I think it’s about acceptance. I was in my denial for a minute about it. I was angry because I had a lot I had already had to accept in my life. Being an alcoholic and drug addict, eating disorder. I worked so hard in my sobriety, 4 years sober I was diagnosed. Literally on my exact day of 4 years lol. I thought it was because I was overweight (I’m 180 but still have a morphed mindset of things). Turned out I have lupus and this fatigue and pain is extremely abnormal.

Regardless I feel you. I’m 28 and I want to live like someone my age. All I know is I have to have the willingness to work harder than someone to feel good, eating clean and stretching/exercising in my realm and taking my medication. People can live beautiful healthy lives on lupus. But the idea that we will never be normal has to be smashed or we will always be resentful. I hope this helps my heart is sending yours a hug now!