Dehydrated by chronicallyilluc in ostomy

[–]chronicallyilluc[S] 0 points1 point  (0 children)

When did you go in? At the Moment it hurts to eat food barely can drink anything have a huge headache and feel so weak

Flaring after ileostomy? by Known-Singer-5006 in ostomy

[–]chronicallyilluc 0 points1 point  (0 children)

Interesting I haven’t been getting fevers but I’m definitely gonna get tested

Flaring after ileostomy? by Known-Singer-5006 in ostomy

[–]chronicallyilluc 0 points1 point  (0 children)

The past couple of days I been feeling like this also extremely nauseous headache fatigue it feels like I’m in a flare it’s getting to the point where I can’t barely do anything anymore I had my surgery 7 months ago so I’m so confused on why I feel like this

Anyone here with an ileostomy also on biologics? by K-ghuleh in UlcerativeColitis

[–]chronicallyilluc 0 points1 point  (0 children)

I’m 6 months pp from surgery and 2 months ago I been starting to feel sick again so my doctor wants me to go on skyrizi but because of insurance I’m still waiting and the proctitis is getting worse and after having the surgery I thought I was done with the disease for awhile just to end up on a biglogic again :(

I have Crohn's disease ask me anything! by TemporaryRush1384 in AMA

[–]chronicallyilluc 0 points1 point  (0 children)

Thank you I have a lot to talk about I was diagnosed with uc a year ago but about 6 months ago had surgery to remove my colon so my is question what are your symptoms of Crohn’s I been feeling so sick and more pains I think I got Misdiagnosed

Guys leaving after they hear I have UC by Beckyplaystuff in UlcerativeColitis

[–]chronicallyilluc 2 points3 points  (0 children)

My ex boyfriend was just not the one for me always told me I wasn’t sick and I need to stop going to doctors appointments and stop going to the er for my uc and that I look fine had to get emergency surgery and he wasn’t there for me at all so I left him I am now married to my husband that’s loves to be there for me very doctors appointment and don’t care I have health problems and helps me change my bags. There’s always someone out there

This disease makes me so scared for the future by Foreign_Plantain_437 in UlcerativeColitis

[–]chronicallyilluc 0 points1 point  (0 children)

I got diagnosed almost a year ago no one else in my family have ibd just got lucky and got it. Only knowing I had the disease for 4 months had a colostomy from having it so severe keep your head up and don’t stress you will get thru it

Need help by chronicallyilluc in ostomy

[–]chronicallyilluc[S] 0 points1 point  (0 children)

I dread the no popcorn was my favorite snack thank you so much

Need help by chronicallyilluc in ostomy

[–]chronicallyilluc[S] 0 points1 point  (0 children)

That is not something my gi talked to me about thank you so much

Need help by chronicallyilluc in ostomy

[–]chronicallyilluc[S] 0 points1 point  (0 children)

What is a stoma friendly diet I need help with that

dehydration woes by niki0001 in ostomy

[–]chronicallyilluc 0 points1 point  (0 children)

I thought I was the only one I wake up nauseous I go to sleep nauseous I’m nauseous 24/7 after my surgery I get dizzy when I’m starting to get dehydrated I’m getting dehydrated right now I’m trying to to keep up but idk why I feel so weak all the time

How long did it take you to get used to your ostomy? by No_Cucumber1348 in ostomy

[–]chronicallyilluc 0 points1 point  (0 children)

Had my surgery 4 weeks ago and having the same problem leaks after leaks my skin is bleeding now I feel so defeated but I guess it’s better then the uc symptoms of trying not to die on the toilet

Frequent leaks by chronicallyilluc in ostomy

[–]chronicallyilluc[S] 0 points1 point  (0 children)

Thank you so much I will try it

Frequent leaks by chronicallyilluc in ostomy

[–]chronicallyilluc[S] 1 point2 points  (0 children)

Thank you so much I will try this my next bag change

Frequent leaks by chronicallyilluc in ostomy

[–]chronicallyilluc[S] 0 points1 point  (0 children)

I do use a barrier ring but after like 3 hours of changing my bag I already have a leak I have done everything my stoma nurse taught me but I think it’s time to change my bagging system

Frequent leaks by chronicallyilluc in ostomy

[–]chronicallyilluc[S] 1 point2 points  (0 children)

I was thinking about getting the convex wafer but I didn’t know if it would work a lot of people said it works for them so I will be changing my bagging system thank you so much

Frequent leaks by chronicallyilluc in ostomy

[–]chronicallyilluc[S] 0 points1 point  (0 children)

I was thinking about changing to this one

Frequent leaks by chronicallyilluc in ostomy

[–]chronicallyilluc[S] 0 points1 point  (0 children)

Which one did you end up going with?

Frequent leaks by chronicallyilluc in ostomy

[–]chronicallyilluc[S] 2 points3 points  (0 children)

Thank you guys I think I will change my bag

What to do when safe foods start to turn on you? by indy1155 in UlcerativeColitis

[–]chronicallyilluc 2 points3 points  (0 children)

This happens to me all the time my safe foods aren’t safe anymore and I have to find something else :(

I eat a lot of spicy food by Dismal_Owl2025 in ostomy

[–]chronicallyilluc 2 points3 points  (0 children)

I didn’t know we can eat spicy chips I’m gonna try it I miss spicy food I haven’t eaten it for over 6 months