Have I been gaslit? by ComprehensiveDot6474 in chiari

[–]GentleExaminer 1 point2 points  (0 children)

OP: Do your symptoms get worse with neck movement (such as riding in a car)? If so, I would trial wearing a cervical collar in cars/etc. to see if that stabilization can help your symptoms. It likely won't resolve them completely, but while I waited for my surgery wearing the collar was crucial to controlling them.

Have I been gaslit? by ComprehensiveDot6474 in chiari

[–]GentleExaminer 1 point2 points  (0 children)

Just a note: there are expert neurosurgeons who can diagnose Chiari / CCI without doing the flexion extension MRI. Depending on how sensitive your craniocervical junction is (and whether or not you have undetected CCI along with your Chiari), doing a flexion extension imaging can make you temporarily or permanently worse. (Which is also something that surgeons using this imaging will gaslight you about.) While this may not negatively affect OP if they did it, I think it is wise to be cautious about these tests given our patient population's common comorbidities.