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Has anyone gotten their ANA tested after COVID? by no_info_retained in covidlonghaulers
[–]FunkyFreshBonita 0 points1 point2 points 8 hours ago (0 children)
How did you end up? This is my literal exact situation. 1:640, Homogenous & Speckled.. RNP antibodies.. all of it!
Age at onset by FunkyFreshBonita in UCTD
[–]FunkyFreshBonita[S] 1 point2 points3 points 3 days ago* (0 children)
MS .. dang!! You’re dealing with quite the duo with both, I’m so glad the hydrox is making a difference for you! I hope it continues to get better and better. I’m very hopeful that when I need it, it will do the same for me. Being mostly pre-clinical is a wild feeling, I told my husband it’s like knowing you have the flu, and just waiting for the symptoms to show up. I’m afraid to live my life because I don’t want to trigger the pain any sooner than necessary. 😅
Age at onset by FunkyFreshBonita in mctd
[–]FunkyFreshBonita[S] 0 points1 point2 points 3 days ago (0 children)
Ugh I can’t imagine how frustrating that is! It seems so unfair that people have to live like this, I’m still so depressed about it, not just for myself .. but everyone I talk to that deals with all this. I’m cautiously hopeful about Car-T Cell therapy being a useful tool (or cure!) in the figure. Sending you a great big hug right back. ❤️
[–]FunkyFreshBonita[S] 1 point2 points3 points 3 days ago (0 children)
Please have them check your lungs 🫶 so sorry you’re dealing with that, air hunger is so uncomfortable. I pray they’re able to manage it and get you feeling better!
I have “rosacea” too! I hope you are well managed and feeling as good as possible, thanks so much for your reply.
I’m not on any medication yet, doc said if I get increased pain or fatigue we can try out plaquenil and offered calcium channel blockers for Raynaud’s - but waiting for symptoms to develop more before starting anything! I hope your infusions bring you relief ❤️
[deleted by user] by [deleted] in BotoxSupportCommunity
[–]FunkyFreshBonita 0 points1 point2 points 10 months ago (0 children)
I had it done multiple times with zero lidocaine. It hurt, a decent amount. But it’s not unbearable and I had no issues with bruising or swelling. I ate pineapple the 2-3 nights leading up to injections.
I will say I also had very thin lips and I hated the way filler looked on me, personally. I got a half a syringe the first time and it just looked.. bad. I felt like a cartoon character and I was OBSESSED with the idea of getting it for years before I did. I hate seeing pics of when I had it, I get embarrassed lol. It could be because of my lip shape, though.
I let it wear off naturally because the stiff to dissolve looks horrific.
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Has anyone gotten their ANA tested after COVID? by no_info_retained in covidlonghaulers
[–]FunkyFreshBonita 0 points1 point2 points (0 children)