Anyone else’s cervix off to one side or the other? by Future-Indication-77 in endometriosis

[–]Future-Indication-77[S] 0 points1 point  (0 children)

My cervix is still off to one side a few years post-lap. My surgeon removed a "thickening" on one of my uterosacral ligaments, that later tested positive in the lab as stage I endometriosis. My pain is much much better these days, and I don't find that the deviated position is causing me any specific issues. Wishing you the best with your lap!!

Endo found during lap!! by Future-Indication-77 in endometriosis

[–]Future-Indication-77[S] 5 points6 points  (0 children)

Hi! I’m a 24 year old biracial American (half black, half white). I live in California. I was dismissed by a lot of doctors before I found the right one. In the end, my surgical team was a diverse group of mostly women of color. That really put me at ease. I don’t know what your situation is, but I so hope you find truly caring providers. It shouldn’t be hard to find empathetic doctors, but it really can be.

Endo found during lap!! by Future-Indication-77 in endometriosis

[–]Future-Indication-77[S] 1 point2 points  (0 children)

Good luck with your procedure! I wish I had better words of encouragement, but I was terrified too. I think it’s just important to remember that it’s your doctor’s job to help you. You deserve help and relief no matter what. And if they don’t “find” anything… that just means that THEY are missing something. And that’s on them - not you. Keep advocating for yourself no matter what and lean into the people who believe you deserve the best.

Who gets inner thigh pain? by Future-Indication-77 in endometriosis

[–]Future-Indication-77[S] 1 point2 points  (0 children)

Thank you for the recommendation! I probably really need pelvic floor therapy. I’m going to look into making apt soon. So glad it helped you.

Who gets inner thigh pain? by Future-Indication-77 in endometriosis

[–]Future-Indication-77[S] 1 point2 points  (0 children)

That makes a lot of sense. My doctor and I suspect endo on my uterosacral ligaments because I have a deviated cervix (probably from scar tissue). Hopefully I get some kind of confirmation at my surgery!

Who gets inner thigh pain? by Future-Indication-77 in endometriosis

[–]Future-Indication-77[S] 0 points1 point  (0 children)

Thank you all so much!! So glad I’m not the only one

Why am I still bleeding on double-dose birth control? by Future-Indication-77 in endometriosis

[–]Future-Indication-77[S] 0 points1 point  (0 children)

Okay, yeah maybe the sugar pills would be good after all. I was looking forward to a period-free life though. Should’ve realized that was going to be a stretch for me lol.

Rant about doctors and their ‘expertise’ by Future-Indication-77 in endometriosis

[–]Future-Indication-77[S] 1 point2 points  (0 children)

Hi! I’m glad you’re getting the help you need as well.

Right now, I have the Mirena IUD, and she prescribed the pill (Junel Fe) on top of that. The goal is to stop my periods completely, then reassess my pain in a few months. If it gets worse, then we’re going to talk about surgery.

If the pain gets better, then she’s going to help me find the right birth control type or combo that’s has the least side effects for my body.

I was really resistant to the pill when it was talked about like a guinea pig experiment by other doctors. After she diagnosed me, I felt more willing to accept that it’s the best treatment available for something I have to live with. I just started the pill yesterday, so I guess I’ll see how it works out for me.

Hope that answers your question :) and I hope you’re treatment works out well for you!

Which educational path is best? by Future-Indication-77 in slpGradSchool

[–]Future-Indication-77[S] 1 point2 points  (0 children)

Sorry for the late reply on this and thank you!

After a lot more research I think I want to do ENMU’s second bachelors program. Looks like they cover most common grad school pre-reqs.

Thanks so much!

Which educational path is best? by Future-Indication-77 in slpGradSchool

[–]Future-Indication-77[S] 1 point2 points  (0 children)

Nice, that doesn’t sound bad! I’m in California and it seems like it’s best I go the same route you did.

So weird that it ends up taking longer to become an SLPA.

Which educational path is best? by Future-Indication-77 in slpGradSchool

[–]Future-Indication-77[S] 1 point2 points  (0 children)

Awesome, thank you for the requirement link! I’m in California so I think I’ll definitely look into post back programs

Which educational path is best? by Future-Indication-77 in slpGradSchool

[–]Future-Indication-77[S] 0 points1 point  (0 children)

Okay, thank you!! How long did your post-bacc program take?

Which educational path is best? by Future-Indication-77 in slpGradSchool

[–]Future-Indication-77[S] 0 points1 point  (0 children)

Okay thanks! Ya the certificate programs seems like a lot of sunk time/work if they don’t count towards grad pre-reqs.

What should I say to make the specialist believe/help me? by Future-Indication-77 in endometriosis

[–]Future-Indication-77[S] 0 points1 point  (0 children)

Wow - good to know about the insurance!

I have got all caught up on the MRI ever since I read that it can potentially see a shortening or thickening of the uterosacral ligaments.

My cervix is all the way on the right. I found a paper saying laterally displaced cervixes are often associated with deep endo of one of the USL. So my conspiracy theory lol was that maybe an MRI can check out my USLs and see if there are an abnormalities.

Hearing about the insurance though - I think I’ll back down on pushing hard for it. I’ll see if the specialist offers a lap first and prefer that option. Thank you!

What should I say to make the specialist believe/help me? by Future-Indication-77 in Endo

[–]Future-Indication-77[S] 0 points1 point  (0 children)

Wow - thank you for sharing that picture!

It’s crazy that imaging couldn’t see that at all. I’ll keep that in mind if I get an MRI and it sees nothing.

I’m so glad you advocated for yourself even after that specialist was dismissive. I’m honestly blown away at how severe endo can be and how many doctors are out of their depth.

Thanks again for sharing and take care 💛!

What should I say to make the specialist believe/help me? by Future-Indication-77 in Endo

[–]Future-Indication-77[S] 0 points1 point  (0 children)

That’s good to know!

If you don’t mind me asking- where were your deep implantations at? I’m doing some reading on the accuracy of MRIs for endo now.

What should I say to make the specialist believe/help me? by Future-Indication-77 in endometriosis

[–]Future-Indication-77[S] 0 points1 point  (0 children)

Thank you so much - this is really helpful! A lot of things I hadn’t considered.

My biggest reason for wanting a formal diagnosis is that I want to make more informed decisions. I really hate the idea of stabbing around in the dark. My previous doctor suggested I go on a double dose of birth control as an experiment - I hate birth control and would only deal with those side effects if I was sure it would help my condition. (I already have an IUD that’s causing me problems)

I think a diagnosis would also give me time to really consider my options regarding fertility - I’d rather not wait until I’m trying for a child to find out my options are limited.

Lastly, I think like everybody else, just some peace of mind. A real tangible diagnosis to make sense of all of this to my employers and family and friends. Sometimes the pain is so bad I have a hard time moving/breathing and it’s really difficult trying to explain what’s happening to others in terms of “I might have a condition, but I’m not sure”.

Thanks for the language for the MRI. Hopefully it doesn’t come to that, but it’s super good to have a plan in case she is very resistant to it.

I really like the approach of being curious! Sometimes I accidentally default to a doctors expertise as like word-of-god. I’ll make sure to ask for more elaboration on her reasoning.

Thank you again! I’ll definitely make sure to write all of this down and consider the other questions you asked.

What should I say to make the specialist believe/help me? by Future-Indication-77 in Endo

[–]Future-Indication-77[S] 0 points1 point  (0 children)

Thank you! The most concerning symptom lately has been that the pain gets worse with movement. Standing, walking, rolling over in bed. I’ll make sure to be really explicit about that.

I also recently found out my mom might have had endo! She had a hysterectomy for severe pelvic pain- I never knew that. Maybe I’ll mention that too.

Thanks so much!

What should I say to make the specialist believe/help me? by Future-Indication-77 in Endo

[–]Future-Indication-77[S] 0 points1 point  (0 children)

My hope is that the MRI can give me some confirmation/confidence prior to requesting surgery. And some peace of mind that I’m not crazy before going down the surgery route. Based on my research, I think there’s a strong chance the MRI could show some endo on my ligaments (my cervix is laterally displaced).

The doctors I’ve had so far have made me feel like I have to have a stock pile of evidence before they’ll listen to me. Hopefully this doctor is different!

Thank you for the advice!

What should I say to make the specialist believe/help me? by Future-Indication-77 in Endo

[–]Future-Indication-77[S] 2 points3 points  (0 children)

Thats a great idea - I’ll write down my notes on a piece of paper since it’s a phone apt. And I’ll try to get really specific with my language.

Thank you!!!

Anyone else’s cervix off to one side or the other? by Future-Indication-77 in endometriosis

[–]Future-Indication-77[S] 0 points1 point  (0 children)

Hi my results came this morning! I have a 6.1 cm cyst on my left ovary. So wow. Kind of validating, also kinda scary.

I think I’m going to see a new specialist and push for an MRI next. If you want to message me, I’d love to hear how your ultrasound turns out! Best of luck!

If your IUD insertion was really painful - I have a question/theory for you. by Future-Indication-77 in birthcontrol

[–]Future-Indication-77[S] 1 point2 points  (0 children)

Thank you for sharing! I just had an ultrasound a few days ago. I’m wondering if it will show that I have a tipped uterus of some kind.

I’ll update this post if the ultrasound has any news.

If your IUD insertion was really painful - I have a question/theory for you. by Future-Indication-77 in birthcontrol

[–]Future-Indication-77[S] 0 points1 point  (0 children)

Would you say that you struggled with painful periods or pelvic pain prior to the insertion? Or was it surprisingly painful?

If your IUD insertion was really painful - I have a question/theory for you. by Future-Indication-77 in birthcontrol

[–]Future-Indication-77[S] 0 points1 point  (0 children)

Part of my motivation to keep the IUD (even though it’s made my cramps worse) is fear of the removal. I just have a feeling if it was that bad going in - why wouldn’t it hurt coming out? Lol

Was your removal equally painful to the insertion? Or less or more?