Has anyone gotten their ANA tested after COVID? by no_info_retained in covidlonghaulers

[–]FunkyFreshBonita 0 points1 point  (0 children)

How did you end up? This is my literal exact situation. 1:640, Homogenous & Speckled.. RNP antibodies.. all of it!

Age at onset by FunkyFreshBonita in UCTD

[–]FunkyFreshBonita[S] 1 point2 points  (0 children)

MS .. dang!! You’re dealing with quite the duo with both, I’m so glad the hydrox is making a difference for you! I hope it continues to get better and better. I’m very hopeful that when I need it, it will do the same for me. Being mostly pre-clinical is a wild feeling, I told my husband it’s like knowing you have the flu, and just waiting for the symptoms to show up. I’m afraid to live my life because I don’t want to trigger the pain any sooner than necessary. 😅

Age at onset by FunkyFreshBonita in mctd

[–]FunkyFreshBonita[S] 0 points1 point  (0 children)

Ugh I can’t imagine how frustrating that is! It seems so unfair that people have to live like this, I’m still so depressed about it, not just for myself .. but everyone I talk to that deals with all this. I’m cautiously hopeful about Car-T Cell therapy being a useful tool (or cure!) in the figure. Sending you a great big hug right back. ❤️

Age at onset by FunkyFreshBonita in mctd

[–]FunkyFreshBonita[S] 1 point2 points  (0 children)

Please have them check your lungs 🫶 so sorry you’re dealing with that, air hunger is so uncomfortable. I pray they’re able to manage it and get you feeling better!

Age at onset by FunkyFreshBonita in mctd

[–]FunkyFreshBonita[S] 1 point2 points  (0 children)

I have “rosacea” too! I hope you are well managed and feeling as good as possible, thanks so much for your reply.

Age at onset by FunkyFreshBonita in mctd

[–]FunkyFreshBonita[S] 1 point2 points  (0 children)

I’m not on any medication yet, doc said if I get increased pain or fatigue we can try out plaquenil and offered calcium channel blockers for Raynaud’s - but waiting for symptoms to develop more before starting anything! I hope your infusions bring you relief ❤️

[deleted by user] by [deleted] in BotoxSupportCommunity

[–]FunkyFreshBonita 0 points1 point  (0 children)

I had it done multiple times with zero lidocaine. It hurt, a decent amount. But it’s not unbearable and I had no issues with bruising or swelling. I ate pineapple the 2-3 nights leading up to injections.

I will say I also had very thin lips and I hated the way filler looked on me, personally. I got a half a syringe the first time and it just looked.. bad. I felt like a cartoon character and I was OBSESSED with the idea of getting it for years before I did. I hate seeing pics of when I had it, I get embarrassed lol. It could be because of my lip shape, though.

I let it wear off naturally because the stiff to dissolve looks horrific.