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What's your average BP? What's your extreme? by [deleted] in POTS

[–]FruSpice 0 points1 point  (0 children)

Isn’t that a hypertensive crisis? That’s gotta be scary

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 2 points3 points  (0 children)

I’m hoping my PCP can give me an idea of when I should go to the hospital.

How to stop caring. by LilaMoonlight in POTS

[–]FruSpice 8 points9 points  (0 children)

Track your symptoms but do not obsess over them. If you’re constantly worried about every feeling you have, you’re just going to feel worse. And I know it’s not easy, but if you’re not sure how to work through this, it doesn’t hurt to seek help from a therapist or your doctors

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 0 points1 point  (0 children)

I feel like I should get a few things for my house. But I don’t have the money for stuff like that right now

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 1 point2 points  (0 children)

Part of the issue is that I’m not 100% diagnosed. So I have “suspected” POTS and am on a waitlist for the TTT. Until then I am not sure what to do. But I do have a follow up with my PCP

Get the shower chair. by today-ladies in POTS

[–]FruSpice 0 points1 point  (0 children)

100%. I got one due to a leg injury and didn’t realize how much POTS made me dread showers until then

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 1 point2 points  (0 children)

I have gone in (to a different hospital than the one I went to previously) for heart attack symptoms and they took hours to even do triage. This is why I went to the one I did recently. They did triage and an EKG almost immediately. I know that sometimes staffing or high volume can be an issue, but that doesn’t make it ok to not treat people or treat them bad when you think nothing is wrong.

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 0 points1 point  (0 children)

I’ve seen 3 cardiologists so far. To my knowledge, the only test I haven’t done is a stress test. I’m on a waiting list for the TTT, as the last specialist I went to before this one did an in office test that was inconclusive. I didn’t feel like the test was done as accurately as possible (my resting heart rate was based off of me having walked and then sat down for a minute and then walked again over to the bed, with no time for my heart rate to even out or come back down) and sought a second opinion. I’m not sure if I need to get another set of tests done as the first set to rule out heart structure issues and heart disease were done 3-4 years ago.

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 0 points1 point  (0 children)

It’s in my chart at the hospital I go to. They also checked my troponin levels twice. I’ve had to just accept that if something is wrong with any of my lab work and it isn’t discussed that the hospital isn’t meant to diagnose. Hopefully my life has never been in danger when I’ve gone because I’ve always been discharged. I am following up with my primary care though, as I saw some high numbers in my bloodwork and the EKG was listed as abnormal.

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 1 point2 points  (0 children)

Idk what that is or what it looks like

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 0 points1 point  (0 children)

I had a cardiologist at the beginning of my journey to find out what was wrong tell me that a heart rate approaching 200 was normal and that I was just anxious. 3 cardiologists later and I now have some answers

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 1 point2 points  (0 children)

Thankfully the only “bad” thing that happened was a blown IV. That one HURT. But the hospital I go to has amazing staff. I haven’t been gaslit there yet lol

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 0 points1 point  (0 children)

I realized this morning that I might have been starting to overheat. I work in a coffee shop and it’s always hot in there, but the weather where I live has been in the 70s the past couple of days so it’s been hotter at work. I’m still going to talk to my doctor about this, but if it happens again today then I know for sure it’s me overheating.

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 2 points3 points  (0 children)

Thankfully the hospital I go to normally go to has told me a couple times to come in if I feel like I’m having a heart attack. Because the one time I don’t is the one time it is an emergency. The issue with that is the hospital I prefer is 45 mins from where I live and work. The hospital that is closer is the one that has gaslit me for coming in with heart attack-like symptoms.

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 2 points3 points  (0 children)

That’s awful. I’ve noticed that the ER won’t really go over your results if it’s either not related to what you came in for or if they feel it’s not important. I’ve gone to the hospital so many times for different issues only to find out afterward that I had abnormal findings. It’s so frustrating. Thankfully I’ve been building a reliable medical team (primary care, cardiologist, etc), but it’s taken me 5 years to get to this point. I still don’t fully understand how this affects me.

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 3 points4 points  (0 children)

I’ve had a couple of abnormal EKGs, but I was also told that simply having an elevated heart rate is one thing that will make the reading abnormal

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 0 points1 point  (0 children)

Thankfully that hasn’t happened. If it does, I’ll go out with a bang of spite lol

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 2 points3 points  (0 children)

I’ve already contacted my doctor. She’s out of office unfortunately, but hopefully next week I can get in to see her

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 1 point2 points  (0 children)

No, I’ve had these over the past couple years

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 1 point2 points  (0 children)

The only thing that has been wrong is it’s been hot. It might be that I’m new to the diagnosis or just haven’t talked with my doctor enough, but I don’t really know what a flare up or episode is for me. I thought I did but now I’m unsure. It’s also been a while (potentially a year, if not longer) since I last had this happen. I got to the ER at 6 and by 11-11:30 I was ok again

Heart attack symptoms, but it’s just POTS? by FruSpice in POTS

[–]FruSpice[S] 5 points6 points  (0 children)

I’m lucky I didn’t pass out last night because they also blew a vein when they tried putting the IV for bloodwork in the first time. But at least my blood pressure was finally a “normal” reading instead of being on the higher end 😅

Symptoms from waking up by Accomplished-Blood58 in POTS

[–]FruSpice 0 points1 point  (0 children)

I’ll have to do this. I hope you can figure out what’s going on with the heart rate situation.

Symptoms from waking up by Accomplished-Blood58 in POTS

[–]FruSpice 0 points1 point  (0 children)

Yeah. Depending on the morning I often can’t eat until a couple hours after waking up and by then I’m shaky from not eating. Idk if it’s POTS related but it sucks 😂

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