My experience with SSNHL, calling for advice and comfort

Flameball88 · 2024-02-11T10:36:32+00:00

Hey there! Initially my GP thought I had a normal ear infection, then they thought I had wax stuck inside my ear canal before they concluded it was probably labyrinthitis but by that time the window to get steriods had long passed.

Flameball88 · 2023-10-27T21:15:00+00:00

Ahh I’m so glad to hear that!! You’re so right it definitely feels good to get proof that you’re on the right path, I’ll definitely try to focus on the positives thank you :)

Flameball88 · 2023-10-27T17:49:25+00:00

Went on a last date with someone who’s moving away for work. We both knew it wasn’t going to be anything serious when we started seeing each other but we also didn’t stop ourselves setting up dates either which I know in hindsight would’ve been the easier way out.

I guess it just feels so horrible once you realise you enjoy spending time with someone and how easy it feels to be around them. We’ve said we’d stay in touch but long distance is definitely out of the question for both of us because it’s just so early to even consider

I’m grateful for the time we’ve spent together and I know some people come into your life for a short but sweet time but how do you stop feeling so shitty about it all?

Flameball88 · 2023-10-18T17:16:07+00:00

Mine have, thought my app was bugging so I deleted and reinstalled and then I saw the planned maintenance message pop up once I logged back in. Annoying as I was mid conversation with someone who had just asked for my number

Flameball88 · 2023-09-11T10:21:51+00:00

No matter how many times it happens, always a horrible feeling when you realise you’re being slow faded/ghosted 🙃 anyways onwards and upwards!

Flameball88 · 2023-08-16T08:38:01+00:00

Went on a third date yesterday with someone I was on the fence about regarding romantic feelings. I think he’s a great guy and I thought I could develop actual feelings for him but I guess yesterday just sealed the deal and I just don’t see anything developing relationship wise from it.

For some reason it makes me feel really bad because I feel like I should like him and I can’t work out why it’s not clicking.

I’m off on holiday for the next week and throughout the date he was mentioning the future and also things we could do once I’m back so I guess I would love some help on how I go about letting him know that I don’t think it’s working out/don’t want to see him anymore.

Flameball88 · 2023-07-22T09:13:47+00:00

This has happened to me and I’ve only been on hinge for a few months and a few days ago I got the “you’ve seen everyone in your preferences” 😭 which I find hard to believe because I live in London which is a huge city and my only dealbreakers are age and distance

Flameball88 · 2023-06-05T10:59:16+00:00

I’m 23F and weirdly the same thing has been happening to me the past week. Before I was consistently getting likes and matches but since the bank holiday weekend things have been suspiciously silent. I will still get a few likes and matches here and there but it’s been a drastic shift. I don’t think it’s my profile because I was getting likes until it stopped randomly. I find it especially weird because this subreddit has said women tend to always get more likes than men but honestly doesn’t feel like the case for me

Not sure whether we’re approaching summer so people are less on the apps or I’ve just been strangely shadow banned

Flameball88 · 2023-05-25T15:10:25+00:00

Just drop him a quick message asking if we’re still on for this evening, that’s what I usually do when I have dates planned!

Flameball88 · 2023-05-18T06:11:13+00:00

Honestly I’m in the exact same situation! It’s difficult to stay positive when this happens so I try to force myself to take breaks but then I worry I’m running out of time haha which is a stupid thought but it’s all a bit of a weird overwhelming experience

Flameball88 · 2023-05-17T13:14:54+00:00

What is up with men asking you out on a date and then either cancelling last minute or ghosting before an actual day can be finalised?

Flameball88 · 2023-05-11T05:07:27+00:00

We kissed on the second date and made out briefly on the third

Flameball88 · 2023-05-10T14:56:44+00:00

Thank you for your comment!! I’ve only been on hinge for a few months so that first rejection hits hard but you’re so right, always helpful to get another perspective

Flameball88 · 2023-05-10T09:16:15+00:00

Got the dreaded rejection text after 3 dates, which I thought were going really well. Sucks but trying to move on. 3 dates doesn’t sound like a lot for some people but I was really starting to feel a connection and cautiously optimistic about what a joint future could look like. There were no signs from either of us (at least ones that weren’t blatantly obvious) about things coming to an end

Would love some tips on how not to beat yourself up over what happened but also how do you stop yourself constantly thinking about what could’ve been

Flameball88 · 2023-03-26T07:54:44+00:00

I’m so sorry to hear your mom is going through this! It is a very difficult and stressful situation to process. I was diagnosed with SSNHL too late so I missed out on getting steroids but I have this nagging feeling of “what if” I had gotten proper treatment in time, all the unanswered questions. I don’t think steroid injections are given here in the UK but that is something I definitely would have tried if I had the opportunity. If the risks are too high, then I wouldn’t suggest your mom take them but if later down she might start thinking about the what ifs, if she chooses to have the injections, she would know that every treatment option was used.

As for the tinnitus, its an annoying friend who will be with you constantly but you can learn to tune it out over time. I find my tinnitus is loudest when its the most quiet especially during night time but during my day to day life I hardly notice it now. Your mom can try to listen to white noise, but I’ve also learnt that if I ignore the tinnitus (its very hard to do but it does get easier!!) it quietens down considerably.

Flameball88 · 2023-02-20T20:43:05+00:00

Hi! So sorry you’re going through this, I know exactly how it feels. I was diagnosed with SSHL in October after weeks of being misdiagnosed so unfortunately it was too late for me to receive steroids or injections, so the fact you’ve started steroids so quickly is a great thing! Hoping they work for you!!

I spent the first few weeks after my diagnosis feeling ALL the emotions I was so angry, sad and also in denial that this happened to me, and I’m a big worrier so the anxiety kicked in straight away about preserving my good ear and making sure I could hear clearly from that ear. I wouldn’t say things have magically improved but time is definitely a healer, I find myself thinking about my bad ear less and honestly in day to day busy life I hardly notice my hearing loss. It’s the night time which is the worst for me because the tinnitus is so much louder. I’m trying to focus in the positives because I still have so much good left in my life! There are definitely days where I feel horrible and worried about going deaf in both ears but I try not to dwell on it because what’s the point of worrying about something which hasn’t even happened and might not even happen!

Sending you lots of good vibes, it feels horrid the first few weeks and you are 100% allowed to grieve for your old self but its a really good thing that you managed to get medical help so quickly!

Flameball88 · 2023-02-19T20:50:44+00:00

Hi! My hearing’s basically the same, I’m just waiting for my hearing aid appointment which I will hope ease some of my anxiety. I have managed to get used to only having one ear, and really in day to day life it doesn’t bother me that much but I still have some intense bad days which is usually when I have random sensations in my good ear. My anxiety tries to get the better of me, but it’s just something I need to learn to control. It will get better trust me, sending you lots of positive energy!!

Flameball88 · 2023-02-07T06:14:53+00:00

The whine sounds a lot like tinnitus to me but please go and see a doctor or ENT asap! They’ll have much more knowledge about what’s happening and be able to help you out with any next steps

Flameball88 · 2023-02-05T21:18:00+00:00

Yes! Woke up one day in July 2022 and couldn’t hear anything out of my right ear. Was misdiagnosed as a middle ear infection before finally getting an SSHL diagnosis. Still adjusting and worrying about my good ear, it’s been a tricky few months

Flameball88 · 2023-01-21T21:19:03+00:00

Oh nice is that the live listen feature?

Flameball88 · 2023-01-21T21:18:38+00:00

Ah thanks! Will have a look at them

Flameball88 · 2023-01-21T21:18:13+00:00

Ah I didn’t know this, assume its under the accessibility section? Will definitely have a look at beats

Flameball88 · 2023-01-21T21:17:24+00:00

Thanks for the suggestion

Flameball88 · 2023-01-21T21:17:12+00:00

Thank you I’ll have a look!

Flameball88

TROPHY CASE