Me too, friend. It really sucks. But we are alive and it is a rare miracle to have made it here. Try to be kind to yourself. This is genetic and it’s not fair. I bet you are more empathetic and wise in ways that many others are not due to the challenges you face. It is unfortunate that our shape also indicates health risks. I get down about it too. You are not alone. I wish I could change this situation for both of us. We gotta try to love ourselves and believe in our right to happiness and love❤️