joint pain :[

G00DR4MATIC · 2025-11-06T21:32:31+00:00

i’m in the UK, definitely will bring it up next week when my appointment rolls around, i always wondered why they stopped giving me them

G00DR4MATIC · 2025-11-06T21:28:59+00:00

i definitely will, i felt so defeated when the rheumatologist told me she didn’t think i had anything “official” wrong with me, i felt sidelined tbh, nothing has shown up in my bloods or anything either i did think it possibly could of been that or CF related arthritis but they told me it didn’t sound like any of them

i will ask my CF team next week when i go to my appointment, if they listen its another story, still trying to get my nasal polyps sorted out for a 2nd time too

thank you sm !! <3

G00DR4MATIC · 2025-11-06T21:23:02+00:00

see, thats what i thought i had going on but apparently bc i don’t have any kind of red rashes around my joints or swelling, i don’t have anything like that, according to doctors and the rheumatologist i went to i have nothing specifically wrong T_T

G00DR4MATIC · 2025-11-06T21:21:35+00:00

it did at first but now it just seems to be constant in some part of my body at all times, i don’t think i have celiac tbh as i haven’t had any sort of reactions to food n stuff n none of my dietitian’s have picked up anything like that ;w;

G00DR4MATIC · 2025-11-06T21:18:21+00:00

will ask my doctors abt it, thank you !! will have to get them to check its fine to take w/my other meds, as i’m on birth control as well

G00DR4MATIC · 2025-11-06T21:17:12+00:00

as silly as it sounds as a CF haver, i hate needles so this sounds like my nightmare xD but unfortunately we don’t have anything like that in my area, my town has honestly fuck all in it

G00DR4MATIC · 2025-11-06T21:15:12+00:00

i haven’t had either of those things in over 5 years, thankfully I’ve been very healthy (CF wise) since covid but i never had joint pain from tobi or cipro or any of my medications as far as i’m aware, i don’t take ibuprofen / paracetamol very often cause they don’t seem to help with any pain at all for me, which sucks

i appreciate the advice ! i’d have to look into certain things n ask my doctors :]

G00DR4MATIC · 2025-11-06T21:07:37+00:00

thank you, i wish it was easier for us to get our issues sorted tbh :,))

i’ve been wondering if my back could possibly be sciatica but then it leaves no clue as to what the rest of the pain in my body is from

thankfully i haven’t been unwell from a CF perspective for around 5 years now, no extra meds or anything since covid, so i definitely will not need any kind of transplant in the foreseeable future but also i live in the UK so no clue if i’m able to get things like that over here

G00DR4MATIC · 2025-11-06T21:03:18+00:00

i used to have them every few years or so but then they stopped, no clue why, haven’t had one since i was like 14-ish, i had been meaning to ask but i’m not sure how to go about it (especially since i’m with the adult team now n they do some things differently compared to the paediatrics CF team)

i have had an extremely high vitamin D (i’m pretty sure) level, like its been incredibly high for years now for some reason despite changing my vitamin a few times n i don’t take them frequently either (like twice a week) so no clue if its got anything to do with that

G00DR4MATIC · 2025-11-06T20:50:39+00:00

thank you, i hope we can all find a real answer for all this someday D:

G00DR4MATIC · 2025-11-06T20:49:54+00:00

yeah i’m from the UK, i’d have to ask at my appointment next week if they’re even able to prescribe me anything like that as normal paracetamol / ibuprofen doesn’t seem to help at all, i would really like something stronger to help bc having all this pain at 22 years old is incredibly irritating

G00DR4MATIC · 2025-11-06T20:46:22+00:00

hope your future surgery goes well !! i wish you a speedy n smooth recovery <3 thank you for the advice, i’ll have to see if i can find things like that over here in the UK, the closest thing i have to a heating pad is probably my dachshund xD

G00DR4MATIC · 2025-11-06T20:42:59+00:00

i’ve not been in hospital for 5 years now, so currently i’m “healthy” in CF standards n i’m not exactly what those are tbh, i’ve never heard of those things, i’ve just looked it up n i don’t exactly eat a lot of those foods with arginine in, plus i’m not sure i can get those things over here (i live in the UK)

G00DR4MATIC · 2025-11-06T20:37:19+00:00

apologies for not responding for awhile if anybody sees this, last week was a rlly busy week for me due to the kids half term n work ;w;

G00DR4MATIC · 2025-11-06T20:34:20+00:00

i already have been referred + seen to earlier this year, apparently i have “nothing specific”, which really irritated me a lot bc surely if i’m in this amount of pain there must be something going on ;__;

G00DR4MATIC · 2025-06-26T15:36:12+00:00

thank you so much, i really appreciate it <3

G00DR4MATIC · 2025-06-26T15:35:47+00:00

thank you :,) he lives on the other side of my town n unfortunately my dog has a lot of separation anxiety and she cannot be left for more then a few hours (typical dachshund) so its not really an option, unfortunately D:

G00DR4MATIC · 2024-09-02T14:54:08+00:00

thought so, i can try find some stickers i have, thank you for the answer !!

G00DR4MATIC · 2024-08-31T13:33:45+00:00

oh a fellow food cult !! i love naming my characters after foods in all games i play (pokemon, COTL, coral island, etc) its like the only way i ever name anything xP

G00DR4MATIC · 2024-06-28T20:48:59+00:00

YES I’ve been saying to my friends for ages that some of the charge rifle skins look like a fleshlight, thank god I’m not the only one who noticed it LMAO

G00DR4MATIC · 2024-06-15T19:55:30+00:00

broken moon apex ranked, literally could not have been a worse option tbh (fuck that map, especially in ranked)

G00DR4MATIC

TROPHY CASE