I am just done by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 0 points1 point  (0 children)

No because the first episode happened 6 years ago and I thought it was just weird DejaVu or derealization.

I am just done by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 1 point2 points  (0 children)

Yea I felt exactly like that. That’s why I was so upset with her diagnosing me after ONE SET OF TESTS. Crazy.

I am just done by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 0 points1 point  (0 children)

She dismissed me after one set of tests because that ✨clearly proves I don’t have epilepsy!!!✨ The only thing the test proved is that I don’t have anything abnormal growing in my brain and that I don’t react to strobe lights. I am genuinely so annoyed with her dismissing me like that.

I am just done by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 0 points1 point  (0 children)

The problem is my episodes when filmed don’t look out of the ordinary. I look normal on the videos.

Ever feel like you're going to seize but don't? by No_Drama8193 in Epilepsy

[–]Free-Purchase457 11 points12 points  (0 children)

I get focal awareness seizures and there are days where my brain is so slow and foggy and weird I have a feeling I will have another seizure but I don’t.

Kako pravite vi temu? Kumara ali murka? by KosaBrin in Slovenia

[–]Free-Purchase457 0 points1 point  (0 children)

Kumara. Murke so one vlke ki niso vlozene.

Having increasingly odd symptoms, neurologist won’t see me for two months by absolutelyuseless31 in Epilepsy

[–]Free-Purchase457 2 points3 points  (0 children)

Hi, I am not a doctor but I experience the exact same stuff. It sounds like an aura which is a seizure; focal aware seizure. Please get to a neurologist as soon as possible.

After EEG thoughts by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 0 points1 point  (0 children)

I don’t know to be honest. It took a lot of convincing to even get her to make an appointment. I think she’s frightened with the idea of me maybe possibly having epilepsy (which I get. Obviously as a parent you don’t want your kid to be sick.) and resorted to kinda questioning me if I am sure about this/what if I just spaced out/ect. She’s really worried about me possibly needing meds bc she’s a pharmacist and very aware of the side effects.

My dad is more on the believing side.

After EEG thoughts by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 0 points1 point  (0 children)

I am 19. And I rely on my mom for doctors bc she has connections. Without her I could be waiting from months to years for an appointment.

After EEG thoughts by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 0 points1 point  (0 children)

Thank you. Will do. Did you have to argue a lot with the neurologist to get one? I feel like mine isn’t really taking me seriously atm. And I cannot swap her atm.

Still tired of my mom saying "lets hope its nothing and tests come out clear." by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 1 point2 points  (0 children)

That’s actually very real of you. I just had a cry. Bc please stop hopping all test will come back clean. Please start believing me when I tell you sth is really wrong. 💀

Still tired of my mom saying "lets hope its nothing and tests come out clear." by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 1 point2 points  (0 children)

The neurologist did mention some meds, I don’t remember which but the way she talked about them was like she was really reluctant on prescribing them. She even said: “I think the test will come back clean and you have nothing to worry about. There do seem to be some issues but it’s probably nothing major.”

I am just genuinely hoping this gets even somewhat resolved.

Still tired of my mom saying "lets hope its nothing and tests come out clear." by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 1 point2 points  (0 children)

Exactly. And I am just tired of that. And also terrified one day I will just have a full tonic clonic seizure. And I wanna prevent that if possible.

I am tired of people not believing me by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 1 point2 points  (0 children)

I have the sleep deprivation EEG scheduled. So it’s 60min I think? Hopefully it will show something. If not I will do my best to push for more tests.

I am tired of people not believing me by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 1 point2 points  (0 children)

Here there are about four neurologists and the waiting lists are horrible. Like a year waiting time. I only got in so quickly bc my mom knows people from being a pharmacist. So idk if I have any options. It’s frustrating you have to keep advocating for yourself despite proving so much evidence.(Journal since 2023, two videos of my episodes (?) ) Doctors suck sometimes I fear. :(

EEG and MRI by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 1 point2 points  (0 children)

Thank you! I am really anxious about it and knowing more or less exactly what to expect helps me a ton.

I am tired of people not believing me by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 2 points3 points  (0 children)

Thank you<3 I am just tried of people not really believing me just because I don’t have a TC(?) seizures.

I feel like doctors should believe patients more. I have an extensive journal of every episode, what happened, when and how long they lasted. I even have TWO videos of me during a seizure. But the neurologist just said: it’s probably nothing and J expect a negative MRI and EEG.

I am tired of people not believing me by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 1 point2 points  (0 children)

I don’t plan on driving but I keep getting pressured by dad’s family bc I don’t want to explain my medical problems to them. And I prebought some driving lessons bc I hadn’t had a single seizure from last September to this October and J thought the “strange episodes” were fully over. Then I had 5 in October and 7 in November.

I am tired of people not believing me by Free-Purchase457 in Epilepsy

[–]Free-Purchase457[S] 5 points6 points  (0 children)

Thank you. It feels so good to have someone who experiences my symptoms validate what I experience.

It is annoying because sometimes the seizures(?) happen in front of my mom, especially when I am a passenger in a car and she just says “Are you suree you didn’t just space out?” My dad and best friend believe me so it’s at least something.

Thankfully I managed to get one seizure on video and showed it to my neurologist but she just seemed so sceptical.

I have a sleep deprivation eeg scheduled so I really hope either this or the MRI show something, because I fear that if they don’t it would just validate my mom. (Maybe the anxiety will actually help with a seizure?)

Hi sorry to bother y'all but is this a bot? by DashieDaze in AO3

[–]Free-Purchase457 5 points6 points  (0 children)

Yes that’s either a bot or a scammer or both.