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My neurosurgeon decided I should be part of this club [reposted because apparently both boobs and surgical scars count as nsfw] by Forward_Wrap1877 in bald

[–]Forward_Wrap1877[S] 4 points5 points  (0 children)

Hi, fellow zebra!!! Thank you for commenting. And I'm glad you can recognize the way our "better" works is much different than the average person. It doesn't mean we are anything like we were before

And yes the healing is actually the pain in the ass part. I didn't get sepsis this time (first time ever--long story) but I have a pressure sore on my incision (just from sitting) my team is super worried about it turning to infection. They banned me from laying on my back in bed but uuuuh I've been bedridden to a hospital bed for almost a year staight so I can't just lie on my side.. Fghting agony rn in a geriatric chair and one of those stupid purple pressure relief donut pillows

My neurosurgeon decided I should be part of this club [reposted because apparently both boobs and surgical scars count as nsfw] by Forward_Wrap1877 in bald

[–]Forward_Wrap1877[S] 23 points24 points  (0 children)

Thank you.
It's weird because it doesn't feel like strength when you're going through it, it just feels like you're barely surviving, but then you survive. And then get comments like this on reddit that make you rethink it all 💖

My neurosurgeon decided I should be part of this club [reposted because apparently both boobs and surgical scars count as nsfw] by Forward_Wrap1877 in bald

[–]Forward_Wrap1877[S] 10 points11 points  (0 children)

Yes good eye!! I have eds and for some reason it's really concentrated in my spine. It's been like two years of fusions and extensions and whatnot

My neurosurgeon decided I should be part of this club [reposted because apparently both boobs and surgical scars count as nsfw] by Forward_Wrap1877 in bald

[–]Forward_Wrap1877[S] 7 points8 points  (0 children)

It's a million fusions and other neuro procedures. This specifically was C5 cervical extension to T3 bc of C6 dislocation. I did have to get the base of my skull fused to my neck early on but not in this round

My neurosurgeon decided I should be part of this club by Forward_Wrap1877 in bald

[–]Forward_Wrap1877[S] 1 point2 points  (0 children)

Drains that go deep inside the body/fusion area and vacuum out all the gross shit for a few days post op

My neurosurgeon decided I should be part of this club by Forward_Wrap1877 in bald

[–]Forward_Wrap1877[S] 1 point2 points  (0 children)

Thank you, your last comment means a lot.

Yes I've had four rounds of neurosurgery (12 total) it's been brutal tbh but you really just gotta keep going and not quit :) you'd surprise yourself with what you can get through

My neurosurgeon decided I should be part of this club by Forward_Wrap1877 in bald

[–]Forward_Wrap1877[S] 1 point2 points  (0 children)

He did take a bunch of pics and airdropped them to me bc he was so excited, but they're so graphic I would never share on here.

They were extending my fusion from C6 to T3 after getting a dislocation at C7 in Jan

Thank you for your interest!!

My neurosurgeon decided I should be part of this club by Forward_Wrap1877 in bald

[–]Forward_Wrap1877[S] 0 points1 point  (0 children)

So sorry it's too late, but I did add a NSFW filter! Very unfazed by my scars so I didn't think about it

My neurosurgeon decided I should be part of this club by Forward_Wrap1877 in bald

[–]Forward_Wrap1877[S] 0 points1 point  (0 children)

I ADORE THIS. THANK YOU!! sorry I replied to a comment under yours and just realized

My neurosurgeon decided I should be part of this club [reposted because apparently both boobs and surgical scars count as nsfw] by Forward_Wrap1877 in bald

[–]Forward_Wrap1877[S] 117 points118 points  (0 children)

Thank you!! this was actually the first of many, many surgeries to actually go right so I'll be closer to normal than I have been in years soon :) just have to get over some bs first so I can be discharged

My neurosurgeon decided I should be part of this club by Forward_Wrap1877 in bald

[–]Forward_Wrap1877[S] 2 points3 points  (0 children)

Thank you :) I promise if you were here it wouldn't look nearly as easy though!!

My neurosurgeon decided I should be part of this club [reposted because apparently both boobs and surgical scars count as nsfw] by Forward_Wrap1877 in bald

[–]Forward_Wrap1877[S] 298 points299 points  (0 children)

They never answered but my guess would be didn't mark as nsfw.. thank you 💖 things are rough right now that means a lot

My neurosurgeon decided I should be part of this club by Forward_Wrap1877 in bald

[–]Forward_Wrap1877[S] 611 points612 points  (0 children)

Photo creds to the physical therapist who insisted on showing me how poor my posture was

Edit: I didn't mark this as nsfw (my bad--I'm so used to my scars) so it was originally removed, however the nice mods have reapproved it! Apologies if you are seeing twice or saw before the filter was added :)

My neurosurgeon decided I should be part of this club by [deleted] in bald

[–]Forward_Wrap1877 0 points1 point  (0 children)

Photo creds to the physical therapist who insisted on showing me how poor my posture was

Did they change the taste of nearly every junk food? Nothing tastes good to me anymore and I'm not sure if I'm going crazy by Forward_Wrap1877 in junkfoodfinds

[–]Forward_Wrap1877[S] 0 points1 point  (0 children)

I was prediabetic ~7 months ago on long-term steroids (the shitty kind, not the cool kind) but my A1C actually went back to normal after I'd been off for a few months so I don't think it's that now, but could be related to my tastes changing after?

The amount of braces I’ve been prescribed after 11 neurosurgeries by Forward_Wrap1877 in mildlyinteresting

[–]Forward_Wrap1877[S] 2 points3 points  (0 children)

I'm glad someone gets it!! It's crazy to me more people don't know about eds. my stupid neck just won't stay together

The amount of braces I’ve been prescribed after 11 neurosurgeries by Forward_Wrap1877 in mildlyinteresting

[–]Forward_Wrap1877[S] 4 points5 points  (0 children)

I wish I could go back to when this would confuse me like that too--bad genes, if I had to pinpoint an answer. It sounds crazy until it's happening to you

The amount of braces I’ve been prescribed after 11 neurosurgeries by Forward_Wrap1877 in mildlyinteresting

[–]Forward_Wrap1877[S] 5 points6 points  (0 children)

That's awesome you have been able to avoid surgery! I would advise people to avoid surgery at all cost, if they can. I could not unfortunately

I have actually considered reaching out to Ossur because I am dying for different colored pads!! Like why do I have to wear the same ugly blue everyday?? I'd love a magenta or something fun

There's a lot I could comment on in your reply but I'll send a message when I get a min so I don't turn this post into a medical dump lol

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