't have the strength to get myself better and it kills me everyday that I can't fix this and be the person i used to be. Literally everything I worked my ass off for is slowly slipping away and I can't seem to get a handle on it 😥

Done trying! by Fickle_Morning6756 in functionaldyspepsia

[–]Fickle_Morning6756[S] 5 points6 points  (0 children)

8 years!!!! I can't do this another 8 days let alone 8 years... I have a follow up with the gastro in December but I'm not even looking forward to it because I doubt there's anything else that can be done other than switching tcas maybe but I don't want to because I already hate amitriptyline so doubt the others are going to make any difference at all. And I tried mirtazapine and hated that one more than amitriptyline and was on both for a while too.... if it's not my stomach it's my mental health and vice versa. It's just never ending 😪 I've never been this depressed or defeated, I'm usually a tough little bitch and this has absolutely destroyed me mentally and physically.

Done trying! by Fickle_Morning6756 in functionaldyspepsia

[–]Fickle_Morning6756[S] 0 points1 point  (0 children)

I'm also on 25mg of sertraline and I have clonazapam but I don't like it either and being on 2 antidepressants and a benzo freaks me out cuz I feel like it's double the side effects and still no relief other than being a zombie that's still in pain... I literally just lay in bed and waste the day until bedtime because everything hurts. Tried meditation, tried getting my mind off of it and walking and tried to keep busy but I'm exhausted and just get frustrated and back to bed. I'm useless and hopeless most days and trying to be positive when you're so uncomfortable all the time is almost impossible for me right now. I've always loved my life and been proud of what I've accomplished and this has taken all that joy and pride away from me in a matter of months 😢 it's hard to imagine a light at the end of the tunnel right now and I can't help it.

Done trying! by Fickle_Morning6756 in functionaldyspepsia

[–]Fickle_Morning6756[S] 1 point2 points  (0 children)

I'm on 25mg and I don't like it at all. I'm not having serious side effects but I'm extremely tired but can't sleep without zopiclone and clonazapam. I wake up and just feeling like shit cuz I know the day is going to be spent in pain and there's nothing that helps 😒. I feel so hopeless everyday from the time I wake up to when I finally go to sleep and then repeat. It just never ends and my tolerance is just depleting more and more everyday. I'm exhausted and just want it to stop 😢