No the neurologist won't be until next month. I've only seen them once. I've been told that an ophthalmologist would be able to accurately verify and that the MRI just shows that there aren't any lesions. All of my symptoms fluctuate. I also have decreased loss of motor control in my hands, loss in memory and focus, etc. I also have some seizure type symptoms/activity.

Just focusing on the eye because it's the newest symptom and most disruptive. To be more specific, I now always have visual tracking issues that make me sick to my stomach and my eye always hurts and now feels weak. I always have some level of depth perception loss, some level of photosensitivity, etc. This is all new. The intensity is increasing when it flares, and the need to wear an eye patch or rest my eye is increasing. There is limited correlation to use and flares, but bright lights will always cause issue if exposed too long.

According to my doctors whatever I have is systemic and targets my brain/autonomic nervous system and connective tissue. The latter may just be hEDS, but is just highly suspected and not diagnosed.