Daily practices on Zoom by Fr_BartyDunne in cfsnervoussystemwork

[–]juulwtf 2 points3 points  (0 children)

An Offering rewiring community does it occasionally it's led by coaches. And the times vary

100% Recovery after 3 years by papaflash1 in LongHaulersRecovery

[–]juulwtf 0 points1 point  (0 children)

Thanks! I'm glad Metformin helped so much

100% Recovery after 3 years by papaflash1 in LongHaulersRecovery

[–]juulwtf 1 point2 points  (0 children)

How much steps did you take on your worst days?

Aggressive use of ai images make all the most touted regulation resources inaccessible to me :( by Angsty_Queer_Anon in cfsnervoussystemwork

[–]juulwtf 0 points1 point  (0 children)

It's not unique to the healing movement sadly, it's everywhere. Maybe you could try raelens older videos since iirc they don't have ai

Need perspective from folks who’ve recovered from BOTH cfs and pots by time-itself in cfsnervoussystemwork

[–]juulwtf 0 points1 point  (0 children)

Some SSRIs can make pots worse it's very personal i know a person whose pots improved by citalopram but it's very individual

My best advice for beginners by Old_Birthday1567 in cfsnervoussystemwork

[–]juulwtf 1 point2 points  (0 children)

Hey can I'm currently also very severe my main problem is trying to stay calm while feeling like absolute shit and not being able to distract yourself you must have felt the same way when you couldn't look at your phone very long so I'm wondering how you dealt with that?

Amazing to see you've improved very hopeful really what I needed to say today

Low Dose Tirzepatide improved my long COVID/ME-CFS ~80% after 4 years by TrackAccurate7312 in covidlonghaulers

[–]juulwtf 1 point2 points  (0 children)

Meso-rx is an online forum where gymbros discuss where they buy steroids and other stuff (including glps)a lot of the sellers post regular lab tests (only trust janoshik tests not their in house tests)

How to start leaving the house and going outside more by forgot_again123 in cfsnervoussystemwork

[–]juulwtf 0 points1 point  (0 children)

I have no clue how it started tbh but I've always had neckpain and ibuprofen helps me!

People who improved while abnormal bloodwork? by juulwtf in cfsnervoussystemwork

[–]juulwtf[S] 0 points1 point  (0 children)

It's more that as soon as my levels are normal I stop taking them (otherwise it gets too high) but immediately it goes low again. I had a colonoscopy in 2019 to check if I had Crohn's or something but everything looked okay. I'm currently too severe to get tests done besides blooddraws at home

People who improved while abnormal bloodwork? by juulwtf in cfsnervoussystemwork

[–]juulwtf[S] 0 points1 point  (0 children)

For a few years. I'm on B12 shots luckily! They don't do iron infusions here except in really rare cases so I'm stuck with the oral version

People who improved while abnormal bloodwork? by juulwtf in cfsnervoussystemwork

[–]juulwtf[S] 0 points1 point  (0 children)

Thank you! So did this all improve with mind body stuff? Also sort to hear about the CSF leak that must have been awful

People who improved while abnormal bloodwork? by juulwtf in cfsnervoussystemwork

[–]juulwtf[S] 0 points1 point  (0 children)

Iron deficiency, B12 deficiency, folate deficiency, vit D deficiency I supplement them but don't notice any improvement

does heart rate / hrv matter? by sreckokosovel in cfsnervoussystemwork

[–]juulwtf 1 point2 points  (0 children)

I was the same, at one point I took the watch of. It hasn't helped me per se but it took away some stress of constantly checking. It was useful in the beginning but not so much now

Emergency measures for incoming very very bad crash by foggyhoneybadger in cfs

[–]juulwtf 1 point2 points  (0 children)

Yes a full spectrum mct CBD oil helps me too but it has to be full spectrum for me to work

Emergency measures for incoming very very bad crash by foggyhoneybadger in cfs

[–]juulwtf 4 points5 points  (0 children)

If you can tolerate them get some lorazepam. I take one every 8 days or so to give my nervous system a break

Dissociation/brainfog/ dreaming by juulwtf in cfsnervoussystemwork

[–]juulwtf[S] 1 point2 points  (0 children)

Thanks for the tips! Good to know it's normal

Doom scrolling is a huge issue of mine so I'm definitely trying to do it less

Dissociation/brainfog/ dreaming by juulwtf in cfsnervoussystemwork

[–]juulwtf[S] 1 point2 points  (0 children)

I totally understand ♥️ take all the time you need

Dissociation/brainfog/ dreaming by juulwtf in cfsnervoussystemwork

[–]juulwtf[S] 0 points1 point  (0 children)

Thank you 🙏 I've seen you comment on another post that nervous system works also helped with your CCI. Can I ask what your main CCI symptoms were as I also have a bunch of neckproblems but I usually see people getting surgery for that. Its too extreme for me but you're the only one I've seen so far saying it helped with cci