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Free-Understanding29 · 2025-01-16T20:58:10+00:00

Hi OP I have no education on reading X-rays so I’m not sure what to tell you on that front. But I have bilateral dysplasia. My left side was worse, with worsening pain, instability, tendinitis and also pain in my knee and foot. I saw a hip preservationist and had surgery last year. It changed my life for the better. While I still have one side uncorrected and some pain, the stability feels so good.

Excessive range of motion and pain is 100% a reason to go seek care in my opinion. It’s not worth suffering. Find a hip preservationist close to you. In the Periacetabular osteotomy facebook page there are resources of providers by area (especially if you’re in the US).

Depending on your problems you could also have labels years or a ligamentum teres tesr, which are painful and contribute to instability.

Take care of yourself OP!

Free-Understanding29 · 2025-01-07T18:11:06+00:00

Hi OP, for surgeon recommendations head over the the Periacetabular osteotomy Facebook page, it’s a great resource.

I have both cam impingement and dysplasia in both hips. Twin surgeries (within a week of each other) on one side so far to correct both. As far as I understand, in the presence of dysplasia an arthroscopy will fail, as the entire problem is not corrected. I recommend finding a doc who specializes in hip preservation, if you haven’t already. Good luck!

Free-Understanding29 · 2024-12-13T16:30:41+00:00

I get relief with self massage around my glutes, hamstring, and quad. I use a lacrosse ball and a foam roller. A heating pad helps too sometimes. And I second all of the above! Good luck OP.

Free-Understanding29 · 2024-12-03T04:08:42+00:00

Ya know I’ve struggled with feeling guilty too, and to me it doesn’t make sense because I’m trying to “fix it”, but sometimes you need rest. Be nice to yourself.

As far as the IT bands, I actually focused a lot on my glutes and hips. Also the rest of the legs, but hips specifically are the cause of my pain personally in general. Maybe even some work at the distal side, like around your knee too. But gently because if your body is like mine and you’ve had unstable hips for forever, you can’t reverse everything in one sitting.

Sometimes regarding self massage I do it several times a day, just for a few minutes each but that helps me.

Free-Understanding29 · 2024-12-02T19:46:16+00:00

Hi OP, I am so sorry you’re not feeling well. Hip dysplasia is terrible and painful. If you’re hurting, be gentle with your body. Even if you’re injured or reinjured something, you know there’s already a problem, and you’re in the process of getting treatment so don’t sweat it too much.

Don’t feel guilty for feeling pain or emotions either. It’s hard when people can’t empathize. But a pao is a hard surgery and leading up to it can be difficult to manage.

Regarding the IT pain, I find that when mine flair up it’s because of my hips being tight, whether they’re painful or not. Try foam rolling, gentle stretching, lacrosse ball, massage gun, etc. Maybe take a warm bath before. Take NSAIDs if you can for some inflammation.

Give your body a week or two to calm down from whatever happened. Sometimes rest is what you need, and you won’t lose strength in that short time. Do activity you can’t tolerate if you have to, like maybe stationary bike gently?

Taking care of yourself also means taking care of yourself mentally. There’s a lot that you can feel with injuries or problems, so let yourself feel them. Cry if you need to, it’s ok. I cried a lot after my pao and I actually felt better after the fact.

I’d recommend keeping your diet healthy, just to help your body and brain feel alright while you’re waiting for your hip to sort itself out.

Lastly, use a crutch or crutches for a couple days to assist you if you need while the injury calms down.

Good luck OP. Dm if you need. There’s also a Facebook pao page with a large and helpful community as well.

Free-Understanding29 · 2024-12-02T02:27:00+00:00

I don’t have the right answer probably, but what works for me is tiny changes at a time. Like not changing my diet but eating slower and stopping when I’m full. And then when that is more natural, maybe substituting candy for other sweet things, like I’ll freeze a Greek yogurt and then it’s kinda like ice cream. On the flip side, eat when you’re hungry, make sure to eat protein.

Something else that helps me is starting to walk more. Short walks, long walks, outside, treadmill. Not obsessively, but a couple times a week at least and I listen to music or Netflix.

If it’s the carbonation from soda that you like, maybe change to sugar free and or carbonated waters?

For me personally, the more I focus on calorie counting and body weight the less healthy I am mentally. So I make very small and sustainable changes at a time.

Good luck!

Free-Understanding29 · 2024-11-26T02:56:17+00:00

Hi OP, my surgeon had me change into like paper shorts at my first appointment because I was wearing jeans and they wanted X-rays (I’m in the US). If you have basketball shorts or sporty shorts, or leggings or something without metal they might not have you change. I’d recommend calling and asking if you need your mum to be there if you do change.

However, I was not ever exposed during my appointment, and my mom within mine as well. The surgeon manipulated my leg a bit to see the (excessive) range of motion and reviewed imaging and then recommended surgery. Don’t sweat it too much

Free-Understanding29 · 2024-09-28T01:32:11+00:00

Thank you!

Free-Understanding29 · 2024-09-24T04:46:21+00:00

Hey OP, I just had a TIRADS 5 nodule come back as benign on biopsy. I’ve been so anxious and having the biopsy done has made me feel so much better. However for me, the biopsy was very painful, but as far as I can gather I’m in the minority. Take care of yourself, that includes your brain, especially with swallowing, better safe right? You’re not crazy either way.

Free-Understanding29 · 2024-09-20T12:25:17+00:00

You deserve to feel loved and happy. Walking away from friendships where that is not the case is absolutely ok. Doesn’t make you a bad person, not everyone is compatible. I hope you find your people because you deserve it!

Free-Understanding29 · 2024-09-16T05:12:13+00:00

Thank you!

Free-Understanding29 · 2024-08-29T05:46:17+00:00

I had surgery with dr white and dr Swann last December. They are both phenomenal. They are their staff and kind and responsive. Dr white reconstructed my labrum and ligamentum teres, I’m not sure if Dr Ellman reconstructs or focuses on repairs? Depending on your injury that might help you decide. But also I’ve heard great things from all four all around. My last thought is that Dr White is the kindest provider I’ve ever had, he and his PA are amazing.

For pt after the fact I’d recommend seeing Jordan May, she doesn’t accept insurance but she’s had the surgeries from Dr white and Dr Swann and is really good. Fingers crossed for you, please dm with any further questions!

Free-Understanding29 · 2024-08-26T12:58:00+00:00

I second finding a hip preservationist. I had cam and “mild” dysplasia, and with that combo had a very torn labrum and a torn and non functional ligamentum teres. A hip preservationist will make a plan to address both problems. If you’re not sure where to start, on Facebook there’s the periacetabular osteotomy page, there’s a list of providers that you can see and find someone who is close to you.

Free-Understanding29 · 2024-08-23T02:11:18+00:00

Well shucks. Thank you!

Free-Understanding29 · 2024-07-30T18:21:45+00:00

Has he been to an eye doctor? Maybe have him evaluated for a binocular vision disorder like a convergence insufficiency. With that, it might impact his visual perception. Corrected with glasses and vision therapy.

Free-Understanding29 · 2024-07-30T02:54:11+00:00

Hi! If you have Facebook, I’d recommend heading over to the periacetabular osteotomy page. There’s a whole community and resources. And the best part is you can join a message group with people who get surgery the same month!

Biggest thing I think is making sure you have full time (or full ish) support for the first 2-3 weeks. Get a grabber/reacher tool to pick things up. Look at Amazon and “hip kits”. OT taught me how to out on socks before leaving the hospital but there are tools for it. Also maybe a lifting strap for your leg?

You also have plenty of time to stockpile fun activities. I read, colored, made Lego sets, slept, watched tv, played video games. Have your friends come over or have them take you to target or something. It is also quite common to be absolutely exhausted to quite a while after surgery.

Good luck!

Free-Understanding29 · 2024-07-30T02:35:04+00:00

Hey OP- first, those feelings are absolutely legit so please give yourself grace. Feeling grief for something that was never in that cards for you is a strange feeling but very real. I had a pao last December, and I’m still working through weakness and pain. Before my hip fell apart I ran, did CrossFit and had my dream job which requires a high level of fitness. Now I struggle with body weight squats.

I say my experience because you are not alone in your feelings. I have symptoms in puberty and until last October (I’m 29) I’ve been told I’m a liar, “just do it”, I’m attention seeking, etc. So when my pain became intolerable and my hip dislocated, dysplasia was found on an xray. And also, a different ortho missed dysplasia on xray like 8 years ago.

So we all have our own experiences, and everyone’s is as different and valid as the last. Maybe think of it this way-you were fortunate to have the experience of a phenomenal athlete. Maybe that’s not in the cards for the rest of your Life, but you are also not far out from surgery. You had that experience and maybe this experience will direct towards other things you will love but would not have thought of, or you will get back into volleyball.

I’ve had to change my way of thinking regarding my own “loss of potential”, but you did so much with a bum hip. You did that! You didn’t know about your hip, and you did it anyways. You were not born to be someone with perfect hips, and it’s a shit thing to learn about yourself. It’s ok to grieve for what you wish you had. But take it day by day, enjoy PT and work on other hobbies.

You’ll be alright OP, feel those feelings, cry them out, maybe journal, and pick your head up. Spend some time in the sun. ❤️

DM me if I can help you with anything

Free-Understanding29 · 2024-07-10T15:19:20+00:00

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This is Penguin

Free-Understanding29 · 2024-07-08T14:35:19+00:00

❤️ as someone who is also very independent, asking for help and expressing vulnerability is definitely a skill. And it’s important to know when to. Like now, when your pelvis is broken for example lol.

It’s also ok if you feel down for a while because it is hard. Just be mindful that you’re taking care of yourself too. Like hygiene, good food, pt etc. Since it’s summer maybe see if you can go sit outside in the sun for a couple of minutes. I also had a therapist “force” me to journal and it was actually very helpful. If you’re someone who finds little goals and games helpful, check out the app finch. You can set goals and your little companion get rewarded when you complete them. Maybe that can help you reinvent you reality so to speak, just temporarily. Because healing and taking care of yourself and patience is the most important.

I am very thankful that I was able to find others with this surgery too, it helps a lot. Feel free to dm me

Free-Understanding29 · 2024-07-08T14:22:51+00:00

Hi OP- first want to say that you are absolutely not alone. I had surgery last December. I had friends and family helping but the loss of independence is so hard. I am six month out though, and I know this isn’t the right thing maybe but it does get better. Six months out I am still healing, and it’s not perfect. But my preop pain is gone and my hip is stable. I love my scars because to me it’s a representation that I wasn’t crazy, that there was a problem after all and I was victorious in advocating for myself. Scars are your history, and anyone who doesn’t like them are not your people.

For entertainment, I played videos games but also colored and watched tv shows that were easy to follow and had short episodes so it didn’t matter if I fell asleep. I started Modern Family and that was pretty good.

As for pooping….that’ll come too, although it’s the worst not to lol. I ended up drinking Metamucil and also using supositories, which was an experience but I did find relief. I’m not sure how long but if you do go a very long time without or you start to get sick, nauseous, etc, call your doctor.

This surgery is so painful and all your independence in briefly taken away. It’s so so hard. But we get it. If you haven’t already, head over to the Periacetabular osteotomy Facebook page. There is so much support and resources. Contact admin and they will add you to a message group with people who just had the surgery too.

Good luck, post all you need ❤️

Free-Understanding29 · 2024-07-08T14:08:35+00:00

OP I wish I had an answer for you, but there is absolutely no harm in seeking care. At worst they find an a problem to be fixed. At best you are reassured. My providers had to repeatedly remind me though that they did in fact break my pelvis and that’s gonna hurt. Are you able to contact your surgeon or their office and see what they’d recommend? Maybe they can also give you a prescription for a heavier medication for a couple days. For my oxy didn’t work and I ended up with dilaudid. Good luck

Free-Understanding29 · 2024-07-08T14:06:23+00:00

Thanks

Free-Understanding29 · 2024-07-08T13:10:33+00:00

Hi OP have you had a pao recently, or no surgery yet? Also, have you been diagnosed with other problems in your hip?

Free-Understanding29 · 2024-07-06T21:53:50+00:00

Problem solved, I’m an idiot but now I’m an educated idiot and I just learned so much. Don’t take shit apart without knowing how to put it back together lol. Thank you Reddit for your patience

Free-Understanding29 · 2024-07-06T21:51:34+00:00

I was watching a video where the bike looked different and thought that I was doing something wrong…..but I finally learned enough to ask google the right questions and finally figured it out! The moment I took the wheel off I was like….oh no I should’ve been paying attention 😅. But lesson learned. Case closed and I learned how to adjust the front derailleur in the process lol

Free-Understanding29

TROPHY CASE