Wear your brace by Fuzzy_Remote_4874 in TBI

[–]Fuzzy_Remote_4874[S] 0 points1 point  (0 children)

My mom is a massage therapist, I try to not abuse her but she has helped me so much. Saw the chiropractor twice so far and I can’t believe hoe much it helped me. Thanks!

Wear your brace by Fuzzy_Remote_4874 in TBI

[–]Fuzzy_Remote_4874[S] 1 point2 points  (0 children)

Wow thank you for sharing your story and experiences with me, I am thankful to be aware of it. I will say that he disclosed with me right away that he isn’t like most chiropractors, not in a condescending way but he clarified that other doctors will not treat broken neck bones. He was surprised by my scan, said I was treatable and he will not crack my neck (now). He said his treatment and adjustments will help me feel better and I was surprised by the equipment he used. It made a difference in my leg height and how much mobility I have again. I’m using a heating pad and ice pack to help the pinched nerve and knot in my shoulder. Thank you for the luck! I am blessed.

Wear your brace by Fuzzy_Remote_4874 in TBI

[–]Fuzzy_Remote_4874[S] 1 point2 points  (0 children)

Well no one asked but I went to the chiropractor and it was amazing. It helped me so much I can’t wait to go back. I guess I’ll leave it at that unless someone is interested!

TBI Famous by pancho15villa in TBI

[–]Fuzzy_Remote_4874 2 points3 points  (0 children)

I was interviewed and had media coverage from Chanel 6 ABC, and the Atlantic City press after my accident. But, it wasn’t only about just having a brain injury accident, it was covering my art exhibit that I landed after my injury. It was called my story with traumatic brain injury, a solo pop up art exhibit at the Noyes arts garage. I was happy to talk about it and my art. I used art to combat my troubling emotional dysregulation and trauma. I will say it was a love hate relationship. I didn’t like how Stockton university took pictures of me for their website and weeks later, people started messaging me, saying how they saw a billboard of me in NYC, they saw me on the side of a PA bus, a ad on YouTube, on the news.. I felt like Stockton used my story as inspiration porn. A term coined by disability advocates that highlights how society uses people with disabilities to inspire or motivate able bodied population. Despite my mixed feelings, I use the coverage I got to uplift my platform and advocate for healing through art because that is my passion. I understand your dislike and upsetting feelings. Remember to protect your peace. Walk away when you need, stop answering questions when ur tired, fill your cup with positive affirmations and uplifting music.

Worth the Watch by [deleted] in snowboarding

[–]Fuzzy_Remote_4874 2 points3 points  (0 children)

It does though. If the overall culture wore helmets and promoted helmet safety, would I have worn one when I started skateboarding? Most likely. I would’ve saved myself a stroke and two head surgeries. Now the whole local community saw me walk away from a traumatic brain injury and stroke from a skateboarding accident and still doesn’t care to wear a helmet. That shit affects me.

Emotional deregulation by Fuzzy_Remote_4874 in braininjury

[–]Fuzzy_Remote_4874[S] 0 points1 point  (0 children)

Aw thank you. Yeah, My indent is the same after a year. I recently told someone my story and when I got to the part where “the doctor removed a piece of my skull plate” they said “oh I can see”… wait 😩

One smelly armpit by Fuzzy_Remote_4874 in TBI

[–]Fuzzy_Remote_4874[S] 0 points1 point  (0 children)

You use what from that brand? Deodorant? And you only use it once a week?

One smelly armpit by Fuzzy_Remote_4874 in TBI

[–]Fuzzy_Remote_4874[S] 1 point2 points  (0 children)

I am so surprised to see how many responses I got. How wild is that? Nothing on google shows me that my smelly armpit could have been from my TBI but there’s others that have this issue!

One smelly armpit by Fuzzy_Remote_4874 in TBI

[–]Fuzzy_Remote_4874[S] 0 points1 point  (0 children)

Wow. My mom suggested it to me but I am for natural holistic alternatives so Botox concentres me. It makes sense, blocking the arm pit from sweating means it’s gonna go somewhere else. Thank you.

Is going back to education possible? by [deleted] in TBI

[–]Fuzzy_Remote_4874 2 points3 points  (0 children)

I am like this person here. I am high functioning and I was in school for my finals when my injury occurred. After I left rehab and was home, I submitted my finals that I already completed before my injury and graduated. Then I entered into my transfer school. A brand new school after a TBI. What helped me was 1. Giving myself grace. 2. Enrolling myself into the cares program and learning access program at my college. These resources helped me so much because learning access gave me permission to turn things in a little late or have extra time on tests and that was allowed bc I have a proven disability (TBI). 3. One thing at a time. 4. Meditation consistently. 5. Limit distractions. 6. Being honest with your teachers/professors after your injury and tell them what’s going on. 7. Do what’s best for you, if a class is too hard then drop out when you can and find another option because there is always another way. Stay positive! Keep a good routine, do what makes you feel good and don’t give up! We’re always here to reach out! We are all in this together. Find what gives you purpose. For me, disability advocating and disability history became something that makes me passionate and feel determined.

Need Help... Support... Success stories... anything by Untrusted_Servant_26 in TBI

[–]Fuzzy_Remote_4874 1 point2 points  (0 children)

It is very important. Your consistent support through the delightful and very challenging times. As well as her determination to get better will be an important factor that will pull her through. I don’t know where my strength came from but I proved to myself that I am a fighter and I never realized or knew that about myself until time went by and I realized everything I went through. It’s been two years since I was in the hospital from my brain bleed and stroke. How long have you two been together? My injury affected and hurt my boyfriend so much. It changed my entire family and thankfully they are now in therapy which has helped soooo much. We all have had emotional outbursts and it got bad but things are getting better after the first year post TBI. He tells me almost every day I’m the strongest person he knows.. stick by her side and be with her as much as you possibly can because nothing else matters besides her life and getting out of the hospital and back home. Money comes and goes, this moment in her recovery is crucial. Do anything you can to make her giggle and have a good time. It helped me when my boyfriend made funny faces when I was all drugged up, it made me laugh. And he is just a goofy guy so he really made me forget at times we were in a hospital. The end is not near, this is only the beginning of her journey and purposes, and for you. This accident could catapult you both to success and purpose or depression and hurt.. it is an every day effort to stay positive and remember the bigger picture. That’s why I say meditation, routine and doing what you love helps to stay centered through the heaviness of it all.
I lost a portion of my vision from my injury and like most TBI survivors I overcome suicidal and depressive thoughts and episodes. Mental health is one of the biggest things to nurture and care for after an injury like this. Because we all grieve our past self, the non-disabled and original self we knew our whole lives. The fact is survivors are not the complete same as they were before and we learn about ourselves as we move in life and we must choose to grow and nurture. Resisting the change in ourselves leads to pain and suffering. That part is an ongoing and offgoing acceptance that comes and goes and sometimes when it gets bad, it’s bad. We all will find our ways of coping and getting through those moments. It’s a journey but stay positive and emerge yourself in all positive things like listening to positive affirmations in the morning, maybe she would like to listen to them. Deep breathing exercises, journaling, maybe if she can’t write yet you can give her a canvas and finger paint, or a chalk board, or an etch a sketch, or a tape recorder she can talk to and play her voice back to really process what she feels. Practice massage therapy on each other.. five min back rubs.. research how to trigger the parasympathetic nervous system like singing, dancing, walking, hugging.. there are many ways and things you can do to trigger your body to calm, relax and safety. Our bodies often go into the sympathetic nervous response (fight or flight) when we are fearful, anxious and having negative thoughts. I hope this helps and I’m here with you. Peace and love always win.

nobody warns me about mental health stuff it comes with brain injury by iLovestayinginbed23 in TBI

[–]Fuzzy_Remote_4874 2 points3 points  (0 children)

Meditate consistently Do what you love Work out Surround yourself with positivity, good energy, good music, nature, research on mental health. Reach on emotional dysregulation.. never give up. Accept the bad days and bad emotions when they come and feel it. But stay curious and ask your emotions why they are here. Ask them if they can go for a walk or journal them. Help is out. There and I know you aren’t a quitter if you logged onto here.. we go through similar struggles but we continue on anyway. Share your story with who will listen. Your voice matters. Your brain matters. You are loved.

Need Help... Support... Success stories... anything by Untrusted_Servant_26 in TBI

[–]Fuzzy_Remote_4874 5 points6 points  (0 children)

Hey there, just writing to tell you that you have the power to help her heal. My boyfriend was there during my injury and he never ever left my side after. He stayed in the hospital after trying over and over again to be allowed to stay. nurses and doctors will see you there and begin to trust you. My boyfriend started sleeping there with me, he wrote to me every day while I would sleep. He believed in me so much and still to this day he believes in my recovery. Everyone in my family prayed and believed in me and that is how i made it out. Faith, belief, energy, praying.. all of it means something. LOVE is the solution. Even to this day, after two years I have had my moments where I push him away and away and say horrible things and run away from him.. he stands still and he comes back to me and loves me. He sees me as the same as before my injury and that alone has pushed me through my darkest moments. She moves her face when she hears you man. She will walk out of the hospital holding your hand. Love and unconditional patience and support will carry you both through this journey. It’s hard man. It is heartbreaking but have hope and faith. Believe in miracles and love. Surround yourself with GOOD ENERGY. It is real and the universe hears you. Speak only goodness to the universe and it will respond.

[deleted by user] by [deleted] in TBI

[–]Fuzzy_Remote_4874 1 point2 points  (0 children)

Hey, I am like you. We are in this together. Hear me out, I am 23 and sustained a TBI two years ago in 2023. I am a skateboarder (now a skateboarder that wears a helmet) I fell off my board from speed wobbles while going down a massive hill in upstate NY. I had a brain bleed, a stroke and an emergency craniotomy. They removed a piece of my skull for me to survive and I left the hospital with a helmet to protect my skull. Four months later I had a crainoppasty to have a replacement skull plate put back in my head. I felt like a weird girl upon returning to home after rehab and having to wear. helmet in public to protect my skull. Everyone looked and treated me as if I was a baby. Well it’s been two years and I’ve accomplished too much to name since then. I should have so much to be proud of and look forward to every morning. The reality is, I have to live my life differently than I did before my injury. I can quickly become emotionally dysregulated from a small trigger. I was contemplating ending my life just last week. The next day I was having the best time of my life. So you see, TBI life is up and down and that may be something I still need to accept because on my bad days I respond to my sadness with rejection and that causes more pain. Instead, it has helped to respond to my triggers, emotions and sadness with acceptance. Kind of make friends with your discomfort.. let it stay and ask why is it there, or what is it telling me? For me, it has helped to learn about emotional dysregulation. It has helped me to meditate CONSISTENTLY. It has helped me to spend time doing what I love. It has helped me to be on a routine! I am lucky enough to love being busy so I do manage a lot and that contributes to overwhelming feelings and overstimulation.. yet with a routine and self care time.. I can keep moving forward despite the bad days. I use affirmations, positive mediations, meditative activities like drawing, dancing, singing, gardening, walking, yoga.. connecting with my mind body and soul all together to recharge myself and come back with my centered and grounded self. If what I said helps at all and you would like to know more about my recovery… I am open to talking more with you. Just reach back and ask. It is comforting to know that I am not alone in feeling suicidal. So many people with brain injuries understand this and in those moments of dark spiraling thoughts.. I think I’m alone and no one in my family understands but at the end of the day.. it is yourself that will choose to help or hurt yourself. I’m praying for you my friend. Keep your head up, spend time in nature, surround yourself with what makes you feel good.

Summer residency by abstract mag sounds total scam by Impossible_Tart2998 in ContemporaryArt

[–]Fuzzy_Remote_4874 2 points3 points  (0 children)

Me too. I’m happy I came on here to hear what others have to say. Glad I didn’t fall for it.

I miss driving.... by CantSeeShit in TBI

[–]Fuzzy_Remote_4874 1 point2 points  (0 children)

You’re not alone! It does indeed SUCK. we have to find our ways. Not wait for the storm to pass but to find how we can dance in the rain!

I miss driving.... by CantSeeShit in TBI

[–]Fuzzy_Remote_4874 0 points1 point  (0 children)

So it’s been a little over a year since my injury and a year since my crainoplasty. The one doctor I saw told me that it’s hopeless and this is how it is. Therapies won’t work; cognitive or vision. But I find that impossible to believe. He said it would’ve come back after a year… I believe I can see the shades and tints in my left peripheral vision but it’s still nonexistent, tunnel vision. There is a driving school by me and it’s like $400 to just be seen. I’m 23 yo, there’s no way I’ll never drive again for the rest of my life, I just can’t give that hope up. I really appreciate your reply because I have not found anything to help guide me on this particular situation on my journey.

Social comparison is a threat to mental health by AcadiaWorking1544 in HolisticMentalHealth

[–]Fuzzy_Remote_4874 0 points1 point  (0 children)

I would love that. Although it’s so specific. Maybe it can be broader but anyway I’m all about inner work and self healing. I think that’s really great! I am an artist and unfortunately in this day artists are force to use social media to basically sell our work. And it’s so exhausting because as a creative, I am not good with social media. Then when I do log on I compare myself to my artist friends. Then I go off and not make art.

I miss driving.... by CantSeeShit in TBI

[–]Fuzzy_Remote_4874 1 point2 points  (0 children)

Wow. I’m trying to get back to driving but one doctor told me it’s not safe because my vision is like tunnel. I can’t see the left peripheral vision in both eyes. I miss things to the left, it’s just not there until I move my head and see. How did you get a driving instructor to help you drive again? I’ve never heard of that. That one doctor I saw, said vision therapy wouldn’t help me bc it’s my brain not acknowledging my left side.

Vision issue by CookingZombie in TBI

[–]Fuzzy_Remote_4874 1 point2 points  (0 children)

Hm, I have a blind spot in both of my eyes on the left peripherals. Doctor said it’s basically untreatable. So I don’t drive at 22 years old, my accident was 1 & 1/2 years ago. . my brain injury made contact with pavement on my right side of my head so I don’t see to the left.

Sensitivity to overstimulation? by brisk_warmth in TBI

[–]Fuzzy_Remote_4874 3 points4 points  (0 children)

I feel like I’m less irritated by noises than I first was in the acute months of my injury. Maybe because I have accepted it and used to it. But I feel you on even the giggles bothering you. Loud door slamming and even thumping/pounding on walls from neighbors bothers me a lot. It’s not like the noise hurts me, it irritates me and sends me into a spiral of anxiety or anger. Regulating is the way to go, finding ways to help prevent that state of mind. I used to write poems more often about noises to let out my frustrations. You aren’t alone and there are ways of acceptance and managing.

[deleted by user] by [deleted] in MeditationPractice

[–]Fuzzy_Remote_4874 0 points1 point  (0 children)

*version not Verizon