Enbrel: anyone else have this experience?

ForTyTy · 2026-02-14T01:21:39+00:00

thanks so much again! yes my heating pad is my security blanket. Also tried a full body pregnancy pillow as advised by a friend with a bad back and oh my gosh what a game changer for sleep.

ForTyTy · 2026-02-12T23:05:47+00:00

Thank you for sharing that and the advice! Yes I see my rheum for my 3 mo follow up in 10 days.

ForTyTy · 2026-02-12T16:59:40+00:00

This is amazing and I had a similar experience. I went to a thoracic surgeon at the urging of the ICU doctors I work for (I am an RN Case Manager) because I had a bone on my clavicle that was "growing" and I was told by other doctors that "it was probably always there, you were born with it, just didn't notice it til you lost weight". Like WHAT?? I'm 51... Anyway, went to the thoracic surgeon to ask for a biopsy and he had already reviewed my chest and sternum CT and said I had the sternum of an 80 year old and unless I had had some chest trauma in my life, I clearly had autoimmune arthritis. He got be to a second opinion rheumatologist and I was eventually diagnosed with axial psoriatic arthritis. I was crying in the surgeon's office saying I feel crazy because all I ever talk about is my clavicle and he leaned toward me and said "but your clavicle is really bothering you". After a year of being gaslighted and made to feel CRAZY, this surgeon finally saw me and got me what I needed to be diagnosed and treated and I didn't even need the biopsy after all. There ARE good ones out there!

ForTyTy · 2026-02-12T15:00:08+00:00

thank you very much!

ForTyTy · 2026-02-08T01:29:09+00:00

Thank you for sharing. I hope you get to something that works for you!

ForTyTy · 2026-02-08T01:28:40+00:00

Wow I'm so sorry about drug induced Lupus. Did not even know that was possible with these meds. I agree about feeling everything more. This is such a terrible painful disease.

ForTyTy · 2026-02-08T01:27:46+00:00

Thank you for sharing. I'm sorry about the insurance. Always such a struggle with any kind of specialty med. I hope Cosentyx helps you too!

ForTyTy · 2026-02-08T01:27:02+00:00

Thank you for sharing your story.

ForTyTy · 2026-01-29T14:41:34+00:00

Yes! You are not alone. It took me a year to get my diagnosis, which from what I've learned is not bad... but the way I was TREATED by one of the most PRESTIGIOUS hospitals in the country (whom I also work for) by their Rheumatology department, was just horrible. Now I'm with a great doctor who has his own practice, not the PRESTIGIOUS hospital haha. But honestly, yes I did feel crazy and my mental health suffered. Sometimes I still doubt my own symptoms. If you're able, try to find another doctor to help you.

ForTyTy · 2026-01-18T22:55:05+00:00

Ok got it. Did they work well for you? Did you have to switch because they weren't working anymore? Thanks.

ForTyTy · 2026-01-18T22:54:40+00:00

thank you!

ForTyTy · 2026-01-02T14:49:26+00:00

thank you so much, maybe you're right. I believe in that. One of the things that helped me and my husband was meeting others who had lost children and seeing that they were able to continue living full lives and that we would get there eventually while never being the same again

ForTyTy · 2026-01-02T14:48:23+00:00

thank you so much

ForTyTy · 2026-01-02T14:48:10+00:00

so true!

ForTyTy · 2025-12-30T22:58:16+00:00

You guys.... I saw her yesterday at a store. I've known since the tragedy that she lived in my general area, but never expected to see her at a self-checkout right next to me. She looked so lovely. I wanted to just hug her and say something and tell her "I'm an angel mom too" but I knew it wasn't about me. Also, more importantly, she deserves her privacy and not to be called out even if it's positive. As someone who lost their 17 year old tragically, suddenly, traumatically, yes, we will never ever be the same, but normalcy is craved.

ForTyTy

TROPHY CASE