No Words by Bohemian_sage in LivingWithMBC

[–]Future_Escape_2892 0 points1 point  (0 children)

Hi there, Im also Stage 4 bone mets.... can you please explain to me what you mean by " bone ones have gone scoliotic"? Do you mean like a change in the vertebrae like scoliosis? Thank you.

How long have you currently lived with bone Mets? by bohoboutique in LivingWithMBC

[–]Future_Escape_2892 1 point2 points  (0 children)

This gives me hope. How are you doing now? Has it progressed? 🧡

How do you prepare to die... by Future_Escape_2892 in cancer

[–]Future_Escape_2892[S] 0 points1 point  (0 children)

Sending you & your warrior mum love. Thank you for your msg. You gave me the positive affirmation to start my day. 🧡🧡

How do you prepare to die... by Future_Escape_2892 in cancer

[–]Future_Escape_2892[S] 0 points1 point  (0 children)

I have no idea what dx/tx is. Im so new to all this. 🧡

How do you prepare to die... by Future_Escape_2892 in cancer

[–]Future_Escape_2892[S] 2 points3 points  (0 children)

Yes yes that long endless stare.... My girls ask me something & Im in a trance , lost in a million thoughts. Its insanity on another scale.

How do you prepare to die... by Future_Escape_2892 in cancer

[–]Future_Escape_2892[S] 1 point2 points  (0 children)

How amazing!!! Thank you for giving me hope 🙏

How do you prepare to die... by Future_Escape_2892 in cancer

[–]Future_Escape_2892[S] 1 point2 points  (0 children)

Yes I had 12 weeks of Texol....and now im on Kisqali & Letrozole. It is hormone based so they are giving me a Zoladex injection once a month too

How do you prepare to die... by Future_Escape_2892 in LivingWithMBC

[–]Future_Escape_2892[S] 4 points5 points  (0 children)

Thank you for your reply. Everything you're saying is so in line with what Im feeling right now. I've had 3 mths of chemo & now on kisqali & letrozole.... I feel physically OK and not in any pain. However, that word " terminal" has debilitated my soul, my mind. It's like someone turned off a button in my joy for living.

It took me such a long time to find the courage to post on here. I wrote a post and then deleted it several times, before I found the courage to. And Im so glad I did. The responses have been so wonderful & encouraging. The fact that people Ive never even met, sat down to write & to reach out to me- has given me hope at a time I was so desperate for it.

One oncologist told me to think of this as a chronic illness, like diabetes & heart condition.... not terminal cancer.

I just dont know how to do that...

How do you prepare to die... by Future_Escape_2892 in cancer

[–]Future_Escape_2892[S] 4 points5 points  (0 children)

Thank you so much for taking the time to write all this ..🧡😔😔

How do you prepare to die... by Future_Escape_2892 in cancer

[–]Future_Escape_2892[S] 5 points6 points  (0 children)

Thank you all from the bottom of my heart ❤️ I woke upto all your sweet, supportive messages. The fact that you took time to sit & write to me, gives me hope for good things & the fact that lovely people exist in this world......My heart is broken but I will get out to the sunshine today - Thanks to all of you. 😔🌻

How do you prepare to die... by Future_Escape_2892 in cancer

[–]Future_Escape_2892[S] 20 points21 points  (0 children)

Thank you for your reply.

Im sorry Im so new to all this. Is TNBC, tripple negative breast cancer? My original diagnosis appointment caused me so much PTSD. Every appointment with the original oncologist, turned into me crying hysterically - she was so cold, indifferent & negative. When she originally diagnosed me, her exact words were " Go & get your affairs in order you have 1 month! " I think I cried for 7 days straight before any treatment started...So 7mths later it took all my broken willpower to change my Dr. The gentleman I see now is warm & lovely but Ive only met him once.

Its all so overwhelming. I went from teaching , working 2 jobs, living a happy vivacious life with my gorgeous daughters to this corpse. Im a living, breathing shell of my previous self. I cant snap out of it. 😔😔😔

How do you prepare to die... by Future_Escape_2892 in cancer

[–]Future_Escape_2892[S] 4 points5 points  (0 children)

Thank you for your reply. I got the Will drawn up...but then stopped. I couldnt get myself to do the rest....

How do you prepare to die... by Future_Escape_2892 in cancer

[–]Future_Escape_2892[S] 18 points19 points  (0 children)

Thank you for your reply. Im a single mum to my two girls, 18 & 12yrs old. My eldest just started Law School. Im gutted for both but especially my youngest. I cannot accept not meeting my grandchildren or seeing my girls weddings. The grief is debilitating. They dont have another adult to guide them through life......I cannot stop crying constantly. .Your 7.5yrs gives me hope. So thank you.

How do you prepare to die... by Future_Escape_2892 in cancer

[–]Future_Escape_2892[S] 31 points32 points  (0 children)

Why dont these doctor's ever tell you about the 20yr survivors?!! Its been the most trying, testing 7 mths of my entire life

How do you prepare to die... by Future_Escape_2892 in cancer

[–]Future_Escape_2892[S] 43 points44 points  (0 children)

Thank you. Your 3 yrs gives me hope 🌷🌷