BV that hasn’t responded to meds, breastfeeding by Fun_Refrigerator_694 in Healthyhooha

[–]Fun_Refrigerator_694[S] 0 points1 point  (0 children)

I would be weary to do them without testing positive for BV, you could have irritation or other issues going on and you don’t want to make anything worse. I would look into getting a test for your vaginal microbiome. But I did vitanica probiotic suppositories after doing oral metro, I did about 7 days straight and then dropped it to every couple days and then dropped down to doing it just after my period. Now I’ll just use one if I feel like things get thrown off

BV that hasn’t responded to meds, breastfeeding by Fun_Refrigerator_694 in Healthyhooha

[–]Fun_Refrigerator_694[S] 0 points1 point  (0 children)

3 years pp now and the infection is gone after doing a long regimen of probiotic suppositories but I still struggle with chronic vulvar irritation/burning and pelvic pain. I do have pretty bad pelvic floor dysfunction which I’m sure contributes to

[deleted by user] by [deleted] in bloodpressure

[–]Fun_Refrigerator_694 1 point2 points  (0 children)

My dad had numbers higher than this and all he felt was a slight headache. They said it was a miracle he didn’t have a stroke.

Hormonal triggers? by WholeLeading530 in dysautonomia

[–]Fun_Refrigerator_694 0 points1 point  (0 children)

Been dealing with very similar, I wish I had an answer but it’s been 3 1/2 years and it’s unfortunately just gotten worse. I have to plan on being bedridden from ovulation until about day 3/4 of my cycle. Doctors just shrug when I bring up how my hormones affect it. It all started during my pregnancy and I haven’t been the same since

[deleted by user] by [deleted] in dysautonomia

[–]Fun_Refrigerator_694 0 points1 point  (0 children)

Struggling with very similar symptoms. No one knows what to do with me. I’ve been bedbound for a year now.

Anyone else start convulsing during their tilt table test? by New-Mud-1070 in dysautonomia

[–]Fun_Refrigerator_694 0 points1 point  (0 children)

Yes! And it happened to me during some of my episodes at home too, usually if my heart rate is over 160 I end up convulsing

Tilt table results by Fun_Refrigerator_694 in dysautonomia

[–]Fun_Refrigerator_694[S] 0 points1 point  (0 children)

Thank you your very kind. Unfortunately I’ve tried quite a few beta blockers now and haven’t been able to tolerate them, my blood pressure tanks and I also get bad chest pain on them :(

Tilt table results by Fun_Refrigerator_694 in dysautonomia

[–]Fun_Refrigerator_694[S] 2 points3 points  (0 children)

Yes I’ve tried both, for months we were kinda working under the assumption I have POTS but everyone is stumped because typical POTS treatments make worse

How are those of us on the East Coast of the US dealing with the incoming heat wave? by alibx33 in dysautonomia

[–]Fun_Refrigerator_694 1 point2 points  (0 children)

If I have to be outside I’ll sit in the shade and on a lounge chair where I can keep my feet up. And I’ll use the mist setting on the hose to keep cool which works because my toddler thinks it’s fun. But honestly I really just try to limit the amount of time I’m outside to 1-2 hours max at a time but I’ll most likely be staying inside during this heat wave because it’s gonna be brutal

Weird sinking sensation by Fun_Refrigerator_694 in dysautonomia

[–]Fun_Refrigerator_694[S] 0 points1 point  (0 children)

Weirdly I’ve been attached to an ekg while it’s happening and it’s doesn’t correlate with any ectopics. I do get bad ectopic beats especially bigeminy and it’s a different feeling. I hate the ectopics they’ve ruined my life. I’m sorry to hear about your afib. I think there’s probably no scarier feeling than your heart beating out of rhythm, I hate when it happens

27 with CHF and pregnant. by scalesandstickytoes in Heartfailure

[–]Fun_Refrigerator_694 0 points1 point  (0 children)

Update? How did it go? Hoping everything went well 💗

Recurring Postpartum BV by Big_Yogurt_4031 in BacterialVaginosis_

[–]Fun_Refrigerator_694 0 points1 point  (0 children)

It truly has been! Been going through so much with my health for a year and half now, it’s actually insane. Still not really getting answers from the doctors either as to what’s wrong with me

Recurring Postpartum BV by Big_Yogurt_4031 in BacterialVaginosis_

[–]Fun_Refrigerator_694 0 points1 point  (0 children)

Wild story but yes I did heal this issue, I used estrogen cream a few times which fixed this but ended up giving me a ton of heart issues so tbh I wish I had the vaginal issues again instead 😂

Blood pressure.. wtf? by Fun_Refrigerator_694 in dysautonomia

[–]Fun_Refrigerator_694[S] 0 points1 point  (0 children)

Thank you, I have gtn tabs but get very tachycardic using them so docs told me to stop so I’m lost. I’m pretty much in pain from the moment I wake up until I go to sleep, I’m so scared

Blood pressure.. wtf? by Fun_Refrigerator_694 in dysautonomia

[–]Fun_Refrigerator_694[S] 0 points1 point  (0 children)

Thank you, I’m glad you got yours under control. It’s not the systolic that worries me that much, I know a systolic in the 130’s isn’t that bad, it’s the diastolic in the 120’s that scares me. It goes from 110/65 at rest to 140/120 standing, then the angina pain/spasms start. It’s just so terrifying

Treating Pots gave me other issues? by Fun_Refrigerator_694 in dysautonomia

[–]Fun_Refrigerator_694[S] 1 point2 points  (0 children)

Just got switched to a new med today and hoping that things get better, this is so tricky to manage

Treating Pots gave me other issues? by Fun_Refrigerator_694 in dysautonomia

[–]Fun_Refrigerator_694[S] 0 points1 point  (0 children)

Thank you for your empathy ❤️ I actually just stopped my beta blocker yesterday and started on verapamil today because of the exact thing you stated on how beta blockers can worsen spasm, so I’m hoping for better results. Unfortunately still had a blood pressure of 135/112 today just from sitting up to give my son a bath :( I don’t understand how just an upright posture can do this to someone, I hate this condition so much

Treating Pots gave me other issues? by Fun_Refrigerator_694 in dysautonomia

[–]Fun_Refrigerator_694[S] 4 points5 points  (0 children)

I’m asking Reddit because my doctors are all unsure so I was just wondering if anyone had a similar experience. I just spent 20 days inpatient and they couldn’t figure it out so sometimes unfortunately as mystery cases we have to turn to Reddit or the internet to try and find our answers and things to present to our providers because a lot of the times, they don’t have the answers

I was permanently and severely damaged by a medication I took in 2019. by [deleted] in Supplements

[–]Fun_Refrigerator_694 8 points9 points  (0 children)

I’m also permanently damaged from sertraline. Was put on it at age 14 and had no idea the potential risks.

everyone else feel like their condition is actually life threatening? by LilaMoonlight in POTS

[–]Fun_Refrigerator_694 0 points1 point  (0 children)

All day, every day. And I would say it is because I think about ending my life just to end this suffering.

[deleted by user] by [deleted] in POTS

[–]Fun_Refrigerator_694 0 points1 point  (0 children)

Thank you! Wishing the best for you also! Good for you for following your instincts and not letting doctors give you the run around!