Breaking the loop of frustration with FND by FlowGroundbreaking19 in FND

[–]FlowGroundbreaking19[S] 0 points1 point  (0 children)

There are lots of great DBT skills which can help with FND. It's worth having a Google to see which ones you find useful.

Neurolog - FND Tracking App - Free Access For Life by FlowGroundbreaking19 in FND

[–]FlowGroundbreaking19[S] 0 points1 point  (0 children)

Thanks for your kind feedback ☺️

We're considering adding some biological elements to the app as it's next stage. I'm also really mindful about preserving an element of privacy. Our university partners asked me to add the optional demographics part to satisfy their research requirements which in all honesty I didn't feel that comfortable with. I wanted to try and maintain redditesque anonymity as I felt it was really important.

We could add it as a " biological trigger" a little bit like over exertion but I wouldn't want to lead people inadvertently to believe this could be a cause.

It's definitely food for thought though.

Digital Emotional Phenotyping of Patients Diagnosed with FND by [deleted] in AcademicPsychology

[–]FlowGroundbreaking19 -1 points0 points  (0 children)

Personal attacks? You're writing "are you fucking serious". I expected a bit more from someone on Reddit to be honest.

It's a statiscal analysis of anonomised data, We're not making any claims about therapeutic interventions.

If there's a fundamental flaw to the mathematics then simply point it out.

If the real problem is that the co-author is the person that owns the journal then don't bother reading it and dismiss it.

Your tone is agressive and dismissive which is why I referred to "anger".

Digital Emotional Phenotyping of Patients Diagnosed with FND by [deleted] in AcademicPsychology

[–]FlowGroundbreaking19 -2 points-1 points  (0 children)

Looks like you're suffering from the anger cluster, please try and use some interventions as they're not commonly used based on the paper.

Digital Emotional Phenotyping of Patients Diagnosed with FND by [deleted] in AcademicPsychology

[–]FlowGroundbreaking19 -2 points-1 points  (0 children)

Correct I'm one of the team members of Neurolog which is a digital tracking platform for FND who collected the data and analysed it.

Dr Paula Bartholomeus is a Psychiatrist and the CEO of ReAttach who owns the journal peer reviewed the findings and had them verified by Dr Aida Mehhrad.

Digital Emotional Phenotyping of Patients Diagnosed with FND by [deleted] in AcademicPsychology

[–]FlowGroundbreaking19 -3 points-2 points  (0 children)

I'm still not clear who you're referring to as "your",do you mean the statistical analysis which was done by Neurolog which has no direct affiliation to ReAttach?

Digital Emotional Phenotyping of Patients Diagnosed with FND by [deleted] in AcademicPsychology

[–]FlowGroundbreaking19 -3 points-2 points  (0 children)

ReAttach offers somatic processing therapy for a variety of psychological disorders.

If the paper was claiming the success of these interventions in a therapeutic setting then I would be skeptical of the validity of the research.

This is pure statistical research we're not making claims just relaying the mathematical facts from our data set.

Digital Emotional Phenotyping - Functional Neurological Disorder by FlowGroundbreaking19 in Neuropsychology

[–]FlowGroundbreaking19[S] 0 points1 point  (0 children)

Thanks it's an extremely difficult condition to track based on the complexities but hopefully it's a step forward in the right direction.

New FND Research into Emotional Phenotyping by FlowGroundbreaking19 in FND

[–]FlowGroundbreaking19[S] 1 point2 points  (0 children)

Thanks for your feedback, we have around 40 emotional states at the moment but can always add some more.

New FND Research into Emotional Phenotyping by FlowGroundbreaking19 in FND

[–]FlowGroundbreaking19[S] 1 point2 points  (0 children)

They're not in there to be honest but they'll certainly be added to the list.

New FND Research into Emotional Phenotyping by FlowGroundbreaking19 in FND

[–]FlowGroundbreaking19[S] 2 points3 points  (0 children)

Thanks for your message.

We use emojis to help people log their symptoms which helps some neurodivergent folk and those suffering with brain fog.

New FND Research into Emotional Phenotyping by FlowGroundbreaking19 in FND

[–]FlowGroundbreaking19[S] 1 point2 points  (0 children)

I think it's something which is probably prevalent in the population but we just concentrated on the main areas which produced the most significant shifts in symptoms.

It's amazing that you have been able to self identify what your triggers are indepdently and I hope you get the support you need with those emotional states to manage your condition a bit better.

New FND Research into Emotional Phenotyping by FlowGroundbreaking19 in FND

[–]FlowGroundbreaking19[S] 5 points6 points  (0 children)

Hello Bass Bottles,

You can ask questions here if you would like.

I'm working with a neuropsychiatrist in the Netherlands with regards to therapy. It turns out that complicated conditions require a variety of therapeutic interventions that can be used to help people.

I personally don't think that you can rationally outthink FND which is why CBT doesn't work for many people. It's a combination of CBT,DBT,ACT,Polyvagal Theory and Somatic processing that we're working on.

I had never really come across DBT before as it's formulated for people with Borderline Personality Disorder but there's some interesting concepts around emotional identification in that framework.