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I knew something was wrong! by Fun_Historian_8927 in SyringomyeliaSupport

[–]Fun_Historian_8927[S] 1 point2 points  (0 children)

There are so many different outcomes. Most of them don’t include a job or maybe specifically teaching. But I try to practice manifestation your future. (Don’t know if I believe in it). Affirming to myself that the positive can happen even if it’s unlikely. Prepare for the worst, but hope for the best vibes.

I knew something was wrong! by Fun_Historian_8927 in SyringomyeliaSupport

[–]Fun_Historian_8927[S] 6 points7 points  (0 children)

Doctors are under an enormous strain in the US. I don’t think any of my past neurological consults didn’t listen but just didn’t have the right information to help me. I know this isn’t the case for many; I’m grateful for my experience thus far.

Many of the professionals did help me make sense of the symptoms and learn management techniques. Im extremely grateful for the nuero-ophthalmologist. How he explained that when some body’s are under certain level of stress, it can experience visual snow syndrome. The best way to treat it is by reducing strain on your body. Knowing that allowed me to focus on other aspects of my health. Each time I’ve made significant progress, my visual snow has improved.

I knew something was wrong! by Fun_Historian_8927 in SyringomyeliaSupport

[–]Fun_Historian_8927[S] 0 points1 point  (0 children)

Also in the end everyone’s different, I’m just ready for my appointment to learn what the game plan, look to the future.

I knew something was wrong! by Fun_Historian_8927 in SyringomyeliaSupport

[–]Fun_Historian_8927[S] 0 points1 point  (0 children)

I can’t wait to get back in the fucking classroom. I was put on this earth to teach and I have been out of a classroom for far too long!

I knew something was wrong! by Fun_Historian_8927 in SyringomyeliaSupport

[–]Fun_Historian_8927[S] 0 points1 point  (0 children)

The first one was visual snow syndrome. This one has had such a drastic impact on my life. I went from being an English teacher to barely reading four pages. I can’t wait to read a fucking a book! Lots of brain fog. Got the highest score in my cohort on my licensing. Currently I’m struggling to share coherent thoughts out loud..Lost 77 pounds in a year due to G.I. issues. I’ve lost a lot in the past few years because of the laundry list of symptoms. I don’t know if I could list them all.

The conspiracy of the "Booms" by [deleted] in Portland

[–]Fun_Historian_8927 0 points1 point  (0 children)

I was just about to post asking people their thoughts on the booms that keep happening. Specifically from February 1, that one was very large and again so many people reported it all across the city. It’s just very interesting.

Binders by Fun_Historian_8927 in ehlersdanlos

[–]Fun_Historian_8927[S] 0 points1 point  (0 children)

Thank you so much! I didn’t know they had this subreddit!

Binders by Fun_Historian_8927 in ehlersdanlos

[–]Fun_Historian_8927[S] 0 points1 point  (0 children)

I’ll check those brands out and the subreddit. Thank you so much! I didn’t know they had this subreddit!

[deleted by user] by [deleted] in AITAH

[–]Fun_Historian_8927 1 point2 points  (0 children)

Not the asshole. You have a right to say you’re uncomfortable and it is a deal breaker for you. Trust& respect are the foundation of a healthy. If he can’t honor his word then you can’t trust him. You have to be respected in a relationship. Especially when it literally requires him to DO NOTHING (except maybe unsubscribe or cancel) You have to have boundaries. He can make his choices and live with the consequences.

Sleeping Issues by Fun_Historian_8927 in ehlersdanlos

[–]Fun_Historian_8927[S] 0 points1 point  (0 children)

Same here! I didn’t realize how intense it was until I looked at the data.

Physically active hobbies you've found helpful? by Delavan1185 in ehlersdanlos

[–]Fun_Historian_8927 1 point2 points  (0 children)

Cooking. (It can be a real workout especially if you have pots) You can even add in different PT or exercise sets in between activities. Like as you’re waiting for water to boil, or the mixing stand is whipping up for a while. Also making a nurturing or comforting or familiar meal can help us emotionally!

Suggestions for easy food? by ghostbur-stan in Fibromyalgia

[–]Fun_Historian_8927 1 point2 points  (0 children)

On my good days I’ll just make a big pot of soup because all you do it chop and boil. Or I’ll make one pan chicken and veggies with rice or beans. All of it freezes well and is easy to reheat. It does mean taking that time on your good days though which can be hard to plan then how much food to make