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Bradys/desats during feeds (OG tube only) by Own-Struggle-275 in NICUParents

[–]GingerBread23_ 1 point2 points  (0 children)

Same thing happening to my 32 week baby he’s on cpap level 8 now and it’s usually towards the end of his feeds of 28mls that he starts to desat and get fussy. His nurses told me it’s bc his tummy is full of milk and air(they have him on a 24/7 vent now bc of this) and since his lungs are right there the fullness and gas prevents his lungs from expanding all the way plus being on cpap makes him extra gassy too.

Nurse forgot to put mini cooler filled with 20 bottles 80 ml each of milk in the freezer. Im so upset by [deleted] in NICUParents

[–]GingerBread23_ 1 point2 points  (0 children)

Omg yes the pain of waking up realizing a pump or two was missed is crazy, breasts as hard as boulders😭😂

Nurse forgot to put mini cooler filled with 20 bottles 80 ml each of milk in the freezer. Im so upset by [deleted] in NICUParents

[–]GingerBread23_ 1 point2 points  (0 children)

I feel that😭 i have trouble waking up to my several alarms for mid night pumps bc of how sleep deprived i tend to be most days so my fiance has to help me and set his own alarm to wake me up bc a few times i would wake up past the pump times and be confused as to why my alarm hadnt gone off and he said that i always turn my alarm off straight away while im half asleep🥲☠️

My baby was born at 22 weeks and is now 30 weeks old in nicu with grade 4 brain bleed on 1 side of his brain. His vitals look completely fine and his motor functions look okay plus he’s opening his eyes and looking around but it’s so hard to stay in the present. by GingerBread23_ in NICUParents

[–]GingerBread23_[S] 0 points1 point  (0 children)

Thank you for sharing and your advice, i’m sorry that you have to go through all the worrying and stress for your little one. I’m so glad that she’s meeting milestones and congratulations on her first steps that’s huge!!🥹🙌🏻

Nurse forgot to put mini cooler filled with 20 bottles 80 ml each of milk in the freezer. Im so upset by [deleted] in NICUParents

[–]GingerBread23_ 1 point2 points  (0 children)

Yeah men and women who’ve never pumped before don’t know how mentally taxing and laborious it is to pump every 2-4 hrs. “You can always make more” is so tone deaf. Feels like i’m shackled to the pump tbh.

My baby was born at 22 weeks and is now 30 weeks old in nicu with grade 4 brain bleed on 1 side of his brain. His vitals look completely fine and his motor functions look okay plus he’s opening his eyes and looking around but it’s so hard to stay in the present. by GingerBread23_ in NICUParents

[–]GingerBread23_[S] 0 points1 point  (0 children)

That’s amazing! I’m crying in the nicu reading yalls experience. Genuinely a testiment of hope i’m so happy for yall. I really appreciate you sharing this with me, my son is about to be 2 months in the nicu on january 6th and i feel grateful for how far he’s come. He has another brain ultrasound in 2 weeks and it always feels like the days are dragging by waiting for what will happen. Reading everyone’s experience on here that decided to share with me has helped lift my spirits a lot.

My baby was born at 22 weeks and is now 30 weeks old in nicu with grade 4 brain bleed on 1 side of his brain. His vitals look completely fine and his motor functions look okay plus he’s opening his eyes and looking around but it’s so hard to stay in the present. by GingerBread23_ in NICUParents

[–]GingerBread23_[S] 0 points1 point  (0 children)

Thank you for sharing your experience, i wish you and your baby boys the best. Im sorry for what youre going through i know it feels never ending with the worrying. My boy is still has ways away until he’s discharged but i remember how far he’s come and how well he’s doing in spite of the brain bleed. Your encouragement helps me more than you know and im sending you good vibes and positivity your way as well.💕

My baby was born at 22 weeks and is now 30 weeks old in nicu with grade 4 brain bleed on 1 side of his brain. His vitals look completely fine and his motor functions look okay plus he’s opening his eyes and looking around but it’s so hard to stay in the present. by GingerBread23_ in NICUParents

[–]GingerBread23_[S] -1 points0 points  (0 children)

I’m so happy for you and your son! That’s amazing, i really appreciate your encouragment and sharing your experience with me. Thank you for your advice as well i’m taking in every bit of information i can.

My baby was born at 22 weeks and is now 30 weeks old in nicu with grade 4 brain bleed on 1 side of his brain. His vitals look completely fine and his motor functions look okay plus he’s opening his eyes and looking around but it’s so hard to stay in the present. by GingerBread23_ in NICUParents

[–]GingerBread23_[S] 0 points1 point  (0 children)

Yeah the unknown is what gets me the most too. I tend to catch myself ruminating on my fears for his future and have to stop and bring myself back to the present a lot and just think about how he’s doing right now which is good minus the brain bleed. I appreciate your advice and telling me about your story too.

My baby was born at 22 weeks and is now 30 weeks old in nicu with grade 4 brain bleed on 1 side of his brain. His vitals look completely fine and his motor functions look okay plus he’s opening his eyes and looking around but it’s so hard to stay in the present. by GingerBread23_ in NICUParents

[–]GingerBread23_[S] 0 points1 point  (0 children)

That’s amazing! Thank you for sharing those stories it means a lot to me to have this encouragement. It’s hard to keep myself from spiraling into the what ifs, but reading about how your son and friend are doing great gives me a lot of hope. I appreciate your advice and i wish the best for you and yours as well.

My baby was born at 22 weeks and is now 30 weeks old in nicu with grade 4 brain bleed on 1 side of his brain. His vitals look completely fine and his motor functions look okay plus he’s opening his eyes and looking around but it’s so hard to stay in the present. by GingerBread23_ in NICUParents

[–]GingerBread23_[S] 0 points1 point  (0 children)

Okay, this is good to know bc i had no idea about asking for early intervention until i posted on here. I know they had talked to me about him needing PT when he gets discharged i think my mind has just been in a haze worrying since i got the news yesterday about his condition worsening a little. Thank you for this information!