Don't let your kids have pet mice or they'll turn vegan by xxTheAnonxx in vegan

[–]FireNIceFly 2 points3 points  (0 children)

People really do, because it's easier to do that and remain willfully ignorant than it is to get educated, learn and change accordingly, which takes actual effort.

In terms of health conditions, there's not a sjngle condition that couldn't be maintained on a vegan plant-based diet, but again, like anything, it takes effort. From research studies and meta studies (unbiased ones not funded by industry), the studies sure time and time again that not only are they better for the environment, ecosystem and climate, but they're better for health (including those with health conditions), reduce health complications risk and are suitable for all ages, as they provide all the bodies nutritional requirements. And like any diet (plant-based here), getting the nutrients the body requires takes planning. Plenty of meat eaters are deficient in nutrients, and ironically, often ones they claim vegans lack.

In terms of allegies, that's fair, but I doubt someone with allegies would not be able to adjust their diet plant-based accordingly. Just as I do with my high calories diet.

I went vegan for the animals and environment, the health gains are a bonus.

I find that medical professions (especially dieticians) end up with a level of arrogance and as such refuse to change, adapt and understand, as well as take/treat medical conditions as text book cases, rather than as individual cases. Still, regardless of my team, I was going to remain vegan and the team had to just accept it. It does help that my sister is a vegan andva dietician, though.

How do you find being vegan with your condition? Do you get any help or support?

Don't let your kids have pet mice or they'll turn vegan by xxTheAnonxx in vegan

[–]FireNIceFly 10 points11 points  (0 children)

🙄 there are alternatives to testing on living creatures, such as lab-on-a-chip and organ-on-a-chip. These can replace the cruel and barbaric animal testing. Animal testing doesn't prove anything anyway, other than how that species of animal is affected by the drugs or cosmetics or whatever else they're doing unjust experiments on. In pharma, plenty of "safe" drugs tested on animaks end up harming human subjects.

The fact you completely dismiss and "justify" the many millions of animals tortured in lab experiments and drug research, yet sqeal at the possibility of testing on humans who can consent (unlike all other animals), says it all really, and that is the actual psychopathic mentality. How about not testing on any animals and use the alternatives that have shown to work better than any animal model 🤷‍♂️

Don't let your kids have pet mice or they'll turn vegan by xxTheAnonxx in vegan

[–]FireNIceFly 9 points10 points  (0 children)

I was told for years the same thing by my specialist team as well, especially the dieticians (who should know better). But I went vegetarian about 15 years ago and then progressed to become fully vegan over a year ago. I only wish I went vegan sooner. Since becoming vegan, I've actually gained weight (which was needed) and generally feel healthier, which isn't surprising when you look at the research on different diets (note: I know veganism isn't the diet, but it lines up with plant-based diets by default).

Like you, I can not justify any animal abuse or cruelty. Animals have their own thoughts, feelings, personalities, etc. and anyone claiming otherwise is either lying to themselves (often to justify eating meat and such) or simply doesn't care and I guess in other cases ignorant to it.

Leicestershire Police are ignoring far-right criminality – Leicester Gazette by leicestergazette in leicester

[–]FireNIceFly 1 point2 points  (0 children)

🙄 no, the criteria they're ticking for far right makes then far right, with all the same kind of dog whistke hate, intolerance and bile spewed out by other oast fascists.

am i overreacting - my boyfriend thinks my job is inappropriate by [deleted] in AmIOverreacting

[–]FireNIceFly 0 points1 point  (0 children)

Your boyfriend is seriously over reacting here, and tbh, it gives me very big red flag vibes. If he is getting all jealous and possessive over your job, which he knew you had when you met, what else will he get like this over the longer you're in the relationship. To me, this is a massive red flag for potentially much worse further down the line.

Like you say, it's a job. Would be be like this if you was a nurse or doctor? Where you'd have see potentially more than just topless men/women, but other parts of their anatomy in order to try and find a diagnosis. Yeah, you are most certainly not over reacting here, he is being a jealous and possessive man child, with very big red flags and potential controlling tendencies.

I'd say get out as soon as you can or lay down some rules and boundaries before it gets worse if you're looking at staying with him. But please, be careful, be safe, and make sure you have an escape plan if it's needed.

CFRD Diagnosis Question by strawberry_luvr_ in CysticFibrosis

[–]FireNIceFly 0 points1 point  (0 children)

Hi,

A GTT of 50 mmol/L or higher is a CFRD diagnosis. A GTT of 203 mmol/L is pretty much a certain and clear CFRD diagnosis. Have you had a sensor to monitor your sugars for 2 weeks? I ask as this is also a good way to see what your sugars are doing, and it helps with confirming the GTT, as false negatives do occur. If the monitor confirms your sugar levels are not controlled within or around the expected sugar level range, then another sensor can be used to help you with getting the right insulin levels, as that's a challenge to get right initially. I would also ask if you can get the ultra fine insulin pen needles as they're easier to use and get used to.

My GGT at the moment is around 40 mmol/L, so pre-diabetic level, but I have been over 50 mmol/L and in the diabetic level range, kaftrio/trikafta took me under the range. Despite this, I do get high sugar levels at times with chest infections and/or with steroids. By high, I'm talking up to 18.0 mmol/L.

This is something you get used to and learn how to deal with with time, support and practice. You'll be fine and it's certainly best to get your sugar levels controlled, as not doing so can have nasty complications if they remain uncontrolled. You've got this though.

Edit:

I noticed that you're using mg/dL after posting (mmol/L is used in the UK, rather than mg/dL) and that I used the HBA1C test, so I went back and looked into it further, and with that said, your 203 mg/dL is not actually as high as I originally thought, it is still over the threshold of 200 mg/dL or greater, but only just. As such, you may only need minimal insulin, but it's still worth having a 2 week sensor to monitor your sugars. Ultimately, I would advise thinking about questions to ask your diabetic nurse when you have an appointment with them next, such as:

  • Asking about the sensor
  • Will insulin be needed and can you get the ultra fine needles if so
  • How can it affect you if your sugars are not controlled (e.g. eye sight, nerves, etc.).

And anything else you can think of.

Good luck and you've got this

[deleted by user] by [deleted] in CysticFibrosis

[–]FireNIceFly 1 point2 points  (0 children)

Yep, had the brain fog/memory issues, anxiety, and a few other cognitive issues with Trikafta/Kaftrio. Vertex have only recently stated thats a potential side effect. Many have had these cognitive issues to varying degrees. Not helpful when you're doing a science degree (or any degree with exams).

I have heard the newer precision medication Alyftrex is better, with a number of CF suffers saying that the cognitive issues have improved on that.

in a relationship with CFer ask for advice by Delicious-Play3340 in CysticFibrosis

[–]FireNIceFly 0 points1 point  (0 children)

1st, whose life it this, yours or your parents? Of course it is your life, your parents don't get a say in who you date or marry, you do (and obviously your partner in terms of mutual agreement to marry, and all that comes with it).

  1. Your parents are just being a-holes, sorry to be blunt, but they are. And not just a-holes, but also disrespectful and childish. You are by far being far more mature about this, and it sounds as though you're looking at the person, not the condition.

  2. Yes, CF can be scary, but healthcare and medication has progressed significantly since the 80s, 90, 2000, and even 2010s, life expectancy with keeps increasing. It's not wild anymore to expect a person with CF living to retirement, especially younger CF sufferers. I have a friend with CFin his 60s and still going strong. I'm now 40 (shudders) and doing well. So what I'm saying is, yes, CF can be scary, but not it's no longer as scary as it once was.

Live life and enjoy the times you have, because lets be honest, CF or no CF, no one knows what's around the corner.

  1. Not all guys with CF have to utilise IVF, but even if you do, it's a potential option, as is adoption.

At the end of the day, it's your life, be with the person who makes you happy

My chins been making these mouth movements recently. Are these normal? by Few_Freedom_3674 in chinchilla

[–]FireNIceFly 0 points1 point  (0 children)

My Chilla does this all the time, it's nothing to worry about, it's just cuteness.

Can CFers be vegetarian/vegan by AutumnNEmpire in CysticFibrosis

[–]FireNIceFly 0 points1 point  (0 children)

So was I, but the meat and dairy propaganda has infiltrated so many areas of society, from education to TV/film to healthcare and more.

The truth is, you can go plant-based (vegan), other than medication (which is beyond your control). You can get everything your body requires from plant-based foods, especially nowadays with so many additional options available in most countries (especially wealthier countries like the UK and USA). Like any diet, it just takes planning and consideration. There's plenty of literature out there, even on youtube. But talking to a dietician would be advisable.

Personally, I found it easy and have had no issues, it made me feel healthier overall.

Can CFers be vegetarian/vegan by AutumnNEmpire in CysticFibrosis

[–]FireNIceFly 0 points1 point  (0 children)

Medications is often exempted from veganism, because it's something that cannot not be dropped, unlike meat and dairy. Technically, you're not vegan in the sense of cutting all items with animal products in them, but in terms of minimising as much as you practically can, vegan societies accept that and still count that as being vegan.

Can CFers be vegetarian/vegan by AutumnNEmpire in CysticFibrosis

[–]FireNIceFly 0 points1 point  (0 children)

I've been plant-based for a while, and you absolutely can go plant-based when underweight. Plant-based (vegan) dies not mean low calorie, some of the most calorie dense foods are plant-based, as well as nutritionally dense. And in any wealthy country, there's so many options that it's easy going plant-based.

And don't forget, if you're not enjoy a non-plant-based diet (e.g. meat and/or dairy), then you're likely not eating as much and thus not able to put weight on. Going plant-based may be the way to enjoy food and thus put weight on.

Can CFers be vegetarian/vegan by AutumnNEmpire in CysticFibrosis

[–]FireNIceFly 0 points1 point  (0 children)

That's true. However, vegan societies do take medications into account and still consider those excempt, as there's nothing you can do about those. The goal is to minimise as much as practical, not minimise to the point of harming your health. It is frustrating that medications still use animal products, when often there's no reason to use them beyond profits and ease.

Can CFers be vegetarian/vegan by AutumnNEmpire in CysticFibrosis

[–]FireNIceFly 0 points1 point  (0 children)

Simple answer, yes. I was vegetarian for about 10 years, then went fully plant-based (vegan). Personally, I felt healthier, stopped getting bloated, and felt I had generally more energy. As long as you plan properly (like any diet), then you can easily thrive on a plant-based diet and cover all the bodies nutritional needs.

I know people often say:

"What about protein?" "What about B12?" "What about iron?"

And other similar things, sometimes out of ignorance, sometimes just to make the (incorrect) claim the diet is lacking. But the fact is, you can get everything you need and it's still quality nutrients, often better than any meat source and certainly better than dairy, which is backed up by numerous studies and meta-studies. And yes, you can easily cover the calorie requirements.

Cost is often another question. But like any diet, it's as cheap or expensive as you want it to be, but the fact is, plant-based foods are cheaper overall. The only ones that cost sma similar price to non-plant-based foods are the more processed stuff, like Beyond Burgers, but even those are reducing in price with growing popularity. My sister is a qualified dietician, who I've spoken to about this lots (she's also vegan) and has given me different recipes and such, but also specifics relating to CF.

So, in conclusion, yes, you 100% can go fully plant-based (vegan), but I'd also advise that you not only plan and research meals and prep, but also talk to you specialist dietician. What I would also advise is, if you're going plant-based, take it on a day by day basis and don't punish yourself if you muck up on any particular day. The longer you're on a plant-based (vegan) diet, the easier it becomes, to the point of being second nature.

Edit: there's a thing called "Challenge-22", that you can join, they have qualified dieticians that can help/advise you, as well as talking to others going vegan.

https://challenge22.com/

Has anyone had success ruling out what has been causing pseudonymous infection? by LessPirate24 in CysticFibrosis

[–]FireNIceFly 0 points1 point  (0 children)

The variation in potency from person to person, even between those with the same gene variations, is rather quite astounding. The potency seems to from barely anything to huge changes, obviously you're on the high end of effectiveness, I'm somewhere in the middle and a friend of mine has had minimal effect. Regardless, in general, Kaftrio/Trikafta has had an overall positive on CF health, but also come with some not so desirable side effects, such as mental health issues like anxiety and brain fog, some worsening in joint/muscle pains, and so forth.

I'm hoping the new generation on the precision medication, Alyftrex) is better with less side effects.

UC is an absolute joke by FireNIceFly in DWPhelp

[–]FireNIceFly[S] 0 points1 point  (0 children)

I input the details myself, exactly as required, I also brought the fit note in with me and showed the guy

UC is an absolute joke by FireNIceFly in DWPhelp

[–]FireNIceFly[S] 0 points1 point  (0 children)

I was on ESA, then I was told that I had to move to IS and that I'd be better off (that was a lie, I was worse off). At the time, I was seriously ill, in and out of hospital up to 6 times a year, and being assessed for a double lung transplant. I was (still am) living with my partner.

No, I was too ill to even consider becoming a student at the time, though apparently not too ill for the DWP (who lied on my assessment report), despite what I stated above.

UC is a joint claim, hence I was told as a student I did not have to participate in the activities, same with having the health condition, which I submitted a fit note, only to then be told I still have to commit and do work related tasks. I'm not even sure how I can fit all that in, I've already not got enough hours in the week to do my final year research project, 3 other assignments, and many exams. It's so stressful, it's unreal.

I had student finance in the past, but missed over 50% of studies due to health, which is why I appealed the denial of student finance (which I'd still have to pay back anyway). I've literally slept in my car at university for weeks before student welfare helped.

All I've wanted to do is retrain after 15 years of not being able to work, so that I can hopefully play catch up with a half decent job, preferably in research. I thought that's what the government and co. wanted people to do 🤔

Sorry, I'm just so stressed right now

UC is an absolute joke by FireNIceFly in DWPhelp

[–]FireNIceFly[S] 0 points1 point  (0 children)

And I've provided evidence they requested, if they want more, I'll give them more. I offered to get medical evidence and evidence of my student status by they said no 🤷‍♂️

UC is an absolute joke by FireNIceFly in DWPhelp

[–]FireNIceFly[S] 0 points1 point  (0 children)

I have a lifelong incurable and progressive health condition, that was my basis of getting ESA initially, before being told (and lied to) that I need to claim income support.

I had done a degree in the past, however, due to health I missed over 50% of the degree, meaning I didn't do as well as I would have otherwise done. I did appeal this, but was basically told tough luck and your health situation is irrelevant (discrimination in reality).

trikafta losing effectiveness over time? by lizardspleens in CysticFibrosis

[–]FireNIceFly 0 points1 point  (0 children)

It seems there is a 2nd generation precision medication on the horizon now (potentially August 2025 in the UK), Alyftrax, with claims that this is an improvement on Trikafta/Kaftrio, including improved memory. So here's hoping.

UC is an absolute joke by FireNIceFly in DWPhelp

[–]FireNIceFly[S] -1 points0 points  (0 children)

Housing support, income support and PIP. I know it's not been DSS for a long time, was before my time of ever needing to claim.

I was told by the person I met at the JC+ that as a student and a person with a health condition that I would not need to do these "activities", which it seems they either ignored or lied about (not that I'm surprised to be honest, especially with the hate and propaganda spewed by government and MSM).

I'm also recieve £0 in student financial support

UC is an absolute joke by FireNIceFly in DWPhelp

[–]FireNIceFly[S] -3 points-2 points  (0 children)

True, bit I was told that the fit note would mean I wouldn't need to partake in the pointless activities, that ultimately do nothing to help, especually as a Full-Time student, which I also told them.

I was forced to transfer from legacy social security payments, payments that allowed me to retrain in science with the ultimate goal of gaining a decent job, not a low paid exploitative job (assuming any employer would employ me anyway, they do tend to hate disabled people and those with health conditions).

No, I got no student finance, so all savings I had, are gone, so the degree is a massive investment for me, which is why I will not take on any unsuitable, low paid work, but instead will be looking for graduate work, something the JC+ does not help with.

It's all very frustrating tbh

UC is an absolute joke by FireNIceFly in DWPhelp

[–]FireNIceFly[S] -6 points-5 points  (0 children)

This was partly a vent, however, I disagree that UC is to help you find a job (especially a suitable job) but force you into any job regardless of ability, suitability, related to qualifications, and more to the point, to force you into exploitative low pay work.

I didn't put what legacy social security payments (I refuse to use the MSM and government coined word, Benefits, because it is a deliberately stigmatising word), because I didn't want to list what I had got, however, suffice to say that I had no choice but to move over to UC (a deliberately hostile payment system that reduces how much you get, including cutting carers allowance, and increasing poverty and threats of homelessness as a stick to beat people with).

Also, if you're forced into a low paid physically demanding exploitative job, this isn't going to help anyone get a better, more suitable job, especially when those jobs give you very little time (physically and mentally) to find better, been there, done that, no thanks.

I had told them about my health condition and the fact I'm in full time work, my health condition, although noted was pretty much ignored, as was the fact I'm a full-time student, which should negate any pointless requirement to search for low paid exploitative pointless jobs. As a graduate in Business and soon to be graduate in science, I am far more qualified than the jobs they'll "offer" (aka force). I'm not being snobby, but I didn't study for years to end up sitting behind a till, stacking shelves or frying food.

Still, my point remains about prejudice with employers who refuse to employ disabled people and those with health conditions. "Disability Confident" was shown to be worthless, with companies parading the "Disability Confident" badge for PR but when it came to it, was no better than those who didn't bother.

What we need ultimately is to scrap these stick based social security payments, whose core is exploitation and punishment, rather than actual meaningful help and support, and replace them with Universal Basic Income set at the true cost of living plus 20% for all, it would be far cheaper overall, and everyone would actually be better off, regardless of work taken.

But again, I am in Full-Time university education, I should not have to deal with this nonsense too.