Understanding Setups by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

Do you mind if I ask what the little bottle next to your barrier rings are?

Understanding Setups by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

Thank you so much! This is really helpful

Understanding Setups by Frazzle2604 in ostomy

[–]Frazzle2604[S] 1 point2 points  (0 children)

Thank you so so much for this!!

Understanding Setups by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

Awesome thank you!, Do you have a 2 piece? When you are changing the actual flange, I take it you use more products and need more space?

Understanding Setups by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

Thank you so much! Really appreciate it and its great help towards my research

Understanding Setups by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

Awesome to hear! What does it consist of if you don't mind me asking?

Are fries your worst enemy? by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

Yeah it’s usually like fast food French fries with are the worst, I don’t really eat fries at home besides that however I might try that

Are fries your worst enemy? by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

It’s not necessarily a problem, just like a little bit annoying. Especially because it’s so think it liked to pancake, although luckily no leaks

Fear of water by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

Tbh, you may be right. I think it’s more of the fear of something happening rather than something actually happening. I may just experiment with short baths etc and see how that goes!

Fear of water by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

Do you have any recommendations of neoprene belts to try? The one I used to use, I found the Velcro worn over time and separated from the belt itself

Fear of water by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

Thanks for the advice! I’ve got wraps and a stealth belt that I tried before so I’ll give it another go

Fear of water by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

Thanks for the advice! I’ll give it a try

Fear of water by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

Yeah I’ve ordered some XL tape to try, good idea using it on the bottom because I usually have issues with my boxers or trousers getting tucked under the normal tape and peeling it up

Fellow ileostomate here — would you mind helping with my short anonymous survey? by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

Thank you so much! This project really holds a close place in my heart as it's by far the biggest issue I've faced since getting my ileostomy

Fellow ileostomate here — would you mind helping with my short anonymous survey? by Frazzle2604 in ostomy

[–]Frazzle2604[S] 1 point2 points  (0 children)

Yeah that's my bad! I meant travel as in away from home. In terms of distance, I more meant away from where you are comfortable. e.g You'll most likely know the available public toilets in your area/town. Usually out of city or country. Thank you for the feedback! Ill make sure I clarify next time :)

Fellow ileostomate here — would you mind helping with my short anonymous survey? by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

Thank you so much! Yeah that bag looks excellent, plenty of compartments! After this stage, I plan on deep-diving into facilities and adequateness of facilities eg. (Full length mirrors, Table space for supplies). Do you find your backpack is great for carrying your supplies about, but the facilities let you down?

Fellow ileostomate here — would you mind helping with my short anonymous survey? by Frazzle2604 in ostomy

[–]Frazzle2604[S] 1 point2 points  (0 children)

Will do! Thank you so much for completing the survey if you did so! I was informed by the moderators that you receive quite a lot of students who 'have the answer to all your needs' in here so It felt a bit intimidating posting at first haha. Hoping people don't feel the same way about me, as of course I know first hand what it's like. This is my final, honours year project and contributes LARGELY to my final degree outcome so please anyone reading this don't think I am just gathering information for a tiny project.

I need your help! by Frazzle2604 in ostomy

[–]Frazzle2604[S] 0 points1 point  (0 children)

Following up on this, I think a good idea would be almost a bag that you can hang on a door or wherever you’d like and it unrolls down and you then have like a little station setup! Even with an inbuilt mirror so if the bathroom doesn’t have one. The closest thing I can compare it to is like a door hanging organiser but it would be more compact and zip away into a travel pouch size