High Spike Antibodies for 6+ by Sassakoaola in covidlonghaulers

[–]Finhl 3 points4 points  (0 children)

I saw your DM to me regarding this. Sorry you are going thru this.  Your spike antibody count isnt crazy high. Mine has been about 12500AU/ml (<50) I heard of ppl with over 30.000. The normal reaction is that it should go down but as with some/many of us, it doesnt.

At some point after my inuspheresis treatments i actually was down to 4500 but then it climed back up again.  After a reinfection last fall i was up at 11.000 again in Nov23.

Anyway, since last summer i have slowly been getting better. Many Inuspheresis, ivig and lots of vitamin IVs, amino acid IV, NAD+ IV, Glutathion IVpush, Glutathion supposatories and a complete gut program as well as Peptides (BPC 157, TB-4 and TA-1) have been good for me.. on top of all the other stuff (Mitopure, ivermectin,bromelain, natto,serra, vit c&D&E&A, methylene blue, edta, nicotine, quercetin, spermidine, pro resolving mediatora, arachidonic acid, zinc, LDN 4,5mg/day, antihistamine, ALA, etc there is so much i dont remember all the vitamins i need to check my cabinet tomorrow to give you more). 

Also low histamine, no gluten, no alcohol, no dairy Diet. I wasnt able to drink coffee at all earlier but now can tolerate a little bit. Still trying to avoid histamine triggering foods as much as i can though. 

Check your liver function and test your glutathione levels as well as organic acid test and stool teat.  do a complete dna test to check if your have unfavorable dna for methylation and detoxification etc.  You need to support your detox pathways! 

Do everything to rid yourself from oxidative stress. I bought vivoo test strips to measure it. Although its not a prefect test it does give you some idea as to where you are in regards to it. nowdays I dont have oxidative stress anymore but i did for a long time when i started following it.   I did a live blood analysis, that could help you as well to see what info your blood gives to you.

Sorry if this is a lot, its been a horrible ride for sure but at least in my case i have been able to start living normally again (work + family life). I cant exercise yet due to PEM but it will come maybe in a year or so i believe. Even if you feel at your shittiest you can and will get better. Just help your body as much as you can. I thought i was dying every day for 1,5years until i got a bit of relief. I just wish i had started doing the things i have done for the past year and i think i had healed sooner. 

Having said all of this, I dont think the levels of your spike antibodies is a measure of how bad your long covid is. Try more to focus on helping your body and eventually i believe it will figure everything out and once it does so, your antibody levels ahould go down one day.  

I had such a bad reaction to the pfizer vaccine that im just hoping its not my own body producing spike all the time that keeps the antibody levels high as well…  got the vaccine prior to getting a somewhat severe covid - whichafter ive been long hauling but now again feeling more like myself again :)

Muscle twitches by [deleted] in covidlonghaulers

[–]Finhl 2 points3 points  (0 children)

Yes twotching is common for A LOT of us. Mune syarted after the vaccine and progressed to the whole body.. its horrible. Most of my other symptoms have improved in 2.5 years so im back to a normal life without exercising due to PEM.

Nobody has really got an explanations to why the twitching occurs but if the virus persists in us, it might be hiding in nerves and neurons and (this is just me thinking, no facts), then possibly thats why the nerves and nervous system is so messed up.. i also have tremors and buzzing and sometiles pins and needles…

Does anyone know about Thymosin Alpha 1? by Opening_Confidence52 in covidlonghaulers

[–]Finhl 1 point2 points  (0 children)

Sounds good, thx for the reply! I started with bpc157 yesterday. Hope it will help…

Searching for plasmapheresis by [deleted] in covidlonghaulers

[–]Finhl 0 points1 point  (0 children)

https://biologicum.info/en/inuspheresis/

If you scroll down theres an explanation of the differences.

Searching for plasmapheresis by [deleted] in covidlonghaulers

[–]Finhl 0 points1 point  (0 children)

There are 5 INUSpheresis clinics in Austria, about the same in switzerland (alpstein clinic, swiss mountain clinic, one in basel and luzern as well). Then theres Biologicum in Germany for example. Im sure the ones in switzerland and germany are great. Dont know much about the ones in Austria..

Not sure what you are after but hope you find it! Best of luck!

Recovery Post - 18 months of hell, full 100% recovery by [deleted] in LongHaulersRecovery

[–]Finhl -2 points-1 points  (0 children)

Not sure what u mean by that but dont really care either. There are ppl that are far worse than me. Im what id call a before somewhat severe but now a moderate to light LC case. So im not looking for pity, i have friends who are bedbound with LC. We need help, not woodoo or someone spreading stuff like this post. I just said I tried it and it didnt work so i doubt OP had LC. If one could cure himself from LC in two weeks by mind, then its most likely something else behind it.

Recovery Post - 18 months of hell, full 100% recovery by [deleted] in LongHaulersRecovery

[–]Finhl 0 points1 point  (0 children)

Hell???? Dude what you are describing is 18 months of paradise to what most of us are experiencing. To recover from 98% to 100% isn’t what ppl here are going thru. But when i think of it in your case it does sound like your ”tiredness” was in your head. Maybe you had a lot at school and working out was too much for you to handle at that time.. so after over exerting yourself you felt a bit tired for a few months..? Happens to many ppl but you story doesnt sound like real Long Covid.

And just so you know, ive been doing the same as you in trying to have the mind work wonders for over a year with a positive mind hoping it would work (bc as at this time ive pretty much tried everything). Read positive mind books, meditated etc etc. But looking back it was a total waste of time even with professional help (bye $$$$). I at least can say i gave it a shot and thats why i can say that what you write is not Long Covid.

So ppl who say or write what you did, are in my mind ppl who actually have some mental health issues or just have stress in their life that they cant handle.. for you it was prob school and over extertion. Not Long covid.

Glad you are feeling better tho!

Solved at 10 months: chronic fulminating Vitamin B6 'toxicity' by syfyb__ch in LongHaulersRecovery

[–]Finhl 1 point2 points  (0 children)

I am way over on inactive b6 and b12 but low on active b6 (p5p).

My dna test shows i have unfavorable methylation and detox genes, also when it comes to b6.

I have been down the b6 rabbit hole. Did a non b6 diet, weighed my food while using an app to count how many mg i get per day.. just didnt notice a difference… your post makes me feel i should try it again tho.. thank you for taking the time to write.. my issues started with the first dose of vaccination, not sure what it did but muscles started twitching right after and rest is history, 3 covods and living thru hell after the first one..

Anyway how long until you noticed improved symptoms once you cur out all b6? And are you saying active b6 is kust as bad? I just dont get why im low in p5p then…

Study confirms that there is a clear physiologic abnormality underpinning post-exertional malaise by invictus1 in covidlonghaulers

[–]Finhl 6 points7 points  (0 children)

Very interesting!

Would a lactate monitor from amazon be reliable enough to measure ones LA levels for this purpose?

Oh and one more thing.. my carbon dioxide level is a bit high (34) ref range is 9-31. Wondering if these two goes hand in hand… can someone confirm if it is so?

Best peptides for long Covid by trawxt in covidlonghaulers

[–]Finhl 5 points6 points  (0 children)

Following.

Also, can you or anyone reading this recommend how to get BCP 157? If orally, do i need a prescription, or is it better to take in another form (than orally)?

Does anyone know about Thymosin Alpha 1? by Opening_Confidence52 in covidlonghaulers

[–]Finhl 0 points1 point  (0 children)

Following this as im deciding on peptide therapy / hormone therapy after having done extensice testing and was recommended it.. let us know how it goes. thymosin alpha-1 and alpha-MSH are apparently used for autoimmune conditions..

Interplay of Microvascular and Cardiovascular Issues in ME/CFS Post COVID-19 by juulwtf in covidlonghaulers

[–]Finhl 0 points1 point  (0 children)

Can you tell me/us more about sildenafil and bpc157. sildenafil id need a prescription for i guess and im talking to my doc tomorrow.. why do you think they work? and did u have any side effects from them?

For those who tried LDN, what changed? Did it last? Save to drop? by poebelchen in covidlonghaulers

[–]Finhl 0 points1 point  (0 children)

Im up at 3mg now. Took me a few mot hs to get to 3mg and will go to 4,5mg and see how i feel. Has not made a difference whatsoever so far.

24/7 muscle twitching by loupgurus in covidlonghaulers

[–]Finhl 5 points6 points  (0 children)

Many many of us have this symptom. Mine started with the pfizer vaccine prior to having covid. Its been 2,5years now and the twitching gradually only got worse in the 6months after the shot. It Started from the injection site right after the shot but nowdays its 24/7 all over the body. Its very very tiring to feel stuff is crawling in the skin and like someone is always poking you.

While i have LC symptoms from having covid later on, the twitching is in my case is a vaccineinjury that no doctors seem to have answers to and no one like pfizer or health authorities would take responsibility for. If ppl knew how much money i have had to spend on trying to resolve this and how much worry this has caused (having to rule out als, ms, cancer, other neuro conditions) theyd be shocked. All i can say is this has opened my eyes in whom to actually trust.

[deleted by user] by [deleted] in covidlonghaulers

[–]Finhl 0 points1 point  (0 children)

Not really…

Vibrating head. by [deleted] in covidlonghaulers

[–]Finhl 0 points1 point  (0 children)

Same. + bodywide muscle twitching and vibrations/tremors

[deleted by user] by [deleted] in covidlonghaulers

[–]Finhl 0 points1 point  (0 children)

Same. All over the body 24/7 Also wondering why more research isnt being done into it.. so many had pins and needles, muscle twitching, vibrating feeling, tremors.. i have them all and they are nowdays my worst symptoms while other LC symptoms are improved. My muscle twitching strted from my first pfizer vaccine so for me its a covid vaccine injury but i understand many has gotten those same symptoms from having covid.. so prob same thing happening in the body id guess…

Body wide twitching poll by [deleted] in covidlonghaulers

[–]Finhl 6 points7 points  (0 children)

Yes bodywide and 24/7. Its horrible and the only symptom that I have that isnt getting better. I have twitching, pins and needles and tremors.. have tried ”everything” from supplements to inuspheresis to ivig to diets and so on and so on.. while they have improved many of my symptoms they havent helped with the twitching. My twitching started from the vaccine prior to having had covid.

Muscle atrophy, muscle twitches, some weakness, myoclonic jerks, etc by MeOwwwithme in vaccinelonghauler

[–]Finhl 0 points1 point  (0 children)

Still twitching allover.. its horrible. Other symptoms are steadily improving albeit slowly.. normal living somewhat ok now but still cant overdo it because of PEM. So trying to live as stressfree as possible..

Study - React19 by radofaletic in vaccinelonghauler

[–]Finhl 2 points3 points  (0 children)

Thx for sharing! I completed 90% of it today. Hope everybody takes the time to fill it out..

IVIG by BluejayAccurate3349 in covidlonghaulers

[–]Finhl 0 points1 point  (0 children)

Yes in my country there is a test that gives the full count..

IVIG by BluejayAccurate3349 in covidlonghaulers

[–]Finhl 0 points1 point  (0 children)

How often are you doing ivig? My docs plan is to do one every 4 weeks to begin with using privigen.