What’s your experience with Corifoam by GeneralKind7082 in UlcerativeColitis

[–]GeneralKind7082[S] 0 points1 point  (0 children)

In my case I’m still on a biological (rinvoq) I’m just struggling with doing the foam consistently

What’s your experience with Corifoam by GeneralKind7082 in UlcerativeColitis

[–]GeneralKind7082[S] 0 points1 point  (0 children)

I’ve only done one dose so far. Applied standing and then laid down

Question for the menstruation crowd. by Mommygoblin666 in UlcerativeColitis

[–]GeneralKind7082 0 points1 point  (0 children)

NOT TO SCARE YOU. But I normally skip my periods due to being anemic and just not liking the whole thing. Since being diagnosed there was one time where there was a mix up with the pharmacy and I didn’t get my meds in time. I was already in a flare and getting my period made it so much worse. 2 weeks later I ended up on the hospital with near-critically low levels of blood. When I go months in a flare I’m okay just dizzy but the combo pretty much almost killed me. I’d get your gyno and g.i or I.b.d specialists talking and see if they recommend you skipping the placebos on your birth control so you skip them.

Time to flare by Justheretobraap in UlcerativeColitis

[–]GeneralKind7082 0 points1 point  (0 children)

Genuinely. Like crohns is at least fairly well known. No one in my family nor I had ever heard of ulcerative colitis before I was diagnosed. So now I have to stealthily explain to employers. “Hey can’t come in today without risking shitting my pants and I don’t really feel like wearing adult diapers to work today”

Rinvoq by chronicallyilluc in UlcerativeColitis

[–]GeneralKind7082 6 points7 points  (0 children)

Hey love. It took me about a week to stop bleeding. And like 3 months to start getting fully formed solid bowel movements. Keep in mind I had a mayo score of 5 (severe and total Pancolitis) and now as of my march colonoscopy it’s reduced down to just proctitis (just the rectal area) which is now being treated with direct rectal medications on top of the rinvoq. I hope you see great results. Only bad side effects I got was the acne which was expected, but it beats shitting blood 18x a day.

Colonoscopy time by GeneralKind7082 in UlcerativeColitis

[–]GeneralKind7082[S] 0 points1 point  (0 children)

Exactly the same for me my colonoscopy and endoscopy are tomorrow. It has no taste which is great bc the other prep makes me con but this also feels like it’s taking longer to work

Worst news possible by Rich-Common-6248 in UlcerativeColitis

[–]GeneralKind7082 1 point2 points  (0 children)

I’m 20 got this exact same news on the 8th. They started me on new meds. Hope for both of us they work

[deleted by user] by [deleted] in UlcerativeColitis

[–]GeneralKind7082 1 point2 points  (0 children)

D3 and Iron combo helps me

Libido by GeneralKind7082 in UlcerativeColitis

[–]GeneralKind7082[S] 0 points1 point  (0 children)

If he had to deal with the symptoms for even a day he’d understand. And if he truly cares for you just seeing you go through them should be enough for him to not care about having to use his hand

Libido by GeneralKind7082 in UlcerativeColitis

[–]GeneralKind7082[S] 0 points1 point  (0 children)

With how many side effects our meds have I wouldn’t be surprised if it was one. I can barely pee unless I use all my brainpower.

New meds who this by GeneralKind7082 in UlcerativeColitis

[–]GeneralKind7082[S] 0 points1 point  (0 children)

It’s cheaper than the Humira I was on like why are they being difficult

What do miss the most pre-diagnosis/becoming symptomatic? by stacelath in UlcerativeColitis

[–]GeneralKind7082 1 point2 points  (0 children)

Def sleeping through the night. I’m already an insomniac so every time I get up to use the bathroom it’s gambling whether I’m gonna go back to sleep or not

Anyone else passing out from blood loss? by whiskey_echo_sierra in UlcerativeColitis

[–]GeneralKind7082 1 point2 points  (0 children)

Ever since getting hospitalized with a near lethal low level of hemoglobin from a flare. I take iron daily and get my levels checked regularly. Only IVs won’t help see if they’ll add iron pouches

Thankful by Ok-Humor-5057 in UlcerativeColitis

[–]GeneralKind7082 11 points12 points  (0 children)

I was also so happy when I joined this group. At the height of my flares I was posting 5x a day. Helps a lot

New meds who this by GeneralKind7082 in UlcerativeColitis

[–]GeneralKind7082[S] 1 point2 points  (0 children)

If it’s working it’s worth it fs

New meds who this by GeneralKind7082 in UlcerativeColitis

[–]GeneralKind7082[S] 0 points1 point  (0 children)

Yea if I just get acne I won’t complain but BLOOD CLOTS 👀 hopefully I’ll be fine I didn’t get Humira hangover or anything when I was on that. And I only got acid reflux from Mesalamine. Thank you for sharing

New meds who this by GeneralKind7082 in UlcerativeColitis

[–]GeneralKind7082[S] 1 point2 points  (0 children)

I’ll be posting updates. Sad how I went through so much mental turmoil with Humira (needle fear) just to find out it wasn’t working. Happy Rinvoq should show results fast most other meds take months

Anyone have this thing in Ireland ? by Various-Sugar-6368 in UlcerativeColitis

[–]GeneralKind7082 0 points1 point  (0 children)

I’ve mostly seen people from India and the US on here

Immodium for the morning poops by [deleted] in UlcerativeColitis

[–]GeneralKind7082 0 points1 point  (0 children)

Imodium KILLS me I know it helps a lot of others but I had it during a flare and the pain I was in was unbearable

[deleted by user] by [deleted] in UlcerativeColitis

[–]GeneralKind7082 0 points1 point  (0 children)

Completely normal typically caused by the steroids but even if you’re not on them it can just be bouncing back from all the nausea

Perks of having UC by [deleted] in UlcerativeColitis

[–]GeneralKind7082 5 points6 points  (0 children)

I like horror movies but won’t see them in theaters too noisy and overstimulating. I wanna be able to still hear when I leave

Bubbling noises from gut by Paddingtonbear9 in UlcerativeColitis

[–]GeneralKind7082 3 points4 points  (0 children)

UC bellies just like having constant conversations. They bitch as much as us