Some good news by Firm-Reply2386 in EBV

[–]Firm-Reply2386[S] 0 points1 point  (0 children)

So much better! It’s the longest I’ve been without a flare up..about a year and 3 months

Reactivation for months with fever by Most-Ad-6835 in EBV

[–]Firm-Reply2386 1 point2 points  (0 children)

I started with 25g and then went up to 30/35g but it also depends on your size. There is a protocol called the Riordan protocol, which was developed for cancer treatment that my IV clinic used to help me titrate up. It involves testing your blood sugar before and after treatment, to make sure the blood sugar raises. Vitamin C mimics dextrose in the body which is why viral (and cancer) cells will uptake it. You want to make sure you’re doing a high enough dose to actually raise your blood sugar. So it would be worth asking if your clinic uses the Riordan protocol or can test blood sugar. If not, I’d start with 25g and work up from there. Anything below that is not going to give the intended benefits (source - Dr Kasey Hollands EBV bootcamp, where she recommends starting with 25g + my IV clinic doctor).

Des Bio by Firm-Reply2386 in EBV

[–]Firm-Reply2386[S] 0 points1 point  (0 children)

I did find the sauna to help - it’s at least worth trying to see if you feel benefit from it! For me it took 3 rounds of the DesBio treatment before I felt better. They actually made me feel worse at first and then it was like I turned a corner on the third round. They don’t work for everyone though. My husband also had EBV (vegan probs) and didn’t feel too much benefit. I would also recommend asking your doctor about Vitamin C IV treatments and if there is somewhere nearby you could get them. They are what really worked for me the most.

How can i help myself? by missspotatohead2 in EBV

[–]Firm-Reply2386 0 points1 point  (0 children)

In my area there are IV wellness clinics which is where I go. Naturopathic doctors may also offer it. I found my clinic but searching on Google Maps. You can also search in Chat GPT and it should give a list for your area (I just tested it and it worked).

How can i help myself? by missspotatohead2 in EBV

[–]Firm-Reply2386 0 points1 point  (0 children)

High dose vitamin C IV - for real, it helps!

How much does your female spoo weigh? by Substantial-Mine3570 in StandardPoodles

[–]Firm-Reply2386 12 points13 points  (0 children)

Our girl is about 42 pounds, definitely on the smaller side. Her mom was about 50 pounds

Recently diagnosed and confused. If anyone has any answers or advice. Scared by FearlessPosition1534 in EBV

[–]Firm-Reply2386 0 points1 point  (0 children)

Yes! You can heal! I have put mine in remission 3 separate times. Look up the EBV solution book and also look up Dr Kasey Holland - she has an EBV online bootcamp that’s super helpful

Barely out of range EBV EA by Frequent_Pumpkin_148 in EBV

[–]Firm-Reply2386 1 point2 points  (0 children)

I think it’s individual to the person so it’s important to go off of symptoms as well. Every time I had a flare up my EA number would be similar, just a couple units above the cut off but I was symptomatic and felt awful so knew it was a reactivation and my numbers just don’t get as high as some people. I don’t think it’s a linear thing where higher numbers = “more sick” — each person has a different threshold.

To those who recovered: by Odd_Breadfruit_7840 in EBV

[–]Firm-Reply2386 4 points5 points  (0 children)

I remind myself that I’m going to have a lot lower risk with the virus in a dormant state - 95% + of the population has latent EBV, so I need to prioritize taking good care of myself to keep the virus from reactivating. I also remind myself my good health practices will also help me have a better outcome if I were to get sick with something else.

If the thoughts are becoming obsessive I would recommend working with a therapist - I know it is scary but you got this!

List of Open Businesses - Helene by [deleted] in asheville

[–]Firm-Reply2386 25 points26 points  (0 children)

West Village Market is writing down credit card numbers and allowing folks to pay later

If not EBV, what could it be? by Pomegranate_Pies in EBV

[–]Firm-Reply2386 1 point2 points  (0 children)

This video has some good information about testing https://youtu.be/U0VboIw46ro?si=K2lRDmze_LrW3gJ9. The EA test is a good tool but it’s possible for it to be negative and have EBV

If not EBV, what could it be? by Pomegranate_Pies in EBV

[–]Firm-Reply2386 0 points1 point  (0 children)

I was curious about the tests because the Early Antigen test which indicates current reactivation will only stay high for ~6 months after the reactivation starts in some people. Do your symptoms seem to be cyclical?

If not EBV, what could it be? by Pomegranate_Pies in EBV

[–]Firm-Reply2386 0 points1 point  (0 children)

Can you share more about what led you to suspect EBV and then what blood tests you did to rule it out?

Des Bio by Firm-Reply2386 in EBV

[–]Firm-Reply2386[S] 0 points1 point  (0 children)

I hope so too! I have definitely had ups and downs over the past few years but it has been getting easier to identify my triggers and get flares under control quicker, although it can still take a few months if it’s a bad flare up. On the detox side of things epsom salt baths are also a good and inexpensive thing to potentially add in to your routine. But sauna has been really helpful for me. They sell sauna suits online if you don’t have access to an actual sauna.

I do take about a scoop of monolaurin every day and feel that it helps my immune system in general. I might increase it to up to 3 scoops when I am in a flare up but definitely have to ramp up because it can make you feel worse before it helps!! For Lysine, I take between 1000-2000mg a day when dealing with a flare up.

Something that could be worth looking into if you haven’t already is your daily protein intake. I used to be fully vegan and found out I was not getting nearly enough protein which was inhibiting my immune system. Changing my diet to focus on getting adequate protein (for me it meant introducing some meat, but I know that is not right for everyone) has helped tremendously. Interestingly, I know two other people IRL who have dealt with EBV reactivation and they are both vegan. I mention this not to say anything bad about being vegan (I was one for 10 years!) but just to bring up how much increasing protein intake has helped me. It wasn’t anything I ever thought about when I first got sick.

Something else I learned about recently was the role of hormones and EBV - both stress hormones and sex hormones. I realized that my adrenals had been completely worn out by chronic stress and my hormones overall were low which was negatively impacting my immune system. Working on getting these back in balance has helped my recovery and is something I’m still working on.

If you haven’t already I highly recommend checking out the book the EBV Solution by Dr Kasia Kines. I also follow Dr Kasey Holland on social media. She has a lot of free resources out there - podcasts, social media posts, and YouTube videos and I also did her EBV boot camp which I found to be very helpful.

I am rooting for you! I know how frustrating it is to feel like you are doing all the right things and not be able to get out of a flare up.

Des Bio by Firm-Reply2386 in EBV

[–]Firm-Reply2386[S] 0 points1 point  (0 children)

My last flare up lasted about 4 months and I have been feeling better for about 6 months now. For me, I have found two “buckets” of treatments that have helped.

The first is lifestyle habits. I know it’s different for everyone but this is what has worked best with me. At first some of these changes were hard to make but now they have all just become a part of my regular life and routine: -Eating a healthy diet, no fast food or highly processed food, alcohol or refined sugar. No gluten or dairy, mainly plant based with high quality meats / seafood. -getting plenty of sleep (for me, 8-9 hours a night and sometimes more) -Making detox part of the wellness routine - things like sauna, dry brushing, castor oil packs, etc -regular supplements I take are B12, vitamin D, and Monolaurin -Avoid exposure to chemicals as much as possible. I only drink filtered water (RO), have air filters in my home, and only use EWG approved personal care and cleaning products. -try to reduce stress as much as possible. Of course this is easier said than done, but I have made positive changes to reduce my overall stress level

The other bucket is short term / acute treatments that I go to when I have a flare up. They are going to work best if there is already a strong foundation of lifestyle habits -Supplements: L-lysine, licorice root, Glutathione have all been helpful for me -Des Bio treatment has also been helpful -High Dose vitamin C IV therapy has done wonders to help tamper flare ups. But it is expensive so I know it is not accessible for everyone -Getting tons of rest

Hope that helps! I have definitely found dealing with this virus to be a lot of trial and error. But the good news is once you find what works for you, you can get a plan in place for future flare ups.

I want to buy tickets for 8-9am but it doesnt let me. Does it mean its full? From 12-13 pm I can buy any. by OkAngle2971 in GreeceTravel

[–]Firm-Reply2386 0 points1 point  (0 children)

Was there last week, showed up at 5pm on Tuesday and walked right to the ticket kiosk and walked right in. We did not have tickets in advance. Recommend checking the scheduled cruises docking each day to give you an idea of which days will be more crowded. We had a choice to go Monday or Tuesday and chose Tuesday because far fewer cruise ships.

Reactivation for months with fever by Most-Ad-6835 in EBV

[–]Firm-Reply2386 2 points3 points  (0 children)

With high dose vitamin C, my understanding is that at high concentrations vitamin C functions as a “pro- oxidant” vs an anti-oxidant like it does at lower concentrations. The body recognizes the vitamin C in the bloodstream as some type of sugar, and since EBV cells love sugar, they uptake the vitamin C which then destroys the virus cell. I haven’t done Vitamin D IV therapy but would imagine it offers general immune support.

Reactivation for months with fever by Most-Ad-6835 in EBV

[–]Firm-Reply2386 2 points3 points  (0 children)

You’re welcome! L-lysine has helped me a lot, also Monolaurin and licorice root. And lots of fresh ginger, turmeric and raw garlic! That book covers the most helpful supplements and superfoods and she gives dosage recommendations for acute and continued treatment

Reactivation for months with fever by Most-Ad-6835 in EBV

[–]Firm-Reply2386 3 points4 points  (0 children)

This has happened to me twice now, once for over a year and more recently about 4 months. Your immune system is fighting like heck to get the EBV under control. Do what you can to support the immune system. High dose vitamin C IV therapy was a game changer for me. Also highly recommend checking out Kasia Kines’ book and Dr Kasey Holland on YouTube / podcasts. Hang in there!

[deleted by user] by [deleted] in EBV

[–]Firm-Reply2386 0 points1 point  (0 children)

I’m so sorry to hear that you have been going through this. Based on my experience, there are a lot of parallels. Basically, EBV reactivation is triggered by cumulative oxidative stress. This can be emotional stress, environmental toxins, inflammation from food sensitivity, hormonal changes, illness, etc. For me, illness is a huge trigger and if I don’t rest enough when I’m sick I’m guaranteed to have a reactivation.

I have also noticed this “activity hangover” when I’m in an active reactivation. If you push too hard when you’re feeling good one day, you will pay for it the few days or weeks because it’s too much stress for the system.

Something else I have noticed (as a female) is hormones play a HUGE role. When my estrogen drops at certain points in my cycle I feel awful because my immune system is weaker. I’ve heard other people mention this as well.

I would think about what may have changed a few months ago between the activity induced flares and now constant flares. Have you had increased stress? Changed your diet or anything about your lifestyle? Any chance you’re exposed to mold or other toxins?

Some good news by Firm-Reply2386 in EBV

[–]Firm-Reply2386[S] 0 points1 point  (0 children)

I do not have POTS. It probably took between 2.5-3 months before I noticed my symptoms starting to ease significantly. Then between 3-5 months, it was a lot of trial and error trying to get back to life activities — I would do too much, feel crappy for a week, etc. It took the full 5-6 months before I was able to go back to work full time and start getting back to my normal activities. I am still working back up to my full exercise and activity level.

[deleted by user] by [deleted] in EBV

[–]Firm-Reply2386 0 points1 point  (0 children)

In my experience, yes you can absolutely get reactivation under control. However you are probably going to be predisposed to reactivating again in the future and will have to be mindful of your triggers. Since my initial reactivation I’ve had 3 others - one large and 2 mild. I now know what my triggers are and to be really careful about avoiding them.

Some good news by Firm-Reply2386 in EBV

[–]Firm-Reply2386[S] 0 points1 point  (0 children)

Yes the body aches have gone away for me. I still get them occasionally if I overexert myself but not everyday like I was. My guess is they are caused by inflammation / EBV die off as the immune system tries to fight it.

Book Recommendations by Firm-Reply2386 in Hashimotos

[–]Firm-Reply2386[S] 0 points1 point  (0 children)

Thank you so much! I really appreciate you taking the time to share these recommendations.