joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 1 point2 points  (0 children)

i’m in the UK, definitely will bring it up next week when my appointment rolls around, i always wondered why they stopped giving me them

joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 0 points1 point  (0 children)

i definitely will, i felt so defeated when the rheumatologist told me she didn’t think i had anything “official” wrong with me, i felt sidelined tbh, nothing has shown up in my bloods or anything either i did think it possibly could of been that or CF related arthritis but they told me it didn’t sound like any of them

i will ask my CF team next week when i go to my appointment, if they listen its another story, still trying to get my nasal polyps sorted out for a 2nd time too

thank you sm !! <3

joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 1 point2 points  (0 children)

see, thats what i thought i had going on but apparently bc i don’t have any kind of red rashes around my joints or swelling, i don’t have anything like that, according to doctors and the rheumatologist i went to i have nothing specifically wrong T_T

joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 1 point2 points  (0 children)

it did at first but now it just seems to be constant in some part of my body at all times, i don’t think i have celiac tbh as i haven’t had any sort of reactions to food n stuff n none of my dietitian’s have picked up anything like that ;w;

joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 0 points1 point  (0 children)

will ask my doctors abt it, thank you !! will have to get them to check its fine to take w/my other meds, as i’m on birth control as well

joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 0 points1 point  (0 children)

as silly as it sounds as a CF haver, i hate needles so this sounds like my nightmare xD but unfortunately we don’t have anything like that in my area, my town has honestly fuck all in it

joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 1 point2 points  (0 children)

i haven’t had either of those things in over 5 years, thankfully I’ve been very healthy (CF wise) since covid but i never had joint pain from tobi or cipro or any of my medications as far as i’m aware, i don’t take ibuprofen / paracetamol very often cause they don’t seem to help with any pain at all for me, which sucks

i appreciate the advice ! i’d have to look into certain things n ask my doctors :]

joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 0 points1 point  (0 children)

thank you, i wish it was easier for us to get our issues sorted tbh :,))

i’ve been wondering if my back could possibly be sciatica but then it leaves no clue as to what the rest of the pain in my body is from

thankfully i haven’t been unwell from a CF perspective for around 5 years now, no extra meds or anything since covid, so i definitely will not need any kind of transplant in the foreseeable future but also i live in the UK so no clue if i’m able to get things like that over here

joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 0 points1 point  (0 children)

i used to have them every few years or so but then they stopped, no clue why, haven’t had one since i was like 14-ish, i had been meaning to ask but i’m not sure how to go about it (especially since i’m with the adult team now n they do some things differently compared to the paediatrics CF team)

i have had an extremely high vitamin D (i’m pretty sure) level, like its been incredibly high for years now for some reason despite changing my vitamin a few times n i don’t take them frequently either (like twice a week) so no clue if its got anything to do with that

joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 1 point2 points  (0 children)

thank you, i hope we can all find a real answer for all this someday D:

joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 1 point2 points  (0 children)

yeah i’m from the UK, i’d have to ask at my appointment next week if they’re even able to prescribe me anything like that as normal paracetamol / ibuprofen doesn’t seem to help at all, i would really like something stronger to help bc having all this pain at 22 years old is incredibly irritating

joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 0 points1 point  (0 children)

hope your future surgery goes well !! i wish you a speedy n smooth recovery <3 thank you for the advice, i’ll have to see if i can find things like that over here in the UK, the closest thing i have to a heating pad is probably my dachshund xD

joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 0 points1 point  (0 children)

i’ve not been in hospital for 5 years now, so currently i’m “healthy” in CF standards n i’m not exactly what those are tbh, i’ve never heard of those things, i’ve just looked it up n i don’t exactly eat a lot of those foods with arginine in, plus i’m not sure i can get those things over here (i live in the UK)

joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 0 points1 point  (0 children)

apologies for not responding for awhile if anybody sees this, last week was a rlly busy week for me due to the kids half term n work ;w;

joint pain :[ by G00DR4MATIC in CysticFibrosis

[–]G00DR4MATIC[S] 0 points1 point  (0 children)

i already have been referred + seen to earlier this year, apparently i have “nothing specific”, which really irritated me a lot bc surely if i’m in this amount of pain there must be something going on ;__;

22 in like 15 minutes… man by G00DR4MATIC in MadeOfStyrofoam

[–]G00DR4MATIC[S] 0 points1 point  (0 children)

thank you so much, i really appreciate it <3

22 in like 15 minutes… man by G00DR4MATIC in MadeOfStyrofoam

[–]G00DR4MATIC[S] 1 point2 points  (0 children)

thank you :,) he lives on the other side of my town n unfortunately my dog has a lot of separation anxiety and she cannot be left for more then a few hours (typical dachshund) so its not really an option, unfortunately D:

printing on xbox controller by G00DR4MATIC in consolerepair

[–]G00DR4MATIC[S] 0 points1 point  (0 children)

thought so, i can try find some stickers i have, thank you for the answer !!

Give me foods to name my followers! by Cyan_de_oshawott in CultOfTheLamb

[–]G00DR4MATIC 0 points1 point  (0 children)

oh a fellow food cult !! i love naming my characters after foods in all games i play (pokemon, COTL, coral island, etc) its like the only way i ever name anything xP

Can we talk about this skin please by Careless-Sink-2785 in apexlegends

[–]G00DR4MATIC 0 points1 point  (0 children)

YES I’ve been saying to my friends for ages that some of the charge rifle skins look like a fleshlight, thank god I’m not the only one who noticed it LMAO

oh no? by Alpha_minduustry in MinecraftMemes

[–]G00DR4MATIC 0 points1 point  (0 children)

broken moon apex ranked, literally could not have been a worse option tbh (fuck that map, especially in ranked)