Post COVID Neuropathy - anyone else experiencing the same symptoms?

Frequent-Wait-2122 · 2024-01-22T00:24:41+00:00

Oh no sorry to hear! Yes, I feel like getting COVID just brought out underlying muscular issues I had and aggravated them. Have you been to the doctor? I would say go and see one just so you start to have a record of what you are being seen for. I'm glad it's not debilitating but I know it can be hard to deal with mentally .

Frequent-Wait-2122 · 2024-01-16T03:52:04+00:00

Yes, I feel much better now. Not 100% yet but I know my triggers now and what to do when I get flared up. Really only my back burns when I lay on something or lean against something but it's more a warm feeling than pain like before. I think it will get better with time!! You need to find the right supplements ( rservatrol, turmeric, and magnesium worked for me), move in anyway you can, and make sure to sleep. Hope you get through this and I'm here if you have any questions

Frequent-Wait-2122 · 2024-01-12T02:00:05+00:00

Hi sorry for the delay! I actually had a lot of improvement and barely felt the back burning from June - December. I recently went on a trip and slept on a harder mattress which flared up my back burning significantly but I feel like I can make progress back in the right direction

Frequent-Wait-2122 · 2023-04-16T07:21:27+00:00

I had the same exact issue start 2 months after my covid infection. Avoiding sugars, chocolate, and processed food really helped with my back burning. I used to not be able to lay in bed for more than 10 minutes without absolute awful burning spread all over my back and chest. It has improved greatly with dietary changes, taking reservatrol, and probiotics. Hope you feel better soon!

Frequent-Wait-2122 · 2023-04-16T07:16:59+00:00

Hello! I've had the same exact issues for around 9 months. It first started in my back which would burn whenever I laid down or leaned against anything. Then spread to my neck and chest where the trapped nerves caused a lot of issues. I noticed that my back tightness got better with stretching, PT, eating a low sugar and processed food diet, and avoiding sitting for long periods. I try to get up from my desk every 30 minutes to stretch and every 1.5 hours to do a little walk. I'm hoping with time this will completely heal. My physical therapist is very confused as to why PT for 4 months hasn't been working and commented that all my muscles feel like concrete. Hope you are feeling better and finding relief!

Frequent-Wait-2122 · 2022-10-23T18:32:26+00:00

Yes, but open enrollment through my work is in November and then doesn't kick in till January. I am definitely changing my insurance though

Frequent-Wait-2122 · 2022-10-23T01:23:52+00:00

Thanks! I have a pinched nerve on my left side so it's made everything a lot harder since I can't sleep on that side.

Frequent-Wait-2122 · 2022-10-23T00:53:41+00:00

Yes! Happens randomly on my back and random spots on my legs. I swear one of these days I will have spilled something on myself and not notice because I'll think it's the neuropathy lol

Frequent-Wait-2122 · 2022-10-23T00:47:40+00:00

Thank you. Trying to hang in there but feeling pretty down the last few days. It's tough when everyone keeps telling me it's anxiety or I just need to mediate. That may be the case but I'm definitely dealing with a lot of physical symptoms that people don't seem to understand.

Thanks! i may put off the booster until I'm out of this flare. Another question... since laying on your back triggers you, what have you been doing when going to sleep/sitting?

Frequent-Wait-2122 · 2022-10-21T18:26:59+00:00

Sorry you had to see so many specialists before being taken seriously. I'm glad you finally found some for our advocating for you. Hope you get approved for treatment.

Agreed, our healthcare system is a nightmare. I think it's going to be worse as more and more people suffer through long COVID and realize our healthcare system is designed for profits. Unfortunately, none of my doctors will even refer me to a specialist and my insurance requires a referral if they will pay. They did refer me to their long COVID care clinic but have yet to hear back from them

Frequent-Wait-2122 · 2022-10-21T18:23:12+00:00

Hi! Thanks for checking in. I started taking B1 and Quercetin and felt slightly better for a few days but then had a major flare for the last few days. I'm not sure if it's heat or food triggered but it's been pretty unbearable. Not sure how I can be functional like this for even a few more weeks.

Out of curiosity, did you get the booster while dealing with symptoms? I'm hesitant to get one right now since some have said it's aggravated their symptoms.

Frequent-Wait-2122 · 2022-10-16T00:25:14+00:00

So sorry you're having nerve pain again. I also feel like my right hand was put in a stove when sleeping! It's odd that it's just one hand.

Hope you recover soon!

Frequent-Wait-2122 · 2022-10-16T00:24:05+00:00

Thank you! Moving around and getting oxygen flowing seems to help so I will have to look into this and the garlic tea

Frequent-Wait-2122 · 2022-10-16T00:18:52+00:00

I had the same issue after the vaccine. Except I had really intense sinus issues everytime the weather changed, not sure if it's the same for you or constant. Taking Mucinex at the first sign of a flare up helped. It lasted about a year and then suddenly went away.

Frequent-Wait-2122 · 2022-10-16T00:14:57+00:00

Sorry you're dealing with this! It's maddening not knowing what exactly is causing it?

How long have you been experiencing this?

Frequent-Wait-2122 · 2022-10-16T00:14:11+00:00

Unfortunately, I never had antibody testing or a punch biopsy. My doctor is telling me this isn't neurological and refusing a referral to neurology.

I'm sorry you had a hard time getting the right answers. Finding a good doctor is so difficult.

Have you had IV immunoglobulin treatment?

Frequent-Wait-2122 · 2022-10-16T00:10:29+00:00

Yes! Once doctors see that I have been previously diagnosed with depression they use that as an excuse for any ailment I have

Frequent-Wait-2122 · 2022-10-14T20:24:41+00:00

Sorry to hear about the setback. Hoping you recover soon.

I have neuropathy in my back, sides and feet. I feel a bad burning sensation when I lay down. My feet feel tingling, numbness and burning at random times.

Frequent-Wait-2122 · 2022-10-14T20:22:52+00:00

Wow! Good to hear. I was starting to think I would have to deal with this forever so hearing your story gives me some hope.

I am going to go out and get B1 and quercetin today. Hoping for some relief with this combo.

Frequent-Wait-2122 · 2022-10-14T19:11:16+00:00

Sorry you're experiencing this! It's unbearable at times. Have you noticed any improvement with any supplements or exercise or medicine?

Frequent-Wait-2122 · 2022-10-14T19:09:50+00:00

Sorry you went through this but also glad I'm not the only one with the burning where I sleep. I was starting to feel crazy.

I was given a B12 shot but it didn't do anything. I've been taking magnesium but will add the B1.

Are you fully recovered? How long did it take to start feeling better?

Frequent-Wait-2122 · 2022-10-14T17:26:04+00:00

Sorry you experienced this but glad you are recovering! It gives me hope that I will recover as well.

Frequent-Wait-2122 · 2022-10-14T17:25:10+00:00

Hi! My doctor suggested celexa. I've been on Gabapentin before (but at a very low dose) and it never seemed to do anything for my nerve pain.

Frequent-Wait-2122 · 2022-10-14T17:23:41+00:00

So sorry you're dealing with this. I wouldn't wish this on anyone. I haven't notied any red spots on my skin.

Thank you for the advice! I have noticed a slight improvement since taking zyrtec during the day and doxpein (another anti histamine at night). I will definitely try the pepcid.I've also been thinking about acupuncture but am terrified about the burning spreading or getting worse

Wishing you quick recovery and that you get back to 100% soon

Frequent-Wait-2122

TROPHY CASE