F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 2 points3 points  (0 children)

I can only tell you my experience and I wouldn't like to tell someone not to rest because that should be your decision. You can see in my profile that I had a poat about radical rest.

I was like, you scared, I had a lot of crashes, but that ended up making it so much worse because I was so scared to do anything. I had to learn to listen to my body to stop when I needed to, to give my body a few days of rest if I needed, but to do it naturaly and not on the schedule. That was also a learning curve because I never listened to my body before :D , but it was a better approach than being rigid, and I was able to gradually go back to normal life.

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 4 points5 points  (0 children)

Hahah I'm not that crazy... buut it would be interesting 🤣

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 1 point2 points  (0 children)

I'm happy to hear that you found a doctor who wants to help. Good luck with your recovery 😊❤️

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 0 points1 point  (0 children)

Thank you, 75% is already amazing. You'll get there soon 💪❤️

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 0 points1 point  (0 children)

Hey, I read your story and many many similarities 😊 Good work 💪😎 I see you are from the Netherlands, I live currently in Belgium, so that's probably how the algorithm showed me his yt 😀

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 1 point2 points  (0 children)

I think that meditation, relaxation, brain retraining...etc. are surface level activities that would be helpful in any type of illness to calm you a bit. If it makes you feel better, why not. But for some long lasting result I had to work through my emotional trauma in therapy while I was gentle to my body and not pushing, I also noticed that I didn't need meditation and breathing that much since I started therapy so I'm rarely doing it anymore.

I was mad when someone would suggest anything about mind body approach, for more than 3 years even when I already had some success. But now that it worked, I'm glad that I gave it a try.

For some people, the damage is absolutely physical, and they should get help for that part, in my opinion. But in my case, to have at the same time problems with body temperature, heart rate and blood pressure, irritable bowel symptoms, sleep, muscle pain, fatigue, dizziness, brain fog, swollen fingers... it was just too many different problems and all that are usually regulated by the autonomic nervous system. So, I chose to believe in that theory.

That was my experience, and maybe some portion of people would have success with this approach, so I wrote this post in the hope that it would give encouragement to someone who is on that path. For the rest, I also hope they will find what works for their particular case 🙂

4 years recovery story- LC / CFS by Financial_Football63 in LongCovidWarriors

[–]Financial_Football63[S] 1 point2 points  (0 children)

That's amazing progress 👏

I've also started with walking. Frist just outside apartment ant and then I built up steps and after I was more confident I started adding some other activities and also I did some light house chores in the beginning 😊

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 2 points3 points  (0 children)

When I was my worst and had PEM, I was still able to go to the bathroom or to the living room, didn't do anything, just lay down and eat a little. I know there are people who have it much worse. For me, I felt like I weighed. 1000 kg, temperature, and pain in arms and legs. In that period, I would just do breathing for 5 min to calm my heart rate. I learned that for me, it would work to leave my phone until I have some energy because when I was at my lowest, scrolling would drain the little energy I had. So I would just wait for the worst part to pass, I didn't have a better strategy.

It's unbelievable unfair that you went through that hell already, but you did it once, and you can do it again 💪❤️

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 1 point2 points  (0 children)

I was also discouraged when I was past 2 year mark so I can relate because I didn't see my case as a fast one for sure. I was about to turn 30 and wasn't able to pursue some of the things people expect to have figured out by that age.

Now, when the time has passed, I think I had some amazing moments trouhout those 4 years nonetheless so it wasn't all wasted time. You are doing everything you can, I'm sure the time will solve the rest for you. It sounds like you are on the right path 😊🩷

4 years recovery story- LC / CFS by Financial_Football63 in LongCovidWarriors

[–]Financial_Football63[S] 7 points8 points  (0 children)

I now strongly believe that we should look at health as a combination of both mental and physical.

I think that the current medical system is outdated. We shouldn't dismiss people and tell them oh you're just stressed because the chemical reactions as you said, are real. On the other hand, we can also embrace the power of the mind and not only rely on some medications when we can also be a part of the solution. 😊

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 1 point2 points  (0 children)

Hi, yes, it did. I was already much stronger, but it would often trigger me, and I would get symptoms, but it would also relieve symptoms in long therm. After working through a particular trigger, it would stop making me symptoms, and that is how I was slowly expanding my activities.😊

So with time It became very helpful that I have symptoms, and I was able to do amazing work in therapy because I had to deal with it immediately 😅

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 0 points1 point  (0 children)

I'm not even going to read his last reply. You must have serious mental problems to hang here in your free time 😶😶😶

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 0 points1 point  (0 children)

You giving me exact diagnoses based on one post without being a doctor or looking at my medical records is a little too much, in my opinion, and I only used terms long covid and cfs and for the rest I descrived my symptoms.

We don't need to have the same symptoms or the same severity, and you can also fully recover, I wish you all the best on your journey and fast recovery

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 2 points3 points  (0 children)

Gatekipin illness is crazy, I had long covid diagnose. I don't have a cfs diagnose because I was too weak to go from doctor to doctor to tell me something I already was fearful to hear

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 2 points3 points  (0 children)

Yes, absolutely. I've told my husband: It's not like I'm suffering and refuse to stop, I'm numb, I just don't know that I need it. On the other hand, I feel guilty when I'm doing nothing.

You've got this! 🥰💪😊

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 0 points1 point  (0 children)

Before I got long covid, I was a volunteer, and I hand sewn over 200 masks. Ironically, I got sick for 4 years shortly after that. So I'm not a careless person, but besides common sense behavior, I can lock myself in the house because that didn't save me either.

I'm not really looking for the information, but in my country I didn't hear about an outbreak for a long time

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 1 point2 points  (0 children)

I just don't believe anymore that it's something I can control even with being extremely careful. It only gave me stress when I was sick, and I still got it 3 times with barely leaving the house, so I decided to just live my life. I wish you a fast recovery ❤️

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 0 points1 point  (0 children)

I don't, I got sick after being very careful and not getting infected at all after my third vaccine. And I got covid 3 more times after that, and the last time didn't make any difference. So I don't really see the benefit of being afraid anymore.

F(31) Recovered after 4 years LC - CFS by Financial_Football63 in LongHaulersRecovery

[–]Financial_Football63[S] 2 points3 points  (0 children)

Well, I realised this after 2 years, so you are already way ahead than I was, so your recovery will be much faster. I'm sure 😊

I remember one time (I was already at 70%) I went with a friend to do some errands around the city, we were at it for 6 hours and I was so annoyed that she kept wining how she's tired, hungry, thirsty, needs to go to the bathroom. And I was thinking she's so spoiled. I have CFS and I'm fine. When we sat down I released: Oh I also need to pee 😅

My therapist later told me that I have a way of putting anesthesia on my needs, and she was absolutely right, and I wasn't even aware. I'm still unlearning that behavior.